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Welcome to the Hep Forums, a round-the-clock discussion area for people who have Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.
  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.
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Recent Posts

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Harvoni (ledipasvir/sofosbuvir) proved safe, well tolerated and highly effective against hepatitis C virus (HCV) in a small study of children who contracted the virus from their mothers and who were at least three years old but younger than six years old.

Kathleen B. Schwartz, MD, of the department of pediatrics at Johns Hopkins University School of Medicine led a research team that conducted a multicenter, open-label Phase II study of 12 weeks of Harvoni among 34 children with hep C in that age range. They published their findings in the journal Hepatology.

People with liver cirrhosis may delay or forgo recommended monitoring for liver cancer because of financial concerns and lack of insurance, according to a study to be presented at The Liver Meeting, the annual meeting of the American Association for the Study of Liver Diseases (AASLD). These findings underline the need for better strategies to address these barriers for at-risk individuals.

Over years or decades, chronic hepatitis B or C, heavy alcohol use, fatty liver disease and other factors can lead to serious liver complications, including cirrhosis (scarring), hepatocellular carcinoma (HCC, the most common type of primary liver cancer) and liver failure that requires a transplant.

For more...
I Just Tested Positive for Hepatitis C / Re: tested positive, first post
« Last post by KimInTheForest on December 02, 2019, 01:40:59 am »
So happy to hear that you have received your first "Not Detected" result. That will give you extra motivation to keep going. Harvoni has cured so many of us. Sounds like you just have a few weeks left. Hang in there! You can do this!

Post Hepatitis C Treatment / Re: 6 month checkup
« Last post by Lynn K on November 29, 2019, 08:15:09 pm »
What a great Thanksgiving gift for you both!
Post Hepatitis C Treatment / 6 month checkup
« Last post by Nanato6 on November 29, 2019, 03:09:07 pm »
Good news! after 6 months hubby's checkup included ultrasound (From Dr: Your liver ultrasound looks great. No evidence of fibrosis or cirrhosis.), fibrotest (Fibrosis Score   0.63   Fibrosis Stage   F3), A1c (5.4) and regular labs (AST   18    ALT   12 ).

So everything has improved! no more diabetes type 2 was previously 6.5! no more F4!

i don't go back until APR. Hope everyone is doing well and maintaining, i have only had rib/back pain on and off, it seems to move around!
God bless!
I Just Tested Positive for Hepatitis C / Re: tested positive, first post
« Last post by Lynn K on November 29, 2019, 01:33:46 am »
So happy to hear you were able to rise above your anxiety and kick hep c to the curb

Best of luck with your remaining treatment

You’ve got this!

Congrats and Happy Thanksgiving!

Wishing you a bright future for the coming new year living free of hepatitis c
I Just Tested Positive for Hepatitis C / Re: tested positive, first post
« Last post by holy$h!T on November 29, 2019, 12:02:40 am »
Happy Thanksgiving Lynn, Mugwump, forum members, and forum guest.  Thanks Lynn and Mugwump for your responses and support during the initial phase of my treatment. 

Here is an update and some details.

Started Harvoni on September 20, 2019.
Anxiety issues were so bad my primary care physician would say, “I’m not worried about your liver, I am more worried about your anxiety.”
Four doctors had recommended the treatment for me, all saying the good out weighs any bad.

During my first 2 to 3 weeks of treatment I could not turn my head off, there was not a day that went by that I wished I had never started taking the medication.  I could not sleep, my stomach and digestive system were turned inside out and upside down. My lower abdomen swelled.  There were days that it took everything I had to just get out the door and get through a day at work.

One Doctor told me, “I cannot tell you to stop taking the Harvoni because I did not prescribe it, but if you continue to loose weight and your current mental state persist, I could see the prescribing physician stopping the Harvoni.  This doctor has treated over 1000 hepC patients.  I asked, “am I the only one you have seen in this state, such a wreck?”
The Doctor responded, “Yes.”  I left his office and drove North on the California Incline and it hit me, “I had simply lost all joy.”  From this point forward I started to slowly accept my treatment and things begin to slowly get better.  I started sleeping again and after about 4-5 weeks, I was off of the Dulcolax and Miralax.

On October 22, 2019 blood test results showed HCV RNA PCR Not Detected.

Just 14 pills left to complete the 12 week treatment :-)
Advanced Liver Disease / Re: Hepatitis C / Cirrhosis / carcinoma
« Last post by Lynn K on November 27, 2019, 07:20:07 pm »
Hi Mona likely the biopsy says early currhosis but really the stages of cirrhosis are defined by symptoms. The excess fluid (ascities) she has can become infected with bacteria this is called spontaneous bacterial peritonitis or SBP it can be very serious complication of cirrhosis.

Low Albumin levels are also a frequent symptom of more advanced cirrhosis.

Really the recommendation about reducing protein intake is old thinking and not currently recommended. The thinking was that consuming protein could contribute to the development of HE hepatic encephalopathy. This was found to be incorrect and the greater risk is malnutrition for people with cirrhosis so protein reduction is no longer recommended. However, to reduce ascities the first recommendation should be to reduce salt (sodium) intake to less than 1,200 mg daily along with a diuretic as needed.

So sorry to hear you mom is having a hard time hopefully she will improve with time.




Advanced Liver Disease / Re: Hepatitis C / Cirrhosis / carcinoma
« Last post by Nina Mae on November 27, 2019, 06:02:47 pm »
Hi Mona,

I wish I could help you figure this out.  My first abdominal ultrasound, before I was even dx'ed, showed "Mild to Moderate Cirrhosis".   I 'had' ascities and edema (resolved with diuretics, thankfully); I still have portal hypertension.

I'm sorry to read she's having a tough time with it all. 

I'm hoping others will chime in with more knowledge.

Take good care of yourself too.
Pregnant women with compensated cirrhosis (the milder form of the severe liver disease) rarely experience health events related to decompensated cirrhosis (the more severe stage) within one year of delivery, according to a large Canadian study. This finding, the study authors hope, will reassure such women that their liver disease will likely hold stable through this period.

Monica Mullin, MD, a postgraduate trainee at Queen’s University in Kingston, Ontario, presented findings from the study at the The Liver Meeting (the Annual Meeting of the American Association for the Study of Liver Diseases) in Boston.

North American women of childbearing age have recently seen a notable rise in the rate of cirrhosis. However, research into how pregnancy impacts the risk of liver decompensation among women with compensated cirrhosis is scarce.

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