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Welcome to the Hep Forums, a round-the-clock discussion area for people who have Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

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Recent Posts

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People living with HIV who contract hepatitis C virus (HCV) rarely spontaneously clear the latter virus without treatment, Healio reports. Consequently, researchers advocate changing direct-acting antiviral (DAA) labels to specify that they should be prescribed during the acute, or very early, phase of hep C infection among those coinfected with HIV.

Christoph Boesecke, MD, of the University of Bonn in Germany, presented findings from the PROBE-C study at the 2018 Conference on Retroviruses and Opportunistic Infections (CROI) in Boston.

I Just Tested Positive for Hepatitis C / Re: I Just Tested Positive for Hep C
« Last post by lorwal on April 17, 2018, 10:41:18 pm »
I also recently tested pos for hep c . I am on day 5 of taking Mavyret.  So far the only side effects I'm having are headaches. I go for a Colonoscopy tomorrow and I'm  nervous. This is a scary disease. I'm learning so much about it thanks to all of you on this forum. It's nice to know I'm not alone
Post Hepatitis C Treatment / Re: Liver pain after svr 24??
« Last post by andrew j on April 14, 2018, 07:25:45 pm »
Hi worried,

I'm 2 years or so post-Tx - and I still get the odd jabbing pain in my liver area - like I always did when I had Hep C.
Like you - I'm hoping it's just my liver making natural adjustments.
(Maybe I should get it checked out?) ...

Also - I agree with you about the alcohol.
I've been on the wagon for a long time - but I never miss it.
Alcohol's just not my thing.

Hoping that your (and everyone's) recovery continues to trend in a positive direction.

Best wishes,
On Hepatitis C Treatment / Re: Side effects for Mavyret
« Last post by andrew j on April 14, 2018, 06:59:25 pm »
Hi Bumble,

I am about 2 years post-Tx - and I still feel as though I'm recovering.
Tiredness and lack of energy (and some dietary constraints) are still issues for me.
I had Hep C for about 40 years - so maybe my situation isn't entirely different to yours.
Just take it day by day - and look after yourself.
I get the impression you know how to do that?

Best of luck with your results, BTW!


(P.S. My computer has died and I'm using one at the library - so I may not be able to post again in a hurry!) ...
Post Hepatitis C Treatment / Re: Liver pain after svr 24??
« Last post by Lynn K on April 14, 2018, 06:42:32 pm »
Yup that’ll do it too lol

Good job hitting the gym :)
Post Hepatitis C Treatment / Re: Liver pain after svr 24??
« Last post by Salal on April 14, 2018, 03:06:24 pm »
Turns out it's not my liver that feels tender/sore, nor even the membrane around it. It is my chest muscles.  They cramp up on me a lot, which hurts me, but has also got to hurt them. Plus I've been doing crunches and planks as part of my workout in the rec center weight room.
Post Hepatitis C Treatment / Re: Liver pain after svr 24??
« Last post by Lynn K on April 14, 2018, 02:43:54 am »
The liver itself has no pain receptor nerves but every internal organ is surrounded by a membrane which does have pain receptor nerves.

So for example if the liver is very swollen it will be pressing against this membrane so there will be a pain sensation in that area but it isn’t specifically coming from the organ itself apparently.

Your doctor was likely looking for the edges of your liver to see if it feels enlarged.
Post Hepatitis C Treatment / Re: Liver pain after svr 24??
« Last post by Salal on April 14, 2018, 12:32:57 am »
Interesting to read that the liver can't feel pain.  I was pressing inward just below the right side ribcage, where I think the liver is, and it felt tender/sore, a feeling it has virtually never produced before.  I am four days post-Zepatier treatment and wondered if it was a post-treatment symptom, or if what I am imagining is my liver is just the lower lobe of my right lung.  I know that any time a doctor has ever pressed around in that area, he was looking for - not my reaction but - something only he would know to examine for. Hardening, maybe? Well, hopefully this will pass soon.  Other than this, post-Zepatier I have been feeling better every day.
On Hepatitis C Treatment / Re: Mavyret Side Effects
« Last post by Lynn K on April 13, 2018, 10:59:29 pm »
Hi and welcome

It is great your boyfriend has someone to support him on his path through treatment.

Headaches are the one of the most common side effects associated with most of the new DAA treatments. Most here suggest keeping properly hydrated seems to help the headaches. Drinking the recommended for everyone 8 or so 8 oz glasses a day of fluids should help with the headaches. Just simply by improving his headaches may help his mood as well.

Nexium can be taken on treatment as long as he follows instruction about when to take it relative to his dose of Mavyret. For Harvoni the instruction was to take at the same time.

On treatment testing especially for viral load is really of no value. It means little about his likelyhood if being successfully treated and if his result should be detected unnecessarily worrisome. The only viral load test that matters is the test done 12 weeks after treatment was finished. If not detected at that time he is considered cured.
On Hepatitis C Treatment / Mavyret Side Effects
« Last post by 2ndchances on April 13, 2018, 09:56:57 pm »
Hello, what a wonderful forum, I've been reading through some of the posts and it seems like a nice group of people here.
My questions are about Mavyret side effects. My boyfriend started it six weeks ago, he has acid reflux so severely that they agreed to give him Nexium even though they don't recommend it during tx. He also gets headaches, fatigue, and is suddenly always aggravated and not himself. I thought maybe it was the heartburn but it's not.
Also his Dr never did a 4 week blood test.
Is anyone else presently taking this medication? If so could you share a little bit with me about how you're doing? It would be really appreciated. He's got to finish two more weeks they recommended an 8 week course as his viral load was 400000. Thanks so much and really happy to meet all of you.
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