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Author Topic: Extreme Fatigue/Depression after EOT  (Read 11950 times)

0 Members and 4 Guests are viewing this topic.

Offline JackN

  • Member
  • Posts: 52
Extreme Fatigue/Depression after EOT
« on: March 28, 2016, 05:41:47 pm »
Hello Fellow Warriors

I went for my 4 week EOT Bloodwork, and hoping to still be nondetected!

I was one that experienced side effects during treatment (mainly extreme fatigue, headaches and insomnia) but now after end of treatment am still very much fatigued which is quite concerning.  Follow up with primary care physician today hopefully will shed light to any health issues by the bloodwork drawn.

I also have mild cryoglobulemnia (before treatment).

I have read of others with health concerns after finishing treatment, while understanding maybe it will take time to heal, and I just need to let my body recover.

The extreme fatigue is almost debilitating, depression as the insomnia still lingers.  I have a viral upper respiratory that is going into the 9th day that feels like pneumonia but my chest X-ray was negative today. I feel like the depression is due to my mind and body are not on the same page. Anyone else experiencing these after effects?

Please someone, tell me this will get better.  While I find comfort in knowing the EOT was NONDETECTED, I really wish my body felt as good as my mind wants it to.
Logged
1A
Likely infected 1970's
VL 575,000
Liver Functions normal (ALT/AST)
F0 Fibroscan
Started Harvoni 12-5-15
4week labs 63 VL
6week labs 21 VL
2-17-16 NONDETECTED :) prior to 12 week EOT
3-28-16 EOT 4 week testing = nondetected
5-11-16 EOT 10 week testing = nondetected

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Extreme Fatigue/Depression after EOT
« Reply #1 on: March 28, 2016, 09:31:24 pm »
Jack, could your upper respiratory infection be bacterial bronchitis? I ask because the summer before last, I developed bacterial bronchitis beginning just days before spouse developed pneumonia. There was a day when we were both so totally wiped out that if a neighbor hadn't brought over some homemade soup, I don't know what we would have done for sustenance.

You took longer to reach undetected than many people do, so your body has had a tougher fight. Even though I was undetected on the 28th-day labs, after the end of treatment I did experience periods of fatigue (which I hadn't experienced during treatment). The sum total of many postings of life after treatment is that how long it takes to feel normal is highly individual. Let's hope your PCP will be able to prescribe effective treatment for the upper respiratory infection, because getting rid of that will be a huge help both in feeling less fatigued and in figuring out whether something unusual is going on, or if your immune system just must adjust to life without HCV.

Gnatty
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline JackN

  • Member
  • Posts: 52
Re: Extreme Fatigue/Depression after EOT
« Reply #2 on: March 29, 2016, 04:09:52 am »
Thanks Gnatty for the response.

Dr gave me a z-pak so I'm wishful this will knock out the upper respiratory. Feels a lot like bronchitis w a sinus infection coupled.
Logged
1A
Likely infected 1970's
VL 575,000
Liver Functions normal (ALT/AST)
F0 Fibroscan
Started Harvoni 12-5-15
4week labs 63 VL
6week labs 21 VL
2-17-16 NONDETECTED :) prior to 12 week EOT
3-28-16 EOT 4 week testing = nondetected
5-11-16 EOT 10 week testing = nondetected

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Extreme Fatigue/Depression after EOT
« Reply #3 on: April 09, 2016, 03:13:01 pm »
[quote author=JackN link=topic=4041.msg40510#msg40510 date=1459201307


The extreme fatigue is almost debilitating, depression as the insomnia still lingers.  I have a viral upper respiratory that is going into the 9th day that feels like pneumonia but my chest X-ray was negative today. I feel like the depression is due to my mind and body are not on the same page. Anyone else experiencing these after effects?

Please someone, tell me this will get better.  While I find comfort in knowing the EOT was NONDETECTED, I really wish my body felt as good as my mind wants it to.

[/quote]

Hey Jack,
I went through and am going through the same thing.

Had bad insomnia, a cold for a month and half, as well as depression.

I am slowly improving... in fact these past two days I have started to feel like my old self!   Apparently it takes awhile to get back to normal. 

Hang in there!
dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline jakas

  • Member
  • Posts: 265
Re: Extreme Fatigue/Depression after EOT
« Reply #4 on: April 18, 2016, 05:10:07 am »
yes it does take a while to get back, came back yesterday from holidays and was surprised I climbed 2 floors with more than 2 bags over 30 kgs but i still have that odd flank pain and some bloating etc. Hope to get rid of it if I achieve SVR 12 and 24
Logged
M/57 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and  SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 05/17
Fibro 17.03.2020 kpa 6.3

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Extreme Fatigue/Depression after EOT
« Reply #5 on: April 18, 2016, 07:07:14 am »
Good to see you are feeling better Jakas!
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline JackN

  • Member
  • Posts: 52
Re: Extreme Fatigue/Depression after EOT
« Reply #6 on: April 18, 2016, 10:52:19 pm »
Yes it's taking us some time to feel better. Second round of zpak for upper respiratory, still fatigue, and all the other autoimmune problems w low grade fevers.  May even have low grade lymphoma so now seeing hematologist. One day we will feel better.  I have read there is a connection to Hcv and lymphomas. The hcv did a number on our bodies plus I have cryoglobulemnia associated w all this.  Freezing in 80 degree weather (socks,cap and snuggled in lots blankets)
« Last Edit: April 18, 2016, 10:56:04 pm by JackN »
Logged
1A
Likely infected 1970's
VL 575,000
Liver Functions normal (ALT/AST)
F0 Fibroscan
Started Harvoni 12-5-15
4week labs 63 VL
6week labs 21 VL
2-17-16 NONDETECTED :) prior to 12 week EOT
3-28-16 EOT 4 week testing = nondetected
5-11-16 EOT 10 week testing = nondetected

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Extreme Fatigue/Depression after EOT
« Reply #7 on: April 28, 2016, 10:43:20 pm »
Quote from: JackN on March 28, 2016, 05:41:47 pm
Hello Fellow Warriors

I went for my 4 week EOT Bloodwork, and hoping to still be nondetected!

I was one that experienced side effects during treatment (mainly extreme fatigue, headaches and insomnia) but now after end of treatment am still very much fatigued which is quite concerning.  Follow up with primary care physician today hopefully will shed light to any health issues by the bloodwork drawn.

I also have mild cryoglobulemnia (before treatment).

I have read of others with health concerns after finishing treatment, while understanding maybe it will take time to heal, and I just need to let my body recover.

The extreme fatigue is almost debilitating, depression as the insomnia still lingers.  I have a viral upper respiratory that is going into the 9th day that feels like pneumonia but my chest X-ray was negative today. I feel like the depression is due to my mind and body are not on the same page. Anyone else experiencing these after effects?

Please someone, tell me this will get better.  While I find comfort in knowing the EOT was NONDETECTED, I really wish my body felt as good as my mind wants it to.

Hey Jack,
Check my post on Vitamin D.
you could be low.
dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Extreme Fatigue/Depression after EOT
« Reply #8 on: April 28, 2016, 11:28:02 pm »
Quote from: drummerman on April 28, 2016, 10:43:20 pm
Hey Jack,
Check my post on Vitamin D.
you could be low.
dm

Where did you post it DM? Do you have a link for it? I'd like to read it.

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Extreme Fatigue/Depression after EOT
« Reply #9 on: April 29, 2016, 07:54:27 am »
Quote from: KimInTheForest on April 28, 2016, 11:28:02 pm
Where did you post it DM? Do you have a link for it? I'd like to read it.

kim

Post HCV treatment.  About 3 posts down.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline JackN

  • Member
  • Posts: 52
Re: Extreme Fatigue/Depression after EOT
« Reply #10 on: April 29, 2016, 01:04:58 pm »
Hi

My vitamin d has been borderline for many years.  I take 4000 vitamin d3 per day.  When I found out 10 years ago, it was 9.   It runs 30 or 27 now.  Constant struggle to keep it up.  When it was 9, I was placed on 50000 weekly for 8 weeks. It did help, but this is a different fatigue w other health issues they just can't put their finger on, yet.
Logged
1A
Likely infected 1970's
VL 575,000
Liver Functions normal (ALT/AST)
F0 Fibroscan
Started Harvoni 12-5-15
4week labs 63 VL
6week labs 21 VL
2-17-16 NONDETECTED :) prior to 12 week EOT
3-28-16 EOT 4 week testing = nondetected
5-11-16 EOT 10 week testing = nondetected

Offline jakas

  • Member
  • Posts: 265
Re: Extreme Fatigue/Depression after EOT
« Reply #11 on: April 29, 2016, 04:46:17 pm »
gonna give this Vitamin D a shot
Logged
M/57 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and  SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 05/17
Fibro 17.03.2020 kpa 6.3

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Extreme Fatigue/Depression after EOT
« Reply #12 on: April 29, 2016, 07:53:34 pm »
Quote from: jakas on April 29, 2016, 04:46:17 pm
gonna give this Vitamin D a shot
Be sure to read up on it.  Its possible to get too much D, but very difficult unless you are on rx sups.
dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17
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