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Author Topic: "HCV Not Detected"!  (Read 13365 times)

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Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
"HCV Not Detected"!
« on: September 12, 2015, 11:34:47 pm »
I never thought I would see those words on my lab reports.... but there they are...I am in shock and it has still not sunk in... it seems like a dream.   I never believed that I would see the results I'm seeing in my lifetime.  And even better tx is on the way!
So much gratitude to all those that blazed the trail, the research hospitals, the people that went through all of the trials....my original pharmacy nurse advocate, who got me authorization, even though my own insurance company would not let me use her pharmacy.  What a battle.
My boss , that gave me the one semester off for interferon/riba tx...WITH PAY!
And let me take the day off when I felt too bad to go in on round 2, which was only about 4 days so far, but still, he was so understanding and said " we will work with you  on this".  You are my hero!  Pretty ironic cause I had him in class 15 years ago, now he is my boss. .... lol.
You are my heroes. 

I do not deserve any of this and if I could give UND  to any of you on this forum , I gladly would.

Now..... the people who are not my heroes >:(... you were the ones that gave me a hard time on the phone,   you were the ones that treated me like I knew nothing about this virus,when in fact I knew more than you...I studied hcv for 9 years  and learned all I could from the internet and books, and would have learned even more except my chemistry sucks...(music major, lol) .... you were great at reading pamphlets, but that was about it. (that being said, I never had a specialist, only gastros...and I swear I would have done just as well with my gp.... but I could't talk him into it...but I almost did.

Non-heroes... YOU know HCV has a certain stigma,  please show a little compassion and know all you can know about hcv and tx.  Hope I don't sound bitter , but I had to fight with many who seemed to be unqualified to deal with the intricacies of this virus and tx.

Now just got to get to the 12 weeks check and then they do a blood draw in a year??
Guess I could read the pamphlet.   lol.

ps - I mysteriously acquired what I call the "smart people phone #" for the largest online pharmacy in the u.s..... Also the most difficult one to deal with.  If you think you are using this pharmacy, feel free to pm me and I will give you this phone #.   This is NOT the phone # you see on their web site....(of course).... and what a crappy website....I quit using it as it cause more problems than using the phone..I think it was designed by a junior high computer tech class.... pathetic.  Which sucked cause everytime I had to talk to a rep... I physically got nauseated , it was bizarre, and I hated talking to them on the phone....until I got the "good" phone #!!!

sorry to blather on... its the 3 riba crankin' me up.

Now I know the bottom line is (at this point I am UND), that being said, maybe I am being too hard on the my non-heroes.  But did you have to make it so hard???

dm
« Last Edit: September 13, 2015, 12:16:46 am by drummerman »
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: "HCV Not Detected"!
« Reply #1 on: September 13, 2015, 12:10:07 am »
 DM, Crank it up Man. I guess I'm glad that I'm not on Ribavarin. If it gets You going like this ( You seem to be kind of laid back and easy going by Your posts ) I can only imagine what it would do to someone like Me with a mouth like mine, no filter, and a temper to boot. Look out world. Everyone needs to let her rip occasionally! If You keep it all in and compartmentalize everything it causes stress. So think of it as stress relief! Sounds like normal venting to Me. I don't see any problems with giving credit where it is due, and grief where it is deserved. Totally coherent to Me, no blathering detected. I kind of liked the post Myself!!!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: "HCV Not Detected"!
« Reply #2 on: September 13, 2015, 12:25:36 am »
Quote from: slats1056 on September 13, 2015, 12:10:07 am
DM, Crank it up Man. I guess I'm glad that I'm not on Ribavarin. If it gets You going like this ( You seem to be kind of laid back and easy going by Your posts ) I can only imagine what it would do to someone like Me with a mouth like mine, no filter, and a temper to boot. Look out world. Everyone needs to let her rip occasionally! If You keep it all in and compartmentalize everything it causes stress. So think of it as stress relief! Sounds like normal venting to Me. I don't see any problems with giving credit where it is due, and grief where it is deserved. Totally coherent to Me, no blathering detected. I kind of liked the post Myself!!!!!
Thanks Slats!
I have to be real careful.
dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: "HCV Not Detected"!
« Reply #3 on: September 13, 2015, 01:07:49 am »
Quote from: slats1056 on September 13, 2015, 12:10:07 am
DM, Crank it up Man. I guess I'm glad that I'm not on Ribavarin. If it gets You going like this ( You seem to be kind of laid back and easy going by Your posts ) I can only imagine what it would do to someone like Me with a mouth like mine, no filter, and a temper to boot. Look out world. Everyone needs to let her rip occasionally! If You keep it all in and compartmentalize everything it causes stress. So think of it as stress relief! Sounds like normal venting to Me. I don't see any problems with giving credit where it is due, and grief where it is deserved. Totally coherent to Me, no blathering detected. I kind of liked the post Myself!!!!!

Slats,
saw in your signature that  you had a glucose test.   Was this a "fasting" glucose test??  needs to be.  And it will not be normal if you have hcv... it really messes with the way insulin works (doesn't work well).

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: "HCV Not Detected"!
« Reply #4 on: September 14, 2015, 08:50:21 am »
DM, Good to know that , I wasn't aware of the fasting! I actually was fasting but not by choice. The day of the Labs. was one of My BAD ASS headache days. Did not eat all day. Test was done late afternoon. The test was part of full CBC, Liver Panel work up, not a glucose sugar binding test by itself. It's always nice to get info. the Medical Community never explains to You!
 
 HOW MANY HEPPERS DOES IT TAKE TO CHANGE A LIGHT BULB??????? NONE!!! WE ARE KEPT IN THE DARK ALL OF THE TIME!!!!!!!!!!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: "HCV Not Detected"!
« Reply #5 on: September 14, 2015, 05:40:53 pm »
Best light bulb joke I've heard in a    v   e   r   y     long time -- thanks!
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline byebyeC

  • Member
  • Posts: 286
Re: "HCV Not Detected"!
« Reply #6 on: September 14, 2015, 07:35:48 pm »
Congratulations Drummerman! Just awesome!
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: "HCV Not Detected"!
« Reply #7 on: September 14, 2015, 08:51:42 pm »
Quote from: byebyeC on September 14, 2015, 07:35:48 pm
Congratulations Drummerman! Just awesome!

Thanks BBC!

You will get there too!

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: "HCV Not Detected"!
« Reply #8 on: September 14, 2015, 08:55:49 pm »
Quote from: slats1056 on September 14, 2015, 08:50:21 am
DM, Good to know that , I wasn't aware of the fasting! I actually was fasting but not by choice. The day of the Labs. was one of My BAD ASS headache days. Did not eat all day. Test was done late afternoon. The test was part of full CBC, Liver Panel work up, not a glucose sugar binding test by itself. It's always nice to get info. the Medical Community never explains to You!
 
 HOW MANY HEPPERS DOES IT TAKE TO CHANGE A LIGHT BULB??????? NONE!!! WE ARE KEPT IN THE DARK ALL OF THE TIME!!!!!!!!!!!!

Pretty funny!

I think it would be a good idea for all to ask their doctor if they should fast before blood tests... sometimes its required , other times doesn't matter.

My wife actually went thru a blood test that she was supposed to fast for and they never told her.

The one thing I have learned in dealing with this for 10 years is..... assume nothing.  Ask everything.
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Tom1952

  • Member
  • Posts: 29
Re: "HCV Not Detected"!
« Reply #9 on: September 14, 2015, 09:32:26 pm »
Congratulations on being clear.  Getting treatment is very difficult and that is wrong and that is why I am so very very grateful and respectful of the opportunity to get well and enjoy the benefits of a healthy body and mind.  Best wishes in your new life!
Logged
Infected - Best guess hospital 1984
2004 - Diagnosed Geno 1a
2015 - Viral 3.250.000

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: "HCV Not Detected"!
« Reply #10 on: September 14, 2015, 09:53:15 pm »
Quote from: Tom1952 on September 14, 2015, 09:32:26 pm
Congratulations on being clear.  Getting treatment is very difficult and that is wrong and that is why I am so very very grateful and respectful of the opportunity to get well and enjoy the benefits of a healthy body and mind.  Best wishes in your new life!

thanks Tom.
Are you going to treat soon?

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Tom1952

  • Member
  • Posts: 29
Re: "HCV Not Detected"!
« Reply #11 on: September 14, 2015, 10:05:53 pm »
Quote from: drummerman on September 14, 2015, 09:53:15 pm
thanks Tom.
Are you going to treat soon?

dm

Took my first pill today at 2:00pm PST. I am one of the lucky ones!

Logged
Infected - Best guess hospital 1984
2004 - Diagnosed Geno 1a
2015 - Viral 3.250.000

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: "HCV Not Detected"!
« Reply #12 on: September 14, 2015, 10:32:48 pm »
Quote from: Tom1952 on September 14, 2015, 10:05:53 pm
Took my first pill today at 2:00pm PST. I am one of the lucky ones!

The journey begins.

Harvoni?
Vike?
 
w or w/o riba?

dm



Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: "HCV Not Detected"!
« Reply #13 on: September 14, 2015, 10:47:17 pm »
Quote from: Tom1952 on September 14, 2015, 10:05:53 pm
Took my first pill today at 2:00pm PST. I am one of the lucky ones!

Congrats Tom! You are on your way. Stay well hydrated. :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Tom1952

  • Member
  • Posts: 29
Re: "HCV Not Detected"!
« Reply #14 on: September 14, 2015, 11:14:59 pm »
Quote from: drummerman on September 14, 2015, 10:32:48 pm
The journey begins.

Harvoni?
Vike?
 
w or w/o riba?

dm

I have a 12 week prescription for Harvoni.  If all goes well I start the new year clear of HepC.
Logged
Infected - Best guess hospital 1984
2004 - Diagnosed Geno 1a
2015 - Viral 3.250.000

Offline Tom1952

  • Member
  • Posts: 29
Re: "HCV Not Detected"!
« Reply #15 on: September 14, 2015, 11:16:08 pm »
Quote from: KimInTheForest on September 14, 2015, 10:47:17 pm
Congrats Tom! You are on your way. Stay well hydrated. :)

kim

Thanks Kim:)
Logged
Infected - Best guess hospital 1984
2004 - Diagnosed Geno 1a
2015 - Viral 3.250.000
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