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Author Topic: 1st week of Viekira Pak + Riba done and dusted!  (Read 82000 times)

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Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #100 on: October 05, 2015, 05:47:41 pm »
That's good on you not God. Sorry oops. Typing with one finger and I still get it wrong. Cal :-[
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #101 on: October 05, 2015, 06:21:55 pm »
Thanks all for the cheers!    ;D

Last week  alt 36 (6-29) normal
Bili               2.4 (0.2-1.2) normal
Ast in normal range
Apholphotate 155  (33-130) normal... hmm
Doc said some signs of anemia....


I truly appreciate y'alls advice. It's been able to bring down the tenor to acceptable. Really watching my tongue...

Perci ;) and I really hope this is a phase that passes so he can be the only crazy/silly thing commented about in my posts :)


Very excited to hear those 4 week numbers! You'll be the next to know! (After the hubby of course :)

<3 Marianne
« Last Edit: October 05, 2015, 06:26:38 pm by byebyeC »
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #102 on: October 06, 2015, 03:37:19 am »
Marianne,
Looking good honeypie. Bili was not too high but we knew it would be higher. Those numbers are coming down! ALT cool  bananas! Cal :)

For she's a jolly good woman,
For she's a jolly good woman
and so say all of us!!!!!
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #103 on: October 06, 2015, 06:54:58 am »
My bili stayed well over double the normal amount all the way through treatment and dropped to 1 point over normal within ten days of treatment
Hang in there

Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #104 on: October 06, 2015, 12:57:57 pm »
Can't wait for your update!!!
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #105 on: October 06, 2015, 01:44:38 pm »
A big thank you to my forum folks for always cheering me up and on!, oh and keeping the pot lid on so my brain doesn't boil over, teehee :D  (((HUGS ALL AROUND)))

You're the best, truly.  ;D ;D ;D
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #106 on: October 06, 2015, 02:09:16 pm »
 Stewed Brains huh?? Yummy, I'll take a double serving, Hold the Riba and Hep C please!!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #107 on: October 06, 2015, 02:16:15 pm »
Sure feels that way Tommy! :D

I WISH I could hold the riba! It's making me coo coo for coco puffs!!! I'm gonna go with it's hepc free though!!! :D
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #108 on: October 06, 2015, 02:23:21 pm »
 With all that I have heard , read , and listened to You guys say about Ribavarin , I would have to respectfully decline if prescribed by My Doctor. I would most likely wind up in the psych, ward of a Texas Dept. of Criminal Justice Penitentiary very quickly for various & sundry reasons I do not care to discuss here. But with that being said, Have a wonderful day darlin'  ( Pssst Perci , sic em )
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #109 on: October 06, 2015, 02:38:33 pm »
Thanks Tommy,

It's getting better:)

You go out and have a great one too! Hopefully one without too many honey do's on it this time :)
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #110 on: October 07, 2015, 01:11:59 am »
Tommy,
That's why I don't leave the house too much, it's best to keep mouth zipped.  I can't be responsible for having no filter on it anymore.  I'm taking no prisoners at the moment and leaving a trail of riba mess. Can't wait to get off it. I feel like swearing but I'm restraining that too (not always :-[ successfully). hehe Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #111 on: October 07, 2015, 12:44:12 pm »
   I certainly feel for You guys. I guess laughing to keep from crying takes on a whole new meaning!!!!

 I LOST CONTROL!!! REWARD TO ANYONE WHO CAN FIND IT!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #112 on: October 07, 2015, 07:04:46 pm »
Tommy,
Damn right! Gotta keep laughing. He he Cal  ;D
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #113 on: October 09, 2015, 07:04:36 pm »
Marianne,
How are you journeying my fellow and naughty traveller? How the RIBA crap? Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #114 on: October 09, 2015, 07:38:33 pm »
You two crack me up! (more than I already am!!!) :D

I'd def be in the pen too if I did a tenth of what I wanted to the last couple... Thank Heaven for the ER and calm your little #% down pills.. Doing much better now.

If either of you locate that "control" I've lost, please, oh please, give it back :D

Marianne 8) 8) 8) 8) 8)
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #115 on: October 09, 2015, 07:41:47 pm »
Anyone remember that Saturday Night Live skit:  "Simma Down Now"

My son used to say that to me all the time... lol
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #116 on: October 09, 2015, 07:49:28 pm »
Lol Bree!

I'm googling it as we speak! Oh! And the Chronic-what-cles-of-Narnia! :D

 :o Riba-ers must laugh n o w!!!

https://screen.yahoo.com/nadeen-burger-castle-000000292.html

https://screen.yahoo.com/snl-digital-short-lazy-sunday-000000173.html
« Last Edit: October 09, 2015, 08:02:31 pm by byebyeC »
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #117 on: October 09, 2015, 09:55:32 pm »
 Boy , Cheri Oteri used to have Me rolling with that skit. My Granny years ago when we were little was like that, All four & a half foot of her!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #118 on: October 09, 2015, 10:01:27 pm »
I went and re-watched some of them on you tube....

SIMMA DOWN NOW! 8)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #119 on: October 09, 2015, 10:04:45 pm »
 UH-OH, brain is bubbling again!!!!! FREEBREE!!!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #120 on: October 09, 2015, 10:07:01 pm »
Reminds me of Leonard Skinnard's Free Bird!!!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #121 on: October 09, 2015, 10:49:21 pm »
Damn you tube wouldn't let me watch them! I hate missing out!!! Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #122 on: October 12, 2015, 10:04:36 pm »
Cali,,
Betcha could google an Oz friendly version - just google simma down snl


SOOOOOOOOOOOOOOO FUNNY!  ;D ;D ;D ;D ;D ;D
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #123 on: October 12, 2015, 10:10:47 pm »
One thing I won't "simma down!" about is that it's officially 5th week of VP + Riba cremated and will make next years' flowers grow! Bye bye week 5!!! Don't let the door kick you on the way out :D

On to week 5! Rwaaaooooorrrr!!!

<3 <3 <3
Marianne
« Last Edit: October 12, 2015, 10:37:54 pm by byebyeC »
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #124 on: October 12, 2015, 10:22:15 pm »
You're on to week 6, BBC!!!  That means the finishing stretch to the 1/2 done mark.  Woot!  8)

Just finished my first 4 weeks today.  Yay!  With my second bottle already here, I'm just kinda assuming I'm looking at my cure.

But I will soooooo do that third bottle just to be extra, super certain.
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #125 on: October 12, 2015, 10:42:01 pm »
Hey Else!

4 weeks is one of the BIGGIES to reach! Hopefully a vl drawn (?)...

Congratulations on pushing into the closer to halfway territory! So many milestones to celebrate!

For SURE finish that last bottle. Makes all the difference for many. You're gonna beat this thing!

keep up up on your results! :D

<3 Marianne
« Last Edit: October 12, 2015, 10:43:59 pm by byebyeC »
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #126 on: October 12, 2015, 10:52:55 pm »
4wk labs on Wednesday.  How strange is it that I'm disinterested.  To the point that I'd rather not go.  But I will lest I risk some possible insurance non-compliance issue.

It's just that it is what it is.  I know the Harvoni is working.  I have approval for 12wks and that's going to cure me.  I don't need the motivation of falling viral loads.  I know.  I'm weird.
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #127 on: October 12, 2015, 11:06:06 pm »
Quote from: Else on October 12, 2015, 10:52:55 pm
4wk labs on Wednesday.  How strange is it that I'm disinterested.  To the point that I'd rather not go.  But I will lest I risk some possible insurance non-compliance issue.

It's just that it is what it is.  I know the Harvoni is working.  I have approval for 12wks and that's going to cure me.  I don't need the motivation of falling viral loads.  I know.  I'm weird.

I totally get it.  I have felt that way too. Sometimes I think we an get really focused on the milestones, still it will be nice for you to have confirmation.  My doctor is not a rabid tester.  Pre-treatment, 4 weeks in treatment, EOT, and then he wanted to do 24 weeks.  I talked him into a 12 week post for my peace of mind (rather I asked, he said o.k.).  Then again, if it's UND at 4 weeks not necessary for tons of tests unless blood work is off or insurance demands it.   
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #128 on: October 13, 2015, 12:12:59 am »
Big congratulations to Marianne and Else,

I am quite the opposite. I need my bloods to convince me it's working. I don't think I ever got over relapsing last time and it sits in the back of my mind all the time, about how confident I was etc. I almost daren't get to excited. I know that's very glass half empty of me. Sooky baby. Cal :'(
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #129 on: October 13, 2015, 01:52:17 pm »
Hi Else,

Something tells me you enjoy being "weird"... As do many here, just as I do... ;D

Thanks Cali girl <3 

My doc keeps sending me in for them weekly cause my bill's staying up and aphos is rising...  :P

But the big four week test for vl I got a strange "too low to quantify (?)... smh

Ce la vie said the old folks...
« Last Edit: October 13, 2015, 05:41:51 pm by byebyeC »
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #130 on: October 13, 2015, 02:24:59 pm »
Quote from: byebyeC on October 13, 2015, 01:52:17 pm

My doc keeps sending me in for them weekly cause my bill's staying up and aphos is rising...  :P

But the big four week test for vl I got a strange "too low to quantify (?)... smh

Ce la vie said the old folks...

Sounds like VL is headed in the right direction (not there or barely there)... I don't know about the bili and aphos stuff... you are doing it Marianne!!!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #131 on: October 13, 2015, 05:39:30 pm »
Thank you Bless you Bree! <3 <3 <3
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #132 on: October 13, 2015, 05:49:47 pm »
Hi Marianne,
Too low to quantify, means it can't get under the limbo bar! It sooo low they cant count it in a quantative way. It's better than being given a number. Your 4 week V/L will definitely be UND Chickie! Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #133 on: October 13, 2015, 08:48:27 pm »
Your viral load's so low it could shimmy under a snake and the snake wouldn't feel a thing.  ;D

(yeah, you're right.  I do like being weird.  Oddly satisfying.  Beats not liking it and being weird anyway.   8))
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #134 on: October 13, 2015, 08:54:57 pm »
You VL is so low it couldn't even get a dragon costume for Halloween!   :o
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #135 on: October 14, 2015, 05:37:37 am »
Nice one Weird Else and Bree.

Your V/L's lower than a snakes belly in a tyre track 8) Cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline BillT

  • Member
  • Posts: 573
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #136 on: October 16, 2015, 04:29:53 pm »
I start the Viekria tomorrow(Oct 17)Byebye.I wish you all the luck in the world.Please post and keep us up to date on how you're doing.It seems most here are on Harvoni so I'm interested in how people are doing on the Viekria.I'll be posting also as I go along.Good luck.
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #137 on: October 16, 2015, 04:40:16 pm »
Hi BillT and welcome! I did 24 weeks of VPak + ribavirin. Entirely do-able just focus on the goal. Riba was a bit tough, I had to reduce my dose, but I made it to the end. I'm 5 or so weeks past treatment end and feeling good!

There are a few Viekerians here doing treatment and they are all pretty active.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #138 on: October 17, 2015, 06:39:42 pm »
Y'all are HILARIOUS! And had WAY too much FUUUUNNNN!!! without me (and Perci;),

Keep 'em coming! ;D ;D ;D ;D ;D
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #139 on: October 17, 2015, 06:42:33 pm »
Welcome Birt!

Cal and I are definitely with you. I'm just about at the end of week 6 of 12 and Cal is about 2 weeks ahead of me. Both of us are fellow Viekirans so we'll be here to hold you hand anytime :)

Marianne
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #140 on: October 17, 2015, 09:39:59 pm »
Marianne,
We missed you and Percy. Though I think he snuck on a few times when you weren't looking...... Cal :-X
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #141 on: October 18, 2015, 08:04:53 pm »
I've just spent the past half hour tying to figure if I'm moving on to week 5 or 6... Oh I do dearly miss my brain! My husband's enjoying the, albeit temporary, absence of miss smarty pants :D

Sooooo, if my super powerful and intelligent mind is working at all... (big if!!!) It's week 6 "gone with a D!!!" 8) 8) 8) 8) 8)

Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #142 on: October 18, 2015, 08:11:42 pm »
  Which way did he go George? Which way did he go?
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #143 on: October 18, 2015, 11:00:24 pm »
Marianne,
I think you just did week 6 coz I'm into week 9. My  brain goes  awol, always when I need it like in the middle of a conversation, or at the checkout. Damn it. It is clearing, but selectively. Today not so bad. Tomorrow who knows? Cal 8)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline BillT

  • Member
  • Posts: 573
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #144 on: October 19, 2015, 09:54:47 am »
Just keep taking the pills until they refuse to give you any more Cal. :)
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #145 on: October 19, 2015, 06:28:02 pm »
HimBill, sage advice. Cal 8)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #146 on: October 22, 2015, 06:28:13 pm »
The FDA just posted a warning about Viekira Pak and Technivie: http://www.fda.gov/Drugs/DrugSafety/ucm468634.htm
Logged
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #147 on: October 26, 2015, 03:58:17 pm »
Week 6 gone, I've heard tell of people starting to feel way better around this point???
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #148 on: October 26, 2015, 04:12:51 pm »
Quote from: byebyeC on October 26, 2015, 03:58:17 pm
Week 6 gone, I've heard tell of people starting to feel way better around this point???

Congrats on passing the half-way point, byebyec! I know that was a significant milestone for me. :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #149 on: October 26, 2015, 04:47:06 pm »
Quote from: byebyeC on October 26, 2015, 03:58:17 pm
Week 6 gone, I've heard tell of people starting to feel way better around this point???

All uphill from here byebyeC... You've made it half way... you can do it!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #150 on: October 26, 2015, 05:22:47 pm »
Thanks for the reminder, bbc.  Six weeks tomorrow.  And a full moon!  Howlin' weather!
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #151 on: October 26, 2015, 05:58:07 pm »
Quote from: Bree on October 26, 2015, 04:47:06 pm
All uphill from here byebyeC... You've made it half way... you can do it!

And by uphill I mean you'll be on the mountaintop looking out at the beautiful view called UND and SVR!
« Last Edit: October 27, 2015, 10:43:25 am by Bree »
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #152 on: October 26, 2015, 05:58:52 pm »
Quote from: Else on October 26, 2015, 05:22:47 pm
Thanks for the reminder, bbc.  Six weeks tomorrow.  And a full moon!  Howlin' weather!

And you too Else!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #153 on: October 26, 2015, 07:29:13 pm »
Marianne,
You're halfway! You are doing it. I know it's hard but credit yourself fir what you've done my friend. It ain't been easy. You are a Warrior Princess! Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #154 on: October 27, 2015, 05:09:27 am »
It's all downhill from here byebyec. And I mean that in a most positive sense!
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #155 on: October 28, 2015, 04:56:29 pm »
Marianne,
How are you doing? I'm into week 11 now! Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #156 on: October 28, 2015, 06:59:50 pm »
Quote from: Cal on October 28, 2015, 04:56:29 pm
Marianne,
How are you doing? I'm into week 11 now! Cal :)

Yeah, what up Marianne?  Have you gone off on a gator hunt with Tommy?  ;)
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #157 on: October 29, 2015, 12:02:45 pm »
 'dem gators musta done et her all up dontcha know. Ifn' I toll her twice I toll her once!!! Stay in the pirogue cher.  'dem criters is hungry Ima tollon ya!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #158 on: October 29, 2015, 12:36:11 pm »
Hi y'all,
Thank you for the good wishes :) Accumulation of riba took over and sent me to the actual crazy train... Docs finally got things worked out and i'm turning back into a functioning-ish human being.

Congrats Else on halfway too :)

Very happy for you Cali girl to be almost done!

Dreamin' the dream of this all in the rear view!

<3 Marianne
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #159 on: October 29, 2015, 01:09:01 pm »
 By God & by golly, I guess the gators couldn't handle the Riba & spit her back out! :o :o :o  Glad You are getting back on an even keel with the Meds there Marianne. I was beginning to wonder if You fell off the face of the earth. Good to see You back, get some rest & then catch up on all the unds , SVR12s , & SVR24s that hit the forums. Big ol' TEXAS SIZE SQUEEZE & A BEAR HUG from Your fellow Loony Toon down here in Lone Star Toon Town. ;) ;D :D :) 8) 8) 8) 8)
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #160 on: October 29, 2015, 02:31:59 pm »
Thank you Tommy :D

This is one crazy carnival ride we're on!

I'll be reading the good news, sayin' my prayers for all of us. 

Really REALLY appreciate your support :)

Marianne
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #161 on: October 29, 2015, 03:36:13 pm »
 Marianne , so sorry for Your distress. I can tell by the tone of Your key strokes that You must be feeling pretty bad! :'( :( I will graciously leave You to Your own devices until You get that free bubble up feeling back!! I will save the verbal sparring for a later time. Hope all the Good News at least cheers You up a little bit. Another indicator of how bad You feel is the lack of response to the gator comments!!!! Get To feeling better soon :P, We all miss Your ALASKAMO humor from the little IGMO house with the BEAR EAR antenna on top.
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #162 on: October 29, 2015, 04:28:16 pm »
Marianne, we miss you but the most important is to do what you need to do during the treatment.  I had to step back from the forum for a few weeks during treatment for several reasons.  Things were getting in my head... things I didn't even need to worry about.

The main thing is to take care of yourself and complete the treatment and join in when it's right for you.  Love, Bree
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #163 on: October 29, 2015, 05:15:43 pm »
Thank you Bree,

I had really mild occasional depression recovering from an emergency gallstone attack and removal and recovery going into this. I mentioned it to my Dr. I know now that a lot of docs are prescribing antidepressants for any patients with any history of depression. Don't think my doc was up on this info since these meds are so new. So, when I turned from an generally gregarious happy person, to an unraveling, continually bawling/raging maniac, it took an ER visit and a follow up with my GP to notice and a few med changes to get me to feeling half human and back to somewhat of myself again.

Super hate being downersville... really hoping it doesn't take me till EOT to go back to being my generally jovial self...

Sorry if I'm oversharing (I have a proclivity), just thought an explanation may allay fears... No thoughts of harming myself. Could be God's way of giving me great compassion for those who struggle with anxiety and depression all of the time...

Love y'all,
Marianne
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #164 on: October 29, 2015, 05:58:52 pm »
Hi Marianne,  Thank you...not over-sharing, just being honest and sharing.  We have to go through so much.  Kim shared about how the liver is the seat of emotions (Chinese medicine philosophy), so that in and of itself has an effect.

I went to the ER on my last treatment... I know the impact this has.

This time around, while everything was going really good overall, I had a huge anxiety attack at mid- treatment and became convinced that I needed to add ribavirin to my Harvoni treatment to hedge my bets as I saw so many cured with Harvoni and adding riba who had failed earlier treatments (like me).  Never mind that I was a disaster on riba with interferon before...  at first my doctor considered it (even though I down played my effects, he didn't even see me as a candidate for Veikera with riba).  Once he saw the results of my 4 week labs as UND, he changed his mind and said no to adding the riba.  He just didn't think it was a good idea and didn't want to do it.  I was relieved and scared at the same time... 

I became convinced that perhaps I needed it despite all evidence to the contrary... I had to take a forum break and work toward getting my belief system back in better shape.  I was really helped by friends, especially one who is a cancer survivor.  She talked me into believing with every part of my body that I was being cured  ... even though I was "acting as if" in a way, it really helped me to move through that.  After I got through that, it was like a turning point for me.  It's like I claimed my life back like at the start of treatment.  I started that way, in total belief, took a dip mid treatment, then ended strong.  That's exactly why I started the "Nearing EOT - Ending Strong and Staying Positive" thread.

I know it's a different scenario, I just wanted to share how much we can get effected by all of this process not to mention how the drugs can effect us emotionally and physically plus we want to be cured once and for all.  For me, it became really important to monitor "what goes in" mentally and emotionally.

Hang in there and do what you need to do to nurture yourself and get through this.    This treatment does have an endpoint and the whole thing will lighten up a bit.

And, then we will all be singing and doing the virtual hula! 8)  Love, Bree

   
« Last Edit: October 29, 2015, 10:38:12 pm by Bree »
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #165 on: October 29, 2015, 05:59:45 pm »
I hope I didn't just overshare too much!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline BillT

  • Member
  • Posts: 573
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #166 on: October 29, 2015, 06:23:05 pm »
Welcome back and glad you're hanging in there Marianne.Do what you need to for however long you need to.The one thing we all have to keep telling ourselves is this isn't going to be forever and the cure is worth it.We'll be here when you get back from wherever the riba sends you. ;)
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #167 on: October 29, 2015, 06:46:51 pm »
Marianne,
My poor friend. As a fellow RIBA struggler I am with you. I know his hard this has been fir you, but you will be rewarded. The good thing about this, us that it's like childbirth, you forget the horrible bits!
You do what's right fir you and know that your forum family are always as close as a log in!

You are such a dear and such a special and hilarious woman, you may not think that but I can guarantee you will be you again soon. Have they reduced your ribas? Or are they making you battle on?

You know I was in ER too and in Hospital twice, so no over sharing here Chickie. It's all the drugs and you'll recover well. It will pass.

I agree with Bree, sometimes you need a break from the forum, too much information and emotional vulnerability don't mix. Do what you have too to get through. Whatever gets you through the night. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #168 on: October 29, 2015, 10:35:36 pm »
 Marianne,  Just catching up on reading posts, Just read Your latest one. I had not realized how bad thing had gotten for You. :( :( Sounds like You really need some serious  R & R and Me time right now. Sure wish You could take a break from the Meds. for a little while to get it all back together! But We all know that ain't happening! Wish there was some way I could help out. About all I can do is send You some big old Texas Well Wishes and all the good thoughts & vibes I can muster. You have to think of Yourself first! That means taking care of Yourself above all, other wise You are not able to help Yourself and those around You! Do what You have to do to make things better for Yourself. It is not being selfish , It's self preservation so You can make it for the long haul.

         Take care & remember!!!! We are just a key stroke away!!!!
                       The Humble Jester.

  P.S. Strange as it seems, My G.I. Doc just scheduled Me for a HIDA scan of My gall bladder Yesterday. He is worried about gallstones that showed up pre-Tx. It will be happening next Friday.

 Get better soon, You are sorely missed by Me as well as everyone else. You are part of the jigsaw puzzle that is the Hep C forum. Without You we are not complete :'( :'( :'( :'( :( :( :( ;)

Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #169 on: October 29, 2015, 11:58:02 pm »
As my Tante used to say, "hard times are like a jeweler's tumbler.  They either break you up or polish you to a high shine." 

You shine, girl.  I can tell that.  Things are just ill for a bit while that tumbler is still turning.
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #170 on: October 30, 2015, 08:26:42 pm »
Thank you all for your well wishes, advice and support. I am def back on the upswing:) just may take a bit cause of how down low it got.

Bless each and every one of you. You've written on "the goodness of humanity" part of my heart and mind. You're the BEST!!!

Much love,
Marianne
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #171 on: October 30, 2015, 10:21:20 pm »
 Marianne, Glad to see You getting back up & dusting off. Virtual shoulders to lean on can be a great help when needed, You got a bunch of them out here. Get back to Your usual abnormal self soon. Thoughts and prayers abound little lady. Take care of Yourself. See You Soon!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #172 on: October 30, 2015, 10:39:27 pm »
Marianne,
I don't think you're crediting yourself enough for what you're doing. This aint easy and you're giving It everything you've got. Go Marianne our beautiful friend. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #173 on: October 31, 2015, 12:09:19 pm »
Else,
I'd say you had quite a gem of a Tante :)

Tommy,
My abnormal self is working it's way back to the surface and will spar in Spanglish, Frenchlish, Deutchlish etc. soon :)

Cal,
You are a literal Angel, I'd check my shoulders for wings if I were you <3

Marianne
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #174 on: November 01, 2015, 12:56:17 am »
Wings? Oh no another place to get riba rash! 8) Cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: 1st week of Viekira Pak + Riba done and dusted!
« Reply #175 on: November 01, 2015, 02:35:11 pm »
Oh Cal :D Never ever riba rash on your wings! I forbid it! <3 <3 <3
Marianne
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected
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