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Author Topic: It is not in your mind  (Read 462 times)

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Offline almostfinished

  • Member
  • Posts: 32
It is not in your mind
« on: December 10, 2020, 01:43:26 pm »
I was tested for all auto immune disorders before starting Epclusa and I am a senior, I was very ill starting at week 3 or four of treatment and requested it be stopped but was told I could not stop after it was started. I finished treatment and was getting continually worse. Admitted to hospital 7 months after treatment ended and was diagnosed with Lupus, Mixed Connective Tissue Disease and Raynauds. I had none of these symptoms before I started treatment. I was convinced that it was all in my mind. It was not. My immune system is fried. i have all documentation and would like to hear if anyone else contracted Lupus or auto immune disease after treatment?

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,526
  • Get tested, get treated, get cured, fight Hep c!
Re: It is not in your mind
« Reply #1 on: December 12, 2020, 11:42:28 pm »
Did you ever do treatment with interferon in the past?

https://pubmed.ncbi.nlm.nih.gov/12528081/
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline almostfinished

  • Member
  • Posts: 32
Re: It is not in your mind
« Reply #2 on: December 13, 2020, 12:43:11 am »
Hello...no I have never had interferon, my liver functions were not bad at all and I don't know why I was even put on the Epcluse. My Hep. C Dr. said I might develop problems with my liver when I got older. I was already 64. Doesn't seem like any one else has in this group had these same problems, my Doctor's can not figure it out. All of my auto immune disorders onset is usually early in life.
Thank you Lynn for your research.

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,526
  • Get tested, get treated, get cured, fight Hep c!
Re: It is not in your mind
« Reply #3 on: December 13, 2020, 01:45:09 am »
The forum isn’t as active as it was in the past before the new DAA’s were approved.

From what I found hep c itself has the potential of causing autoimmune problems.

For myself I like most had only mild elevations in liver enzymes. I treated three separate times with interferon based medicines but was a null responder. After probably 30 years of infection I was diagnosed with liver cirrhosis. I was finally successfully treated with Harvoni and ribavirin which did cure my hep c but not my liver cirrhosis. So at this point I’ve been living with liver cirrhosis for 13 years. I’ve been free from hep c for 6 years.

I hope your doctors are able to treat your autoimmune problems and you experience relief from your symptoms

All my best to you
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

 


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