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Welcome to the Hep Forums, a round-the-clock discussion area for people who have Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

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Recent Posts

Pages: [1] 2 3 ... 10
1
On Hepatitis C Treatment / I will start Vosevi retreatment soon
« Last post by mcmaklin on Today at 12:49:11 pm »
Hello it seems I will start Vosevi in the middle of September. Please - any recommendations, what time or a day to take it, and do you have someone here who has been treated or failed the Vosevi? I have genotype 1b please look at the bottom. I had already one DAA treatment and I have L31M RAVs.
What about side effects etc. I can add that I was taking Viekira Exviera with no side effects at all.
2
I Just Tested Positive for Hepatitis C / Re: cost of mavyret
« Last post by Lynn K on Yesterday at 12:18:04 pm »
Some people had difficulty getting approved by their insurance so they obtained Harvoni from outside the US generic Harvoni at much reduced cost I don’t know if the newer meds are available this way yet.

I didn’t have to go that route but I think it is through Dr Jeffries and maybe the web site is fix hep c

I don’t know of anyone who paid the kind of money you are talking about I guess manybif us had access to better insurance. Mine was through my employer a very large company with over 130,000 employees nationwide. So they have very good insurance with no monthly fee
3
I Just Tested Positive for Hepatitis C / Re: cost of mavyret
« Last post by Lynn K on Yesterday at 12:11:07 pm »
For me my insurance pays all except a 30 dollar copay for all approved meds then I got Co-pay assistance from Gilead so each refill cost me $5. I paid $30 for my 24 weeks of Harvoni.

Here is some information about copay assistance from ABBVIE pharma

https://www.mavyret.com/copay-savings-card?cid=ppc_ppd_ggl_HCV_Branded_2017_phrase_Copay_Card_stlk_46A-1921427&cid=ppc_ppd_ggl_HCV_Branded_2017_mavyret_copay_Phrase_46A1921427

“Eligibility: Available to patients with commercial prescription insurance coverage for MAVYRET. Co-pay assistance program is not available to patients receiving prescription reimbursement under any federal, state or government-funded insurance programs (for example, Medicare [including Part D], Medicare Advantage, Medigap, Medicaid, TRICARE, Department of Defense or Veteran’s Affairs programs) or where prohibited by law. If at any time a patient begins receiving prescription drug coverage under any such federal, state or government-funded healthcare program, patient will no longer be able to use the AbbVie HCV Co-pay Card and the patient must call PSKW at 1-844-865-8725 to stop participation. Patients may not seek reimbursement for value received from the AbbVie HCV Co-pay Program from any third-party payers. Offer subject to change or discontinuance without notice. Restrictions, including monthly maximums, may apply. This is not health insurance.“
4
Hepatitis C Research News & Studies / Transplanting Hep C–Infected Kidneys Is a Sound Strategy
« Last post by Hep Editors on Yesterday at 10:29:31 am »
People on dialysis and waiting for a kidney transplant would do better to receive a hepatitis C virus (HCV)–infected organ in the short term rather than waiting longer for a kidney without the virus.

Publishing their findings in the Annals of Internal Medicine, researchers conducted an analysis based on computer modeling that drew data from various sources, including the United States Renal Data System, published medical literature and clinical trials. With the goal of predicting medical and cost-related outcomes over an individual’s lifetime, the model took into account several factors, including sex, age, HCV-driven liver damage severity and the cost of treatment.

Read more...
https://www.hepmag.com/article/transplanting-hep-cinfected-kidneys-sound-strategy
5
On Hepatitis C Treatment / Re: Mavyret & Me: Side Effects (On Week 2 and Will Update Continually)
« Last post by jschmoo123 on Yesterday at 07:43:12 am »
khristy - I just saw your blog. The doctors told me I likely contracted HepC in the early 70's while in the military driving ambulance when the use of rubber gloves wasn't a thought. I just finished Mavyret when you started. I wish I would have seen your blog earlier. I would have suggested you switch to Harvoni. I hope your rash went away. It has been 3 months since I finished treatment and mine has not. I had a culture and a biopsy done and now I have eczema. An allergic reaction to the medication. Do not expect Abbvie to help you either. They take the money and run when you have a problem. When I begged for help because of the severe itching and rash they thanked me for the information so they could add it to their side effects. Absolutely no advice or direction. I guess by law that's all they are required to do. I will continue to seek out Mavyret and HepC blogs and share my thoughts. I would NEVER recommend Mavyret to anyone. I don't know if the makers of Harvoni stand behind their product, but I haven't seen side effects like this mentioned by Harvoni users. And for anyone that is just beginning Mavyret, I would recommend switching to another drug; especially if you're starting to experience itching in the slightest bit. It never went away for me and progressively got so unbearable I did not sleep for days and had to see doctors and dermatologists until I finally got a shot of Kenalog to minimize the itching.
6
I Just Tested Positive for Hepatitis C / cost of mavyret
« Last post by nateoiler2710 on Yesterday at 05:54:36 am »
just got private insurance. i was on medicaid but aparently because of the drug cost for a cure is so expensive medicaid will only treat people that are close to transplant list. since i dont want to die or wait till close to death before receiving  treatment i got married and using my wifes insurance to recieve treatment. Can anyone tell me how much they paid for their hep c meds? we cant afford 100k our insurace will pay upto 80percent but that still leaves me with 20k i would owe. surely theres something i can do to get the cost to a managable number right? im just a peasant worker i cant just swing 20k out of my wallet like some high roller at a casino. someone please tell me im missing something!!! is everyone thats getting cured on these forums rich? or is there sonething i can do besides sell everything i own and still not have enough to pay for genotype 3 meds. i heard that they make these meds for 68 dollars i understand a mark up but 20000 percent seems a little steep or maybe i just read it wrong. am i worrying over nothjng? ive looked everywhere to findout how much the treatment is for people with insurance but i suppose nobody else in the world worrys about how much it will cost except me!  could someone chime in on how much they paid for the meds? after doing research on gilead i find out they have some 12000 patents on the drug and have somehow overridden or bypassed our laws here where a generic should come out after a certain amount of time. somebody say anything helpful please im freaking out over diagnosis. ive already spent thousands to get the fibroscan bloods genotype testing etc. this tuesday i think my dr is writing a script for either epclusa or mavyret whichever is cheaper i feel like i wasted a ton of money on dr visits now that i found out the meds cost as much as trump tower. is there anyone else out there in my situation?
7
On Hepatitis C Treatment / Re: Hep C 8 week end of Harvoni treatment
« Last post by Lynn K on Yesterday at 12:49:44 am »
The end if treatment test really doesn’t mean much whether it is done immediately or at one week post treatment.

Your end of treatment test will very likely show as not detected but this does not mean you are cured.

The test you want to see is the one done 12 weeks after your treatment was completed. That test result if still not detected means you are cured.

Maybe they want to wait one week post treatment for indications of relapse.

Most people who do relapse will do so by week four post treatment.
8
On Hepatitis C Treatment / Re: Starting 24 weeks of Harvoni
« Last post by chino1969 on August 16, 2018, 08:49:12 pm »
Hang in there my man. Completed 24 weeks of Harvoni 3 years ago. Have been clear ever since.
9
On Hepatitis C Treatment / Hep C 8 week end of Harvoni treatment
« Last post by musada on August 16, 2018, 03:04:07 pm »
My doctor (nurse) said to wait 1 week (no Harvoni during week) after finishing the 8 weeks and then come get tested at the end of what would be 9 weeks. It does not make sense to me that there is no reference test at the very end of the treatment. Does anyone know the reasoning? This is my first treatment and I have had genotype 1 for 50+ years (originally diagnosed as non-A/non-B). My other info. is not with me now, but no cirrhosis.
10
Advanced Liver Disease / In Those With HIV, Diabetes Risk Is Tied to Cirrhosis but Not Hepatitis C
« Last post by Hep Editors on August 16, 2018, 10:26:54 am »
People with HIV are at greater risk of being diagnosed with diabetes if they have cirrhosis, although the risk is not associated with hepatitis C virus (HCV) coinfection, MD Magazine reports.

Publishing their findings in Alimentary Pharmacology and Therapeutics, researchers analyzed data on 28,699 French people with HIV in the Dat’AIDS cohort study, including 4,004 with hep C coinfection.

For more...
https://www.hepmag.com/article/hiv-diabetes-risk-tied-cirrhosis-hepatitis-c
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