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Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

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Recent Posts

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1
Am I Infected? / Re: Confused about testing window period
« Last post by Lynn K on Today at 03:26:20 pm »
She has had a negative hep c antibody test after an appropriate testing waiting period so I very much doubt she will be positive for hep c.

Hopefully, they will find the cause of her slightly elevated ALT. I doubt her elevated ALT is due to hep c. It was only a minimal elevation and could have several causes.

Best of luck to you
2
Am I Infected? / Re: Confused about testing window period
« Last post by ScaryMum on Today at 02:21:37 pm »
Hi,

I promised to report how things are going with my daughter. We were supposed to receive the results yesterday. Well, we did not. Today, I received a call for the lab that the qualitative PCR could not be done or analyzed because there has been something wrong with the sample...

So, today they took 5 new tubes of blood from my crying daughter and they will perform the quatitative PCR (not qualitative that they could not do) in two different laboratories to obtain a result. They will also perform the antibody test once more. They promised to do the test today and the medical director of the lab promised to call me this evening.

I can´t even describe my feelings... We have been scared and waited for three months after the incident and learned that all antibody tests were negative, only to learn that her ALT had gone up since the last tests and that we need to go through new tests with PCR and then we wait for more that a week just to learn that the PCR could not be analyzed and we need to through this again.

I will report the results if we finally get them... 
3
People with hepatitis B virus (HBV) who achieve clearance of their hep B surface antigen (HBsAg) maintain a risk, albeit low, of developing hepatocellular carcinoma (HCC, the most common form of liver cancer) and therefore should be monitored periodically.

Publishing their findings in the Journal of Viral Hepatology, researchers conducted a systematic review of 28 studies that included more than 105,411 people with chronic HBV. A total of 7,656 of them spontaneously cleared the virus while another 1,248 achieved viral clearance after treatment with interferon or a nucleoside/nucleotide analogue medication. Overall, 6.77 percent of the cohort achieved HBsAg clearance.

For more...
https://www.hepmag.com/article/clear-hepatitis-b-still-face-liver-cancer-risk
4
Post Hepatitis C Treatment / Re: The Return of the Beast!
« Last post by KimInTheForest on Today at 01:03:09 am »
Thanks for the update Tommy! I've been thinking of you. You have sure been through a lot. At least treatment is nearly starting.

Kim
5
Post Hepatitis C Treatment / Re: The Return of the Beast!
« Last post by I fightis thetitis on Today at 12:43:24 am »
Hey there Tommy,

When you get your labs back, if the geno type is any other type then 1b, that would confirm re infection. A 1b on your labs would suggest or indicate relapse. Correct?

I have not heard of another who has relapsed after such a long viral hiatus. Was it almost 3 years?

This is a speculative question for the us trying too figure this odd occurence out, I wonder if having a high or low HCV antibody count could be a factor in relapse??

Pulling for you mate!

Greg
6
On Hepatitis C Treatment / Re: Mavyret
« Last post by opaleye on Today at 12:21:38 am »
Hi All,

Thanks for sharing your experiences. I have concerns about starting any new medicines because I am very sensitive (to drugs, and foods, and lights, and sounds), but with the cure rates I've been seeing, whatever side effects I get it will be worth it!

I had posted on another thread months ago that I had been approved for Mavyret in February, but Life got in the way. (My husband has had three surgeries since and I am his primary caregiver--not to mention working full time as well.)

Forgive me for time-traveling. My profile says I "started" Tx on October 20, 2018, but it felt good to put it in black and white.

Wishing everyone an EOT SVR!

Cheers,
@opaleye
7
Post Hepatitis C Treatment / Re: The Return of the Beast!
« Last post by slats1056 on Yesterday at 11:01:18 pm »
  Got a letter and a call from new Gastro. to come in for consultation. Med. Assistant will call in the next week about delivery of Mavyret from Abbvie and set up a schedule of routine testing during treatment. She said she would give Me hard copies of the Labs then! Was told it will be 16 week Rx. for Me. Soooooo----have not seen it in person , but it looks like relapse has been confirmed!!!! Still need to get the kids tested to ease My mind as it is still going 90 miles an hour.  Urologist Dr. says all is good. Blood pressure still through the roof but, slowly dropping as Meds. stabilize in My system. As soon as the hard copy is in My hands I will post the stats.
  Well!!!! Here I go again Kiddos!!! I don't suppose there are any relapsers out there that will be My treatment buddies????? I hope not!!!LMFAO!
  Will get back to You guys soon , as I still have a butt load of Dental and Legal stuff going on at the moment as well as work!

 Good Health To all of You Good People out there in Heplandia!! ;)
8
Am I Infected? / Re: Confused About Test Results
« Last post by MMRecord112 on Yesterday at 09:41:16 am »
Anything less than 1.00 means you don’t have hep c. Any number less than one is just noise.

You don’t have hep c antibodies so you don’t have hep c. I assume you waited at least 12 weeks after a concerning potential blood to blood contact before getting tested. Blood to blood meaning sharing of IV needles with someone who has hep c or getting a tattoo from an unlicensed tattoo parlor or some similar exposure  where there was a risk of infected blood entering your bloodstream through an open wet fresh injury.

Thank you for your help - it is very much appreciated.
9
On Hepatitis C Treatment / Re: HepC, cirrhosis and Harvoni
« Last post by Lynn K on Yesterday at 08:15:58 am »
I was working second shift I took my Harvoni on my lunch break at about 6 pm.

Some find they would get extra energy from Harvoni we called it the Harvoni high. Like many have said the most common side effect was an occasional mild headach. You don’t realky need to drink a tone of water just keep normally hydrated throughout the day like everyone really should. The old eight ounce glass of fluids eight times a day and doesn’t have to be only water any liquid counts.

What works best is being consistent just find a time you won’t forget to take your pill. If you are remembering to take at bedtime that should be fine unless you get that energy boost. Maybe with your meal around 6 pm ish is my suggestion. If you get a headach take a Tylenol is what my liver specialist recommended.

Best of luck
10
On Hepatitis C Treatment / Re: HepC, cirrhosis and Harvoni
« Last post by Brenda534 on Yesterday at 06:17:05 am »
One more question, about taking the pill.

I am not a morning person and already have problems with falling asleep. I stay up late until 2 a.m, 3 a.m. ~.But once I fall asleep I sleep like a stone, hard to wake up. Most likely another side effect of Hep C

Would it be better to take Harvoni right at 2 a.m. and go to sleep, so I can sleep through if any side effects and when I wake up just to drink lots of water. I wake up usually around 10 a.m. ~.

Are there any other night owls out there on the forum, who can tell me what worked the best for them with Harvoni.

Brenda
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