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Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Fatty Liver Disease, Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

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Recent Posts

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61
Considering Hepatitis C Treatment / Does Medicare Cover Hep C Treatment?
« Last post by PhenMichel on November 08, 2022, 06:07:50 am »
Does Medicare help treat this disease?
62
Metabolic dysfunction-associated steatohepatitis (MASH) / Re: Fatty Liver Disease Is Linked to Higher Liver Cancer Risk
« Last post by iana5252 on October 28, 2022, 10:53:24 am »
According to American Liver Foundation "About 100 million individuals in the United States are estimated to have Nonalcoholic Fatty Liver Disease." They also go on to say "Nonalcoholic Fatty Liver Disease (NAFLD), is the most common form of liver disease in children and has more than doubled over the past 20 years."

It is chronically under diagnosed but it is a serious problem.

Hep also recently reported NAFLD Is Leading Cause of Liver Cancer Among Older Americans .

It isn't talked about much, YET, but it will be a big topic of conversation in the years to come.
63
On Hepatitis C Treatment / Re: Do DENTAL Work BEFORE Harvoni & Dental Issues Side Effect
« Last post by Lynn K on October 27, 2022, 10:24:04 pm »
Not sure if you have a question there but i guess I have a couple. Did the Dentist know about your hep C status? If that was the reason he denied services that would be a violation of the ADA Americans with Disabilities Act. This would be a reason for that dentist to lose his license to practice.

Another question are you familiar with the new generation DAA medicines approved since 2014? The relatively new medicines like Epclusa are much better tolerated and highly effective boasting cure rates above 98% and much better tolerated by most patients then the old Interferon based treatments. So I’m kinda wondering why you haven’t treated yet to cure your hepatitis c before it caused continuing damage to your liver.

Sorry this has happened to you and best of luck.
64
On Hepatitis C Treatment / Re: Do DENTAL Work BEFORE Harvoni & Dental Issues Side Effect
« Last post by FinleyMorse on October 27, 2022, 06:15:44 pm »
I have hepatitis C, and I prefer not to talk about it. But recently, I had to deal with a dentist's rudeness toward me. He refused to look at my teeth and told me to go to another dentist. When I left the office, I wanted to cry and felt like a jerk. I want to sue him, but I don't want the case to become public. Now I fear dentists, and at the same time, I want to fix the problem of crooked teeth. My brother advised me to go to this doctor: <LINK DELETED>. But no matter how good he is, I still can't trust any doctor.
65
Metabolic dysfunction-associated steatohepatitis (MASH) / Re: Fatty Liver Disease Is Linked to Higher Liver Cancer Risk
« Last post by MalakaiCameron on October 06, 2022, 05:59:50 pm »
Hi, thanks for sharing! The study's findings are concerning, but it's important to remember that NAFLD is still a relatively rare disease. The vast majority of people with NAFLD will never develop liver cancer. However, if you have NAFLD, you must monitor your liver health closely and see your doctor regularly. There are treatments available that can help slow the disease's progression. In the worst scenario, in the case of cancer, we should remember that nowadays, many revolutionary anti cancer drugs are available. However, it's obviously better to prevent the disease than to treat it. Take care of yourselves, folks.
66
On Hepatitis C Treatment / Re: Hepatitis C: Questions
« Last post by cristipund4 on September 28, 2022, 10:46:03 am »
this is useful information
67
On Hepatitis C Treatment / Re: Hepatitis C: Questions
« Last post by Mugwump on June 07, 2022, 11:44:48 am »
Good to see some action on this forum again. I have seen quite a few false positive AB tests done here in Canada over the years since HCV was isolated and an antibody test was patented. The HCV antibody tests of the past were terrible and caused many people to panic including 2 members of my family who are not infected and most likely never were. A few friends of mine from way back did get tested when they heard I had HCV even though there was no possibility of my infecting them, one of them tested positive for antibodies and upon retesting found that it was a false positive. The other tested AB negative.


So the old standard of doing the AB test at least twice still applies instead of immediately rushing off to do an expensive PCR RNA immediately and scaring the crap out of people who are most likely not serum positive at all and never have been!


Because there are still a fair number of labs using the old and now relatively cheap serum AB tests for HCV and those tests are at best flakey, just perhaps false positive results are a little more common than one would believe.


Just perhaps false positives have become a case of the more cheap patented HCV AB test kits one particular company pumps out the more the stock value and bottom line of the firm increases. 
68
On Hepatitis C Treatment / Re: Hepatitis C: Questions
« Last post by Lynn K on May 07, 2022, 03:05:44 am »
There are on rare occasions false positives. So for the moment take a breath.

It takes I believe 3 to 5 days for the HCV RNA by PCR test results to come back.

“ False-positive results appear to be common. According to a 2017 report , 22 percent of 479 subjects received a false-positive anti-HCV test. According to a 2020 report, the rate of false-positive test results among 1,814 reactive serum samples was 10 percent”

https://www.healthline.com/health/hepatitis-c-false-positive#how-common-is-it


Good luck sending you wishes for negative test results
69
On Hepatitis C Treatment / Hepatitis C: Questions
« Last post by Jet1000 on April 30, 2022, 06:50:55 pm »

Hello,

Thank you for reading my message.

My PCP did my annual physical last week, and my Hepatitis C AB test result came as positive. I am waiting for the results for the HCV RNA PCR. I cannot recall if this test was ever done before.

I have never done drugs or used needles in my life. I cannot think of a single activity that I have done in my life where there was a blood-to-blood transfer between me and someone else. I live alone and do not indulge in any sexual activity. I am male, 45, 5 ft 8, 135 lbs, work out twice per week with dumbbells and eat a plant-based diet.

The only way I can think of having contracted Hep C is when I get my blood drawn for my doctor visits (every 6 months or so) at a hospital lab due to improper use of the needles by the nurse, which seems unlikely as I always see them open a new syringe before drawing my blood.

Medications:
Spironolactone: 50 mg for my retinal condition
Cabergoline 0.5 mg for elevated prolactin
Letrozole for elevated estrogen
Vitamin D supplement.


Questions:
1) Given the above background, I am trying to figure out how my Hep C Antibody came as positive.  Any responses would be helpful.

2) How long does it take to get results for the HCV RNA PCR test?

Thank you
70
Advanced Liver Disease / Re: Liver Pain after eating
« Last post by Pete on April 27, 2022, 01:27:15 am »
Hi Lynn,  I recall we chatted a few years back.  Good we're both still here! It would appear that my abdominal pain was a result of diverticulitis that has developed.  Not all that uncommon for my age.  I should be able to keep this in check with moderate changes to my diet. Of course when you have ALD one suspects liver with any symptom.  Now about that liver.

I had Y90 treatment in the fall of 2017.  Things seemed to be going nicely until my AFP levels started to rise in April 2021.  I was having MRI's every 3 months with no new tumor being detected. AFP really shot up in February this year and my hepatologist ordered a PET CT scan. There it was, hiding within the scarred section of my liver that was damaged by a previous resection and the Y90. The blood flow in that region is very poor and the MRI contrast did no show the tumor as a result.  A 3.6 cm tumor was discovered with the PET CT and a treatment plan was implemented. Considering the positive response with the first Y90, that was chosen to address the new tumor

I just received my second dose of the Y90 element yesterday.  Won't know how well I respond for about 2-3 months.  I'm fortunate to still be Child Pugh A, so I feel pretty good, all things considered. I turn 70 in June and I'm still working.  Here's hoping.  Thanks Lynn for your reply, much appreciated!

Pete



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