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Welcome to the Hep Forums, a round-the-clock discussion area for people who have Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

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Recent Posts

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1
Post Hepatitis C Treatment / Re: Olyisio and solvadi connection with chronic uthecaris HIVES
« Last post by Donna P on Today at 11:05:47 AM »
Thanks love.  Let me ask u.  How did u relapse. And why do u think solvadi and olyisio together is no more. 
2
Post Hepatitis C Treatment / Re: Olyisio and solvadi connection with chronic uthecaris HIVES
« Last post by Lynn K on Today at 03:11:20 AM »
Sorry to read about your hives ouch.

I also treated with Sovaldi and Olysio for 12 weeks but relapsed and then treated with Harvoni for 24 weeks along with ribavirin for 25 of those weeks. I did not have any skin problems. Not a lot of folks have treated with Sovaldi/Olysio combo and I tend to doubt any one will going forwards.

I hope your doctor can find you some relief for your hives soon
3
Living with Hepatitis C / Re: itching
« Last post by MR 149 on Yesterday at 07:44:35 PM »
Hi Paul,
I bought some Benadryl for itching at night. I think it is ok for liver. Did you ever take Benadryl while on tx? Going to take it tonite.It is strange how it comes on so fast then goes rather fast, like a yoyo!
Forgot to ask you what part of US do you live in? Don't feel like you have to answer; I hope I am not coming off a nosy.
Margot
4
Post Hepatitis C Treatment / Olyisio and solvadi connection with chronic uthecaris HIVES
« Last post by Donna P on Yesterday at 07:17:11 PM »
Immediately after completing my treatment with olyisio and solvadi. I started getting hives. Bad. Real bad I finished treatment August 2015. September I started getting hives. So so bad that I have to take shots of XOLAIR.   Once a month and it doesn't always work I take multiple antihistamines that Durant always work.  I have t gone a month without them. So frustrating. I was wondering is anyone else hsveing this problem.  Help. 
I am also a breast cancer and colon cancer survivor. I was on herceptin and taxtotere
Radiation. Thanks.  Feeling happy about being hep c free cancer free. Now I want to be hives free. Lol
5
On Hepatitis C Treatment / L31M retreatment
« Last post by mcmaklin on Yesterday at 07:56:49 AM »
Hello, I have not been here for a while.

As you maybe know my story is that I have relapsed a month after treatment Viekira+Exviera without Riba. Genotype 1b, now F1 maybe F2. After relapsing I have been found L31M and Q54H (still do not know much about the last one).

Now I am waiting for the newest Abbvie Mavyret or the Vosevi.

I am in UK and in Poland (in Poland I doubt will get the Vosevi).

I need some good data, as probavbly there are no many patients who have L31M.

1. WHICH OF THEM IS BETTER FOR ME? My consultant is thinking of Mavyret.  Any data?

2. And do I need to take Riba?

3. Do you know a situation in UK?

 

thank you

 
6
Living with Hepatitis C / Re: itching
« Last post by dragonslayer on August 18, 2017, 09:16:18 PM »
I was going to post that Rock n Roll Hall of fame concert version with Crosby and Nash, but her voice was so much purer in that younger video..  She couldnt hit the high notes any more in the latter one. 

I love jazz too. Ill check out that singer.

I was diagnosed in 2008.  I had a new PCP at the time, and he was the first to suspect something from my moderately elevated AST and ALT.   He did the antibody test,  and after the positive result, sent me to a Gastro to order the RNA test.   I then had a biopsy and because it came back stage 0 grade 0, everybody said wait.  Thankfully!
7
On Hepatitis C Treatment / Re: Latest test results and clearing up Havoni breakouts
« Last post by KY on August 18, 2017, 08:49:27 PM »
Thanks for sharing the great report, Llorona.
8
Living with Hepatitis C / Re: itching
« Last post by MR 149 on August 18, 2017, 07:58:38 PM »
Hi,
Thanks for videos. Listening on my computer. Not good at tec stuff don't know how to hook up to sound system! Loved Bonnie with Crosby and Nash. Stills was missing.Stills is actually with Judy Collins in small theater Aug 23  in my town in NJ. Could not get tickets. Friend of mine is a member and she with check if some tickets become available.
If you like trumpet and good jazz singer check out Bria Skonberg. She is great. I saw her a few weeks ago at Bickford summer jazz fest in NJ It is a nice small theater. It is 5 min from my house here.
Thanks for asking about itching comes and goes so bearable for the end result. At least it is not so bad I that I am ripping at my skin!!! I have heard you should drink 1 oz of water per body weight, so I guess I better up 80 oz to 110 oz!!! I am hoping my gastro will want to test me after 1 month tx.
I will keep you posted, if I can figure out how to send you something that I don't hit "reply" Not good on computer either!!!
Oh you said you had hepatitis in Collage, how and when did you find out you had HCV? If you found out back then did you not do tx?
Let me know if you check out Bria Skonberg
Stay well
Margot
9
Living with Hepatitis C / Re: itching
« Last post by dragonslayer on August 18, 2017, 06:54:03 PM »
Sounds good, Margot.   We were born the same year.  June for me.  We're so lucky we didnt have to go through interferon or ribavirin.   

Ive been going through  particularly musical period lately, so please, all, forgive my indulgence in posting two of the most beautiful pieces I know... The first is a song, and the second, my favorite concerto.. Yes I know.. my tastes run quite eclectic.  I feel okay in posting these here rather than in Off Topic, because the OP herself has expressed an musical proclivity as well   Also, obviously, these sound way better on a good system.  Hope you have more than a phone or laptop to listen on.   Keep us updated with your treatment!  Hope the itching goes away for you.

https://www.youtube.com/watch?v=KbqXMQCq59U

https://www.youtube.com/watch?v=CTE08SS8fNk&t=0m1s
10
Living with Hepatitis C / Re: itching
« Last post by MR 149 on August 18, 2017, 09:43:05 AM »
Hi Dragonslayer,
MR 149 are my initials and month and year born. I guess I was afraid to enter my name!! Why I don't know.
I actually never got really sick, no jaundice no dark pee. I was diagnosed with autoimmune sogrens and some form of vasculitis (specialists in NYU Langone said some form of vasculitis) I am now thinking all this could have been activated by this hep c in body for so long. I worked up until this past January with a very physical job and was fine up until last spring-summer fatigue thought it was autoimmune problems. It was time to retire  anyway!! My gastro dr. said I did have antibodies for hepb but it was not active and hoping Harvoni does not activate it, which I hear stats are low. Actually when I clear I will have a very occasional glass of wine, never a glass every night like I was doing before diagnosis. I am drinking 80 oz water daily and at the gym everyday getting really strong to fight off this demon. Yes I will win!! I also eat so clean I squeak!!!
This forum has been so good as only one person knows my diagnosis, as I feel there is a stigma about this disease and I am a private person. If someone asks why I don't want a glass of wine just say autoimmune meds say no.
The nurse at dr. office was telling 10 yrs ago the meds were so terrible, with really bas side effects. Maybe it was a blessing I found out in June with super drugs now with few side effects. Did you have anyof the other therepies?
I am also confident with good lifestyle my liver will mend totally, dr. said some damage but not terrible F1-F2 reversible.
So Dragonslayer I have a toast to you of fresh juiced carrots and spinach!!!
LOL
Margot
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