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Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

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Recent Posts

Pages: [1] 2 3 ... 10
1
On Hepatitis C Treatment / Re: To scared to take Eclupsa
« Last post by Becca333 on Today at 06:38:32 pm »
I started my last week of treatment today. Hoping everyone is doing good. Can't believe I am almost done already. Side effects were tolerable. Hoping I have no post treatment issues. I really need to stay off google
2
Post Hepatitis C Treatment / Re: Lawyer taking on cases for side effects Harvoni..Finally!!!
« Last post by Dan513 on Today at 11:16:50 am »
I am interested in any Law office that may be handling a class action against manufactures of Sovaldi or Ribavirin. I finished 26 weeks of treatment in Oct 2015 and still dealing with the problems the medication caused. If anyone has info on this I would appreciate any help, I contacted the law office that was posted but I do not meet their internal filing guidelines whatever that is.
3
On Hepatitis C Treatment / Re: Started my fourth week of Mavyret
« Last post by Lynn K on Yesterday at 11:11:25 pm »
Yeah sure out of an abundance of caution but the odds of reinfecting yourself is negligible but sure better to be safe and toothbrushes are cheap. We had some here changing everything weekly
4
On Hepatitis C Treatment / Re: Started my fourth week of Mavyret
« Last post by June on Yesterday at 09:54:39 pm »
Quote from: Lynn K on August 20, 2019, 11:51:55 pm

I didn’t do anything special with my tooth brush or fingernail clippers etc. Had no impact on being cured. Really they did t say anything because it really isn’t needed. Some folks suggested doing that but it’s really not necessary. But if it makes you feel better you could celebrate your first not detected test with a new toothbrush 

Best of luck on treatment

Thanks. I had already joined the Nurse Ambassador program that is offered by the patient support part of www.mavyret.com/‎ and spoke with him for the first time this evening. I asked him about the toothbrush thing and he said they actually do recommend getting a new toothbrush and razor blades after about 5 weeks. He said that's the only items they tell people to change. I'd rather follow what he says than not. It's not about being cured but I'll do whatever I need to do to avoid being re-infected so those two little things are easy to do. Better safe than sorry. 

I'm happy for you that after all you went through a treatment was successful!!
5
Hepatitis C Research News & Studies / Combo of Gastric Acid Drugs Plus Harvoni or Epclusa Tied to High Hep C Cure Rate
« Last post by Hep Editors on Yesterday at 10:29:41 am »
People with cirrhosis who were treated for hepatitis C virus (HCV) with Harvoni (ledipasvir/sofosbuvir) or Epclusa (sofosbuvir/velpatasvir) and who received intravenous (IV) proton pump inhibitors (PPIs) or histamine H2 agonists were cured of the virus at a high rate in a recent small study, the National AIDS Treatment Advocacy Project (NATAP) reports. This occurred despite the fact that such gastric acid drugs are known to lower the concentrations of the ledipasvir and velpatasvir components of the respective combination direct-acting antiviral (DAA) tablets.

Presenting their findings at the 20thInternational Workshop on Clinical Pharmacology of HIV, Hepatitis & Other Antiviral Drugs in Noordwyk, the Netherlands, researchers at the University of Montreal conducted a study of 11 people with HCV from the MONTREAL-C study.

Read more...
https://www.hepmag.com/article/combo-gastric-acid-drugs-plus-harvoni-epclusa-tied-high-hep-c-cure-rate
6
On Hepatitis C Treatment / Re: Started my fourth week of Mavyret
« Last post by Lynn K on August 20, 2019, 11:51:55 pm »
Hi June and welcome

I was diagnosed in 1990 probably infected in 1978. I did the old intron A treatment three shots a weeks in the upper thigh switching spots and leg. Felt like I had the flu for six months feeling run down, tired and achy. I had no response to treatment. I treated 2 more times with interferon an ribavirin once with a drug trial drug but same result no decrease in viral load.

After being infected for 30 years I was diagnosed with liver cirrhosis on my 4th liver biopsy (I was having liver biopsies every 5 years after being diagnosed with hep c) so I was not allowed to treat with the new interferon with incivek because it would have been too risky for me and odds of it working were very low.

Anyway I treated with Harvoni and ribavirin from 11/14 to 5/15 and was finally cured of hep c.

I didn’t do anything special with my tooth brush or fingernail clippers etc. Had no impact on being cured. Really they did t say anything because it really isn’t needed. Some folks suggested doing that but it’s really not necessary. But if it makes you feel better you could celebrate your first not detected test with a new toothbrush 

Best of luck on treatment
7
On Hepatitis C Treatment / Re: Started my fourth week of Mavyret
« Last post by June on August 20, 2019, 10:50:34 pm »
Quote from: Macknine22 on February 06, 2019, 02:21:52 am
Good evening everyone, just a little update on my situation. I finally get my blood work done Thursday. 1 pm. I also have been happy to share what I know, and have been thru thus far. Tonight, I get rid of my old infected toothbrush as told by my Mavyret nurse Krissy. ght I'd space out the increments a bit. good night all...

Hello...new here, on just third day of Mavyret. I will be speaking to the Mavyret support nurse for the first time tomorrow (from the Mavyret site) and will ask about the toothbrush. NO ONE at my doctor's office has mentioned this and if they don't I will ask them WHY NOT. That kind of blows my mind that it hasn't come up, even though I just started. I never thought about my toothbrush!! But don't they think of things like that????

I was diagnosed in about 1997 and have been one of the lucky ones, consistently low numbers, no liver damage, never had Hep B, basically no effect on my life at all. Never did treatment because I was more afraid of that than the disease. And years ago treatment was a nightmare. In the early years you had to give yourself shots in the stomach three times a week and the medication sucked big time. But I am 68 now and though I'm healthy I am concerned about any future health issues that might be complicated by Hep C, or not being able to take some medications because of Hep C. So with the new meds available I began to think it would be stupid to not do it.

I'm on 8 weeks of Mavyret, third day, as I said. Nasty headache, very slight nausea, some sensation in mouth after about 3 hours like I ate spicy food food but no difficulty swallowing, no swelling, little itchy, no rash.

I take it around 6pm with a full meal and big glass of water and then around 11:30-12:00 I take Ambien, which helps with the headache and just go to sleep. I guess this will be my routine for two months. There is no drug interaction with Ambien. Looking at laptop makes headaches worse though!

Looking forward to hearing other experiences.
8
Advanced Liver Disease / FDA Approves New Drug for Liver Cancer
« Last post by Hep Editors on August 20, 2019, 11:16:29 am »
On May 10, the Food and Drug Administration (FDA) approved the VEGFR2 inhibitor Cyramza (ramucirumab) for people with hepatocellular carcinoma (HCC) who have a high alpha-fetoprotein (AFP) level and who were previously treated with Nexavar (sorafenib).

The approval was based on results from a Phase III clinical trial that showed Cyramza delays disease progression and extends survival for liver cancer patients with high AFP.

For more...
https://www.hepmag.com/article/fda-approves-new-drug-liver-cancer
9
I Just Tested Positive for Hepatitis C / Re: Hello and have some questions.
« Last post by JuliaG on August 19, 2019, 09:21:21 am »
I can totally see it Lynn, Getting a letter from a blood bank out of the blue would be super unexpected and tough...In my case I had to gradually prepare myself - first elevated enzymes, then Dr telling he wants me tested for Hep C,  then being reactive and it took almost 2 months ( in my case because of my rejected blood) to confirm.. :(
10
I Just Tested Positive for Hepatitis C / Re: tested positive, first post
« Last post by holy$h!T on August 19, 2019, 01:55:01 am »
Lynn K thanks for the response, its very encouraging. Reading the forum, I see a few people have anxiety disorder. I also fall into that category. It appears the mental battle can be quite challenging.  I honestly feel the members of this forum will help me get through this.  I can see your journey in your signature, and might I say what a trip and congratulations on successfully becoming hepC free.  Also thanks for helping us newbies out.

I need to select my treatment medicine by August 20th.  I will be glad to get that behind me.  I feel once thats decided and I start taking the liver pill, I’ll settle into a routine that works for me.

I look forward to posting and getting feedback.


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