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Author Topic: and BTW - lol - vikierians  (Read 8834 times)

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Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
and BTW - lol - vikierians
« on: September 21, 2015, 08:21:12 pm »
Did you ever think that perhaps the cost of v-pak might have been a little cheaper without all the elaborate packaging? 

"push to close"... really? with a little sticky button.

It must have cost 1000s just to design the box and then the little boxes.

Unreal.... I will admit though...it is pretty much idiot proof.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: and BTW - lol - vikierians
« Reply #1 on: September 22, 2015, 04:44:00 pm »
Hi DM,
I've seen the packaging online. I have 3 bottles.  Plain packaging for us Ozzies. Cal :-\
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: and BTW - lol - vikierians
« Reply #2 on: September 22, 2015, 05:38:18 pm »
Quote from: Cal on September 22, 2015, 04:44:00 pm
Hi DM,
I've seen the packaging online. I have 3 bottles.  Plain packaging for us Ozzies. Cal :-\

it really is overkill on the packaging.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: and BTW - lol - vikierians
« Reply #3 on: September 22, 2015, 06:21:25 pm »
Yeah, as compassionate access peeps, we are handed three plain white bottles per month (ribavirin, dasabuvir, and the big pink combo pill) and we have to works it all our ourselves. Hence my reliance on my Little Old Lady (Tm) pill box.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: and BTW - lol - vikierians
« Reply #4 on: September 22, 2015, 08:15:20 pm »
I would rather have the bottles.

Tired of all these stupid boxes everywhere.

Guess I'm just in a botchy mood.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: and BTW - lol - vikierians
« Reply #5 on: September 22, 2015, 08:22:22 pm »
My husband has a shelf full of Viekira bottles in his shed for little stuff like washers, tacks, pins etc. very useful.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: and BTW - lol - vikierians
« Reply #6 on: September 22, 2015, 08:35:20 pm »
Quote from: Philadelphia on September 22, 2015, 08:22:22 pm
My husband has a shelf full of Viekira bottles in his shed for little stuff like washers, tacks, pins etc. very useful.

sounds like me.... I save everything..nuts , bolts, containers,...everything..and it frequently pays off...

Now all I have is a bunch of paper boxes...my plan was originally to have a ceremonial box bonfire at eot...but we are under a burn ban and will continue to be if we don't get rain soon. 

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: and BTW - lol - vikierians
« Reply #7 on: September 22, 2015, 10:43:15 pm »
Hi DM,
I always thought the cardboard packaging would be easier to control. It's completely down to us to work out our does everyday. I was using a dose-it box but I was told the drugs needed to be airtight. So I keep them In the bottles. I think a funeral pyre is a fantastic idea! ;D Cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: and BTW - lol - vikierians
« Reply #8 on: September 22, 2015, 10:44:52 pm »
Phily,
I don't know how you can look at them. You obviously have a different relationship with them than I do.  :P Cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline sapphire101

  • Member
  • Posts: 238
  • "Stop worrying and start living"
Re: and BTW - lol - vikierians
« Reply #9 on: September 23, 2015, 11:37:01 am »
I found the extreme packaging comforting....I even liked the colors!

After treatment I stacked them all up along with the giant ribavirin bottles and felt like I had climbed a mountain and had the boxes to prove it.
The funeral/bonfire idea occurred to me too, but ultimately I just removed my identifiers, broke them down and sent them to the garbage.

Logged
Sapphire101
Genotype 1a Fibrosis level 1
Viekira Pak with ribavirin 12 weeks
Pre treatment  VL  1.7 million, AST 45 ALT 65
EOT VL not detected, AST 21 ALT 21
12 week SVR not detected,24 week SVR not detected.
Cured! Class of 2015

Offline byebyeC

  • Member
  • Posts: 286
Re: and BTW - lol - vikierians
« Reply #10 on: September 23, 2015, 12:08:32 pm »
I'm with you DM!!!

I read Philly's blog for a couple of weeks before starting. I take em out of the crazy packaging and put them in my own awesome "old lady pill box" just like she did. Have the app on my phone that tells the old lady to take her pills too! Love it. And...

I actually have had the ceremonial weekly burn the crazy packaging funeral pyre for the boxes! Woot!  8)

For Sapphire and anyone else who loves it, you're WINNING! ;D

Me thinks Oz won with just a normal pill bottle though. Maybe the trials showed people having trouble figuring out what pills to take?... It is a lot, specially with the ribas!

Thank you to Philly for suggesting taking the ribas on a different schedule from the VP! It has SO helped with sleep!

<3 bye
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: and BTW - lol - vikierians
« Reply #11 on: September 23, 2015, 05:37:23 pm »
I don't think I'd mind the other packaging. I think it is more foolproof when working out whether you took a dose or not etc. with the bottles I leave them in there, even though I have a dose it box, because someone told me that it hard to be stored in an airtight container, to do with the viability if the pill? Dunno. Did use dose it box for first week. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: and BTW - lol - vikierians
« Reply #12 on: September 23, 2015, 05:51:19 pm »
My clinical nurse consultant (NP) gave me a pill box and said it was useful so I took her at her world. I would NOT have kept track otherwise.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: and BTW - lol - vikierians
« Reply #13 on: September 23, 2015, 08:31:40 pm »
Hi Phily,
Yeah my nurse gave me the box too. I guess I am just a bit paranoid. Obviously it doesn't matter, look at you! Cal 8) 8)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.
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