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Author Topic: New Worries!! Any Experienced advice???  (Read 10700 times)

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Offline StillChoppin

  • Member
  • Posts: 43
New Worries!! Any Experienced advice???
« on: November 28, 2016, 04:38:44 pm »
Well i  was hoping that my worries would subside when i started Harvoni?
Good news is today is day 27 & the Dr. Says it "undetectable" but only 1/3 there..
Ast & Alt are both at 28.
But he ordered an Ultrasound of my abdomen
Which he says is routine & just for screening purposes..
They do ultrasounds to look for Cancer correct??
Has any body had experience with Ultrasounds?
Are they really routine as he says..
My AFP tumor marker was fine & well within range.
Am I just being paranoid.?
I was so happy to start the Harvoni & now im filled with worry again..

Offline Av8tor737

  • Member
  • Posts: 9
  • Fig the good fight and hang in there!
Re: New Worries!! Any Experienced advice???
« Reply #1 on: November 28, 2016, 06:03:26 pm »
Relax.  Ultrasounds just take pictures for overall general organ health.  Any good physician would discuss a concern as serious as your worry.  Most likely they want to look at your liver and kidneys for scar tissue and fatty content.  Mine go wonky now and then (before treatment) and my GI takes a look to be safe. If you have other conditions (diabetes etc.) complicating results, it may be that they are skewing your results as well. And if it makes you feel better, I'm right there with you in the worry department.  Make a list of your concerns and educate yourself.  I sleep better at night when I do that.

Good luck and keep your chin up
Contracted 1970's?
Diagnosed 1/23/2013
Genotype 3
Start Epclusa 10.20.2015
AST 349 ALT 240
VL 468347
HCV Log 5.68

11.21.2015/Week 4
Liver and Hemo tests all normal
Labs : AST 19/ALT 19
HCV VL 12
HCV LOG 1.05
Hep C UNDETECTED!

12/21/2016/Week 8 blood work

Hemo and Liver test numbers normal

ALT 19
AST 17
HCV RNA   <=12
HCV LOG 10   <1.08

HCV Undetected

1/15/2017

Hemo and liver tests better than the last. All normal.
ALT 20
AST 19
HCV RNA   <=12
HCV LOG 10   <1.08

HCV Undetected

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: New Worries!! Any Experienced advice???
« Reply #2 on: November 28, 2016, 07:01:09 pm »
 Yes they are routine I've been having them every year since 1990
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline elias

  • Member
  • Posts: 285
Re: New Worries!! Any Experienced advice???
« Reply #3 on: November 28, 2016, 08:22:24 pm »
It is routine. Maybe he just forgot to run it before starting treatment.

I had one done the same week they did pre-treatment viral load and genotyping. All ordered at same time.

No, its not specifically for cancer. I was hoping it was that fibro-scan  bywhich fibrosis score is determined. But it was just a plain ole ultrasound. It did find some harmless cysts on my liver, which GI said was common n nothing to fret over..

I've become much more phobic about tests too. Ever since that shocking news of learning I had Hep C. Wish I could get better handle on it
Contracted HCV ~age 12
Diagnosed: September 2016 GT2b
F3 by Fibrosure: 0.66
Necroinflammat activity: A3 0.76
================
VL Sep. 12, 2016: 1.44 million/ Log: 6.157
AST:71/ ALT:114   Sept. 1, 2016 Before treatment
==================
4 week after beginning  Epclusa:
Viral Load: UNDETECTED
AST 17/ALT 11
===============
Began Epclusa:  October 22, 2016
End of Treatment [EOT]: January 13. 2017
====================
EOT+4 Weeks: UNDETECTED
====================
SVR 12 April14-HCV Not Detected

Offline Mugwump

  • Member
  • Posts: 778
  • My number of posts means nothing, piscor ergo sum!
Re: New Worries!! Any Experienced advice???
« Reply #4 on: November 28, 2016, 08:48:58 pm »
A full abdominal ultrasound is standard diagnostic practice for monitoring liver disease including but certainly not limited to HCV.

What they are looking for other than tumors is abnormalities in sizes of organs and the standing pressure of the critical vascular system especially the portal vein to the liver.

My wife works in medical imaging and this is why I know the ropes about MI practices.

Don't at all sweat or worry about having this test done routinely post treatment or anytime it is one that should be done on anyone for very many reasons. NASH, HCC, abnormal blood counts and the list goes on.

Cheers
Eric
Caution shameless self promotion below :-)
https://www.hepmag.com/article/eric-reesor-27742-782589663
DING DONG MY DRAGON (HCV) IS FINALLY DEAD!

Offline andrew90

  • Member
  • Posts: 71
Re: New Worries!! Any Experienced advice???
« Reply #5 on: November 28, 2016, 09:13:25 pm »
Yeah don't worry buddy I had a full adbominal ultrasound before treatment guess your dog just started it after treatment
5/1/17 UNDETECTED!

EOT Blood Testing 1/25/17
UNDETECTED!

Five week blood testing 12/8/16
DETECTED
Viral Load: 35(IU/mL)
AST: 34

Started Epclusa 10/2/16

Genotype 3a

9/19/16
Fibrosis: F2/3
ALT: 459
AST: 189
Viral Load: 6415894 (iU)/mL

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: New Worries!! Any Experienced advice???
« Reply #6 on: November 29, 2016, 05:04:09 am »
I have two a year. Routine. Don't go borrowing trouble until you have to.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Redhead

  • Member
  • Posts: 8
Re: New Worries!! Any Experienced advice???
« Reply #7 on: November 29, 2016, 09:45:14 am »
I had an ultrasound also before I started treatment. They found a 1.3 cm lesion on my liver and scheduled an mri to follow up. I was terrified! When they did the mri, the lesion was gone. YAY!

Offline StillChoppin

  • Member
  • Posts: 43
Re: New Worries!! Any Experienced advice???
« Reply #8 on: November 29, 2016, 09:52:05 am »
Pfffffew!!!
Ok thanks everyone..

Offline StillChoppin

  • Member
  • Posts: 43
Re: New Worries!! Any Experienced advice???
« Reply #9 on: November 29, 2016, 09:54:28 am »
Hi Redhead..

Just out of curiosity how did the lesion just disappear?
Is that normal or is it just because he ultrasound isn't that clear? Just wondering but glad that was the outcome for you.

Offline Redhead

  • Member
  • Posts: 8
Re: New Worries!! Any Experienced advice???
« Reply #10 on: November 29, 2016, 09:57:29 am »
I don't know. The Dr.'s argued about it for two weeks. The ultrasound showed it clearly, I seen it with my own eyes. The mri didn't show it. I lost 15 pounds after the ultrasound so maybe it was fat or something that disappeared.

Offline Mw2324

  • Member
  • Posts: 138
Re: New Worries!! Any Experienced advice???
« Reply #11 on: November 29, 2016, 01:56:36 pm »
Yes to piggy back on everyone else, it's normal for your doctor to order an ultrasound. I also had one.
30 yr. old female
Infected in 2006
Genotype 2b
Pretreatment:
F0
Alt 28
Ast 30
Viral load 49,000
Started Epclusa on 9/9/16 -12 week treatment
4 week viral load undetected... ALT 19 AST 19
12 week eot viral load undetected...ALT16 AST 11

Offline StillChoppin

  • Member
  • Posts: 43
Re: New Worries!! Any Experienced advice???
« Reply #12 on: November 30, 2016, 07:00:00 am »
Thanks guys

Offline rk

  • Member
  • Posts: 99
Re: New Worries!! Any Experienced advice???
« Reply #13 on: December 03, 2016, 12:14:28 pm »
Add me to the list. I had one a week ago and I am 8 weeks in. All must be ok my doc has reviewed the report. rk
9/14/2016 pre-treatment
GT 2
Viral load 2940
Platelets 142
AST        16
ALT        6
Fibrosis stage  F3
LSM        10.1 kPa
Started Epclusa 10/7/16
EOT + 12 weeks HCV undetected

Offline elias

  • Member
  • Posts: 285
Re: New Worries!! Any Experienced advice???
« Reply #14 on: December 03, 2016, 07:01:43 pm »
probably good to have baseline scan like this so it can be compared to later scans after SVR n note changes
Contracted HCV ~age 12
Diagnosed: September 2016 GT2b
F3 by Fibrosure: 0.66
Necroinflammat activity: A3 0.76
================
VL Sep. 12, 2016: 1.44 million/ Log: 6.157
AST:71/ ALT:114   Sept. 1, 2016 Before treatment
==================
4 week after beginning  Epclusa:
Viral Load: UNDETECTED
AST 17/ALT 11
===============
Began Epclusa:  October 22, 2016
End of Treatment [EOT]: January 13. 2017
====================
EOT+4 Weeks: UNDETECTED
====================
SVR 12 April14-HCV Not Detected

Offline StillChoppin

  • Member
  • Posts: 43
Re: New Worries!! Any Experienced advice???
« Reply #15 on: December 07, 2016, 08:22:49 am »
Thanks all..
Had the scan & the tech said everthing looked fine!
Actually said everything looks good?
Yet my fibroscan cane back F3-F4?
Dr. Ordered another fibroscan.
I did not fast for the first he said it didnt matter but after much research it MAKES A big difference.
Either way im on week 6
Its undetectable, ive gotta so much natural color back in my face & body, feel super, much energy, & almost like the fog has lifted..
I dont think i realized how much of a toll it was taking on my body because it happens so slowly over time.
Actually my appetite is crazy.
I lost almost 30lbs & thought it was just due to 4am - 4pm work days & not eating much?
Now i cant stop eating..?
Dont want to get fat though lol..
Thats not healthy either!
This really is amazing

Offline rk

  • Member
  • Posts: 99
Re: New Worries!! Any Experienced advice???
« Reply #16 on: December 07, 2016, 11:34:16 am »
StillChoppin,

I am on Epclusa but like you I seem to eat more. I gained weight and am trying to keep it under control. I never considered a drug might increase appetite. I am 3 weeks until EOT. I am very curious what my new normal will be. I hope less less food craving will be a new normal. rk
9/14/2016 pre-treatment
GT 2
Viral load 2940
Platelets 142
AST        16
ALT        6
Fibrosis stage  F3
LSM        10.1 kPa
Started Epclusa 10/7/16
EOT + 12 weeks HCV undetected

Offline Mw2324

  • Member
  • Posts: 138
Re: New Worries!! Any Experienced advice???
« Reply #17 on: December 07, 2016, 11:54:19 am »
Hey guys,
   To chime in, I've also gained a few lbs. Nothing too crazy, less than 8 lbs. but I can relate.
30 yr. old female
Infected in 2006
Genotype 2b
Pretreatment:
F0
Alt 28
Ast 30
Viral load 49,000
Started Epclusa on 9/9/16 -12 week treatment
4 week viral load undetected... ALT 19 AST 19
12 week eot viral load undetected...ALT16 AST 11

 


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