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Author Topic: Allergy to Harvoni?  (Read 7736 times)

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Offline Maxima

  • Member
  • Posts: 19
Allergy to Harvoni?
« on: April 17, 2016, 10:03:30 am »
Dear all,
after my quick relapse after 8 weeks Harvoni Genotype 1b, with heavy side effects I eagerly wonder why.
Doctors seem to know very little.
Week 3 and 7 during therapy undetected.
Resistance will be tested.
Apart from this: couldn't it be a simple allergy?
First 3 weeks everything was normal. Then heavy nausea and diarrhea started, becoming worse and nearly unbearable from day to day. Apart from this, not a single pill was vomited. The other end I can't say if they passed too quickly. Gilead said that's not possible, harvoni is resorbed in the upper  intestinal tract.
Has anyone experienced the same or heard of?

It's important for me to know. Want to be best prepared for my appointment in hospital this week.

According to my experience nearly everything has to be found out by patient himself.

Peace and health
Maxi
« Last Edit: April 17, 2016, 10:05:51 am by Maxima »

Offline lporterrn

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  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Allergy to Harvoni?
« Reply #1 on: April 17, 2016, 01:23:38 pm »
Hi Maxi,
This doesn't sound like an allergy, but does sound like an adverse reaction (assuming it isn't a drug-to-drug interaction, or drug-to-supplement interaction). There is mixed research on the 8 week use of Harvoni. The HCV Guidelines have removed it as a recommended length of treatment: http://www.hcvguidelines.org/full-report/initial-treatment-hcv-infection However, other data support it. And then if you have a resistant strain, the length likely wouldn't have mattered - you'll just need a different regimen.
Keep in touch with what you find out.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Maxima

  • Member
  • Posts: 19
Re: Allergy to Harvoni?
« Reply #2 on: April 18, 2016, 05:13:31 am »
Thank you so much Lucinda.
My doctor as well as health insurance based their decision for the 8 weeks on ion3.
I believed.
The link is for initial treatment. Unfortunately, now treatment experienced what never should happen according to my doctor, whom I trusted 16 years.
I would be very grateful if you could send me information/link concerning guidelines for treatment experienced people.
No alcohol, no drugs, no forbidden supplements. All meds I take were carefully discussed with my doctor. Blood pressure remedies and beta blockers, Zolpidem.
I'll post what I found out why I relapsed. It's so important to share experience to prevent other from wrong decisions regarding this life threatening disease.

Best, Maxi

Offline Maxima

  • Member
  • Posts: 19
Re: Allergy to Harvoni?
« Reply #3 on: April 18, 2016, 05:49:06 am »
I found it Lucinda :)
Thanks a lot!
Maxi

Offline Maxima

  • Member
  • Posts: 19
Re: Allergy to Harvoni?
« Reply #4 on: April 19, 2016, 01:26:37 pm »
Tomorrow I'll see specialist in hospital.
I'll keep you posted.

Maxi

 


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