Author Topic: After tx (POST) 4wk or 12 wk SVR results (Harvoni only) - CHECK IN HERE PLEASE! (Read 755894 times)

mario555 · « **Reply #400 on:** July 14, 2015, 08:23:10 pm »

I finished a 24 weeks treatment on April 28. Just got my results for my 4 weeks EOT (done on May 25th......). I'm UND!!!
Now that I am closing in on the 12 weeks post, the 4 weeks looks kind of precocious! Anyone who was UND after 4 weeks and then relapsed afterwards? I'm only referring to Harvoni here. Just curious!

dragonslayer · « **Reply #401 on:** July 14, 2015, 09:59:40 pm »

Mario, its very rare. As you will see here, SVR4 is 98.5% predictive of SVR12:

http://www.journal-of-hepatology.eu/article/S0168-8278(13)60850-8/pdf

Bob V · « **Reply #402 on:** July 14, 2015, 10:05:47 pm »

007, Momo, Tm, JoeK9999
Great news, congrats!

Paul
You've been through more then most with the Harvoni tx. CONGRATS!

scott51-can · « **Reply #403 on:** July 15, 2015, 05:23:55 pm »

Quote from: charly8 on April 29, 2015, 12:08:19 pm

Now that a lot of people are coming off treatment, we need a tally of peoples status.

NOTE: Please post only if you have results from post EOT tests SVR 4wk thru SVR 12wk after EOT.

Please list only SVR4 or SVR 12 status. No results on tx or at EOT because most are undetected then anyways.

Please list the following: (copy and paste into your post as I have done below to keep this thread clean)
1. 4wk - 12 wk EOT VL status
2. Treatment duration
3. tx naive or experienced
4. Genotype (1a or 1b)
5. F1-F4 fibrosis status (date)
6. Initial VL (date)

Current Status
So far we have 15 people that hit at least the SVR4 mark. 3 of 15 have relapsed. (20%)

Breakdown by treatments
8 weeks of tx - 2 of 3 have relapsed
12 weeks of tx- 1 of 12 have relapsed

Note: We currently have a 20% relapse rate. This is with very limited data and certainly not scientific. Even still this does not seem to correspond to the 95% SVR rate that Gilead has boasted in their studies. Lets hope we get some more SVR'S

i tested neg 1 month after treatment been off harvoni for 6 weeks . lung problems now . any advice

GLCII · « **Reply #404 on:** July 15, 2015, 05:29:19 pm »

I've been off treatment for about 6 weeks myself, since June 3rd but haven't noticed any problems. I actually feel better than I have in years.

What kind of lung problems are you having?

Katie · « **Reply #405 on:** July 15, 2015, 06:04:17 pm »

Quote from: scott51-can on July 15, 2015, 05:23:55 pm

i tested neg 1 month after treatment been off harvoni for 6 weeks . lung problems now . any advice

Hi Scott, I have been off treatment since end of February and have fatigue and weakness (similar like a serious flu) and shortness of breath. Any minor exertion just puts me down. I have never experienced anything like this. I had fatigue prior to treatment but this is totally different. I could still function back then.

I am grateful for the treatment and delighted not to be a bio-hazard with all of my blood work perfect and figure this too shall pass. Just trying to be patient and not get stressed at my undone summer projects.

I do have many Hep C symptoms gone and benefited greatly so am not complaining, just stating facts.

Katie

dragonslayer · « **Reply #406 on:** July 15, 2015, 09:01:02 pm »

Katie, have you had your blood drawn during this malaise and seen a doctor? Perhaps there's something else going on not related to treatment?

Katie · « **Reply #407 on:** July 15, 2015, 09:24:36 pm »

Quote from: dragonslayer on July 15, 2015, 09:01:02 pm

Katie, have you had your blood drawn during this malaise and seen a doctor? Perhaps there's something else going on not related to treatment?

I've had complete blood work done with both viral loads checks and everything is perfect. I was thinking thyroid but that is fine too. Just can't figure out how I can be so healthy and feel like crap. I have been pushing myself to get out daily and weed or prune for an hour or so to get some exercise and berry picking will start soon. It about kills me, but I am a firm believer in moving and the more you do, the more you can do. I'll make it and it will get better. Thanks Paul!

grodeestok · « **Reply #408 on:** July 17, 2015, 10:55:53 am »

1. 12 weeks eot undetected
2. Tx 8 weeks
3. Tx naive
4. Geno 1a
5. F1 Jan 2015
6. 500,000 Jan 2015

Sam1224 · « **Reply #409 on:** July 17, 2015, 09:29:13 pm »

1. 12 wk EOT VL status Undetected!!!
2. Treatment duration 16 weeks
3. tx naive
4. GT 1b
5. F4 fibrosis status 12-15-14 Fibrosure

Katie · « **Reply #410 on:** July 17, 2015, 10:43:45 pm »

Congratulations Grodeestok and Sam! It is so great seeing these numbers of victory over Hep C continue to come in!

Do something special for yourself and enjoy your life!

Katie

Mike2 · « **Reply #411 on:** July 18, 2015, 06:17:18 am »

Hi All,
7 wks post treatment UNDETECTED!!!
12 wks. Treatment naive 64yrs. old.

GLCII · « **Reply #412 on:** July 18, 2015, 08:12:11 am »

Good Job! Mike2
5 more weeks and you'll be good as gold.

Congratulations Grodeestok and Sam as well.

3 Undetected in as many days is nice to see..

grodeestok · « **Reply #413 on:** July 18, 2015, 09:09:22 am »

Thanks everyone. Still can't believe it's real. Just seems too good to be true but I'll take it! Congratulations to all!

Sam1224 · « **Reply #414 on:** July 19, 2015, 09:10:51 am »

Thanks guys. Been a long time coming. I know that those who relapsed will get cured. I just hope it happens quickly. This forum will remain on my favorites list. I'll be checking in now and then. Thanks again.

Bixter · « **Reply #415 on:** July 21, 2015, 03:20:45 pm »

I have been following this thread for a long time now and finally it's my turn to check in with my first post tx results.

1. 6 w post EOT: Undetected!
2. Harvoni 12 weeks
3. Tx experienced
4. 1a
5. F3
6. 1.8 M

GLCII · « **Reply #416 on:** July 21, 2015, 05:06:21 pm »

Congratulations Bixter

mdj · « **Reply #417 on:** July 22, 2015, 01:52:31 pm »

1. 4wk EOT VL:undetectected
2. Treatment duration-12 weeks
3. tx naive
4. Genotype 1a
5. fibrosis status--F3-F4 (Mar 2015)
6. Initial VL (2.1million/Oct 2014; retest 700,000/March 2015)

Will provide 8 wk and 12 wk stats as they come in.

GLCII · « **Reply #418 on:** July 23, 2015, 07:24:30 pm »

Congratulations mdj

That's good news. I hope we keep seeing more Undetected posts coming in.

As near as I can tell, there are 52 people who reported in on their post 4 & 12 week EOT results. Out of the 52 who reported their results, 40 are Undetected and unfortunately 13 have relapsed.

It would be nice if some of the 50 plus guests, that are lurking and possibly on treatment, would post their results as well.

apache · « **Reply #419 on:** July 23, 2015, 10:15:09 pm »

Quote

As near as I can tell, there are 52 people who reported in on their post 4 & 12 week EOT results

Here's the 53rd data point:

1. 4wk EOT VL: undetected
2. Treatment duration: 12 weeks
3. tx naive
4. Genotype 1a
5. fibrosis status: F0-1
6. Initial VL: 2.94 million

Lynn K · « **Reply #420 on:** July 23, 2015, 10:37:56 pm »

I will be reporting in end of next week 12 week post tx test next Monday

Hoping I am on the good side of the stats

xkilo · « **Reply #421 on:** July 24, 2015, 04:25:03 pm »

It worked for me!

1. 12wk EOT VL: undetected
2. Treatment duration: 12 weeks
3. tx experienced
4. Genotype 1a
5. fibrosis status: F3 (Jan2015)
6. Initial VL: 13 million (Jan 2015)

GLCII · « **Reply #422 on:** July 24, 2015, 07:42:18 pm »

Congratulations apache & xkilo

xkilo is that the test you took at the end of your treatment or 12 weeks after your treatment ended?

Lynn K

Good Luck on that 12 week post treatment. I think you'll make it!!!

I would like to see nothing but Undetecteds coming back from now on. As of now it's a 24% failure rate among the people posting on this board. That doesn't jive up with Gileads results. Hence we need more people posting their results. I figure the 47 guests, that aren't spider bots crawling around the site, are here for a reason. If we can get them to post results, we might get closer to Gileads stats.

I do my 8 week post Tx next wednesday. It's not the 12 week post EOt but it's the start of the end.

54 Results Posted
42 Undetected
13 Relapses

These are not the results I was expecting.

Anyone hear from Charly8?

xkilo · « **Reply #423 on:** July 24, 2015, 08:37:19 pm »

It was the 12 week post EOT.

Bituman · « **Reply #424 on:** July 25, 2015, 12:16:54 am »

Went for my 12-week post treatment lab work this morning. Just checked the patient portal and there it was, "HCV RNA Undetected." I suppose this means I have achieved SVR12. At this point I'm not sure whether to declare victory. I think I'll wait until after I talk with the PA on Monday since they usually call me to verify results. In the meantime, YIPEEEEEEEEE!

FWIW I feel great, I had no side effects while on Harvoni and nothing now. I've been busy putting in some miles on my bike getting ready for the fall racing season after it cools down here in Arizona. Still need a few weeks of hill work (ugh). Work remains a bit stressful but better tolerated without all those nasty little viruses messing with my liver.

Continuing healing vibes to all.

Bob

Katie · « **Reply #425 on:** July 25, 2015, 12:30:58 am »

CONGRATULATIONS TO ALL OF THE NEW UNDETECTORS! yay!

It is wonderful to see all of these great results coming in and this forum is such a blessing in so many ways.

Be happy, enjoy the rest of your healthy lives, and take good care of yourselves!

Katie

Bixter · « **Reply #426 on:** July 25, 2015, 09:11:46 am »

@GLCII
I've been keeping track of the results in this thread but I have also added other Harvoni results I found in other threads in this forum. I have only added results where I could find at least information about treatment duration and when the post results were taken. This is what I have so far:

8 weeks treatment:
21 results with 15 reports of at least SVR4.
SVR rate: 71,5%
This is far from the results in studies which stated an SVR rate comparable to the 12 week treatments.

12 weeks treatment:
57 results with 49 reports of at least SVR4
SVR rate: 86%
This could be a rather realistic real life SVR rate compared to study results of around 95%

I hope everybody continues to contribute with their results. It's also important to follow up from for example 4 w results to a confirmed SVR12. Most of all, I hope that people detected with a low VL
come back and let us know whether they made it to SVR or not.

PatEquack · « **Reply #427 on:** July 25, 2015, 05:15:24 pm »

1. 12 wk post EOT VL status - Undetected
2. Treatment duration - 12 weeks
3. tx naive or experienced - TX experienced
4. Genotype (1a or 1b) - 1a
5. F1-
6. Initial VL (date) - 3 mil

MEG · « **Reply #428 on:** July 25, 2015, 10:24:08 pm »

Congratulations to all UNdetecteds!!

I'll add my name to the list!

12 post EOT----Undetected. I'm slowly getting back my stamina---many of you know that my case was complicated by colds/sinusitus that preceded and continued during Harvoni(Jan-April)..

But, I've been able to ride my bike, Bob(Bitumen)! and last w/e I felt like I could ride for miles, I felt so good. I sort of crashed this week but it was well worth it. Gliding on the trail, smiling ear-to-ear to strangers who had no idea of the significance of this woman's joy!

All the best everyone. Your being here has been invaluable and integral to my treatment..........Meg

Katie · « **Reply #429 on:** July 25, 2015, 10:47:56 pm »

MEG! HERE IS ONE JOYFUL HAPPY DANCE FOR YOU! I'M KICKING MY HEELS UP!!!

Enjoy your bike rides but for heaven's sake be careful. You don't want to ruin the freedom with a broken leg!

Enjoy, be good to yourself and live life to it's fullest!

Katie

MEG · « **Reply #430 on:** July 25, 2015, 11:04:54 pm »

Katie....you are such a love!!!!!

Thank you and I hope you too get your contagious energy back...look out world!!

Love you, huge hugs!
Meg.

Bituman · « **Reply #431 on:** July 26, 2015, 03:48:37 pm »

Quote from: MEG on July 25, 2015, 10:24:08 pm

But, I've been able to ride my bike, Bob(Bitumen)! and last w/e I felt like I could ride for miles, I felt so good. I sort of crashed this week but it was well worth it. Gliding on the trail, smiling ear-to-ear to strangers who had no idea of the significance of this woman's joy!

All the best everyone. Your being here has been invaluable and integral to my treatment..........Meg

Congrats Meg! I knew it was only a matter of time until you got your knees in the breeze. What is "sort of crashed?" Hope not too bad. So happy that your stamina is coming back. Do you have a bike fitness goal? Maybe a grand Fondo?

All the best!

Bob
PS-Chris Froome just won his second Tour de France. Beat my fav Nairo Quintana by 1:12. One more day in the mountains and it might have been different. Was glad Nibali was off the podium after the stunt he pulled on stage 19.

waitingforrain · « **Reply #432 on:** July 27, 2015, 01:43:36 pm »

4 wk EOT.......UNDETECTED

I've been waiting patiently to add my two cents to this thread. I've been undetected since three weeks into treatment. Pretty happy right now. It think my odds for a 12 and 24 SVR are pretty good right now.

12 wk Harvoni
1a with unknown VL (at one time it was a few million)
Mild Fibrosis
Failed Riba/Interf and failed Riba/Interf/Incivek
Late 90's infection

sunrise · « **Reply #433 on:** July 27, 2015, 08:35:37 pm »

Hi everyone.
Best wishes on your recoveries! Katie! I hope you start feeling better right away. comgrads on U$ status. ?I know I am a relic on here belong I took S/O for 12 weeks, I am officially cured at 24week post tx UD!Yeah! Still working on lingering side effects. Taking the holistic path now, no pharmaceuticals as of now another Yeah! So great to hear all the UDs! Much love Sunrise

Bituman · « **Reply #434 on:** July 27, 2015, 10:52:26 pm »

Guess I'll have to continue the waiting game. Talked to the PA today. She said that although some consider a SVR at 12 weeks to be cured, their team is more conservative and wait for a SVR at 24 weeks post treatment to declare victory. But she also said those of us remaining clear at 12 weeks still have every reason to be encouraged. Already set up the next lab appt for Oct 19, 6:30 AM, Arizona time. I'll delay any celebrations until then.

Still sending healing vibes...

Bob

dragonslayer · « **Reply #435 on:** July 27, 2015, 11:54:25 pm »

Not to worry, Bob... The predictive value of SVR12 to SVR24 is 99.8% positive.. At this point, its a mere formality! Congratulations!!!

Bituman · « **Reply #436 on:** July 28, 2015, 09:15:42 pm »

Quote from: dragonslayer on July 27, 2015, 11:54:25 pm

Not to worry, Bob... The predictive value of SVR12 to SVR24 is 99.8% positive.. At this point, its a mere formality! Congratulations!!!

Thanks for the encouraging words Paul. I know the statistics are heavily weighted in my favor. I suppose I have the psychological need to hear a highly trained health care professional say "you're cured." That's my end game, or as some would say, closure. I have one of those Road Id bracelets that says Hep C. I want to get a new one. I can wait until October.

Oh yeah, congrats to you too! Been a long and sometimes scary road. So happy you beat that bug into submission.

Bob

lovinglife · « **Reply #437 on:** July 29, 2015, 01:05:18 pm »

CURED!!! -thank you God and modern medicine and BCBS/my employer. I am so grateful. I have been waiting for this for 26 years. Harvoni was tolerable (not perfect) and I worked the whole time. I wish all of you the very best and this disease which has lurked in the back of my mind and body all these years is soon to be a thing of the past. Blessings to all reading these words.

12 weeks post Tx- cured
3 months of meds
naïve
genotype 1
F1
initial v.load - 4 or 6 million (cannot recall which, so call it 5)

Lynn K · « **Reply #438 on:** July 30, 2015, 02:57:48 pm »

Please list only SVR4 or SVR 12 status. No results on tx or at EOT because most are undetected then anyways.

Please list the following: (copy and paste into your post as I have done below to keep this thread clean)
1. 4wk - 12 wk EOT VL status
12 EOT VL status NOT DETECTED

2. Treatment duration
24 weeks Harvoni 15 weeks Ribavirin

3. tx naive or experienced
Three time null responder interferon based tx relapsed after 12 weeks Sovaldi/Olysio

4. Genotype (1a or 1b)
1a

5. F1-F4 fibrosis status (date)
F4 in biopsy 01/2008

6. Initial VL (date)
HCV RNA RT-PCR, QT 2422260
HCV LOG 10 6.384 September 5, 2014

current status
cured

dragonslayer · « **Reply #439 on:** July 30, 2015, 03:22:35 pm »

Lynn,

HOT DAMN!!!!! WOOT WOOT.... FINALLY

I knew youd do it.... Finally, you join the rest of us. So happy for you......

Mugwump · « **Reply #440 on:** July 30, 2015, 03:30:39 pm »

Lynn that is the best news I have heard in a long while! You have been through the wringer and make my 24 week excursion seem like a walk in the park. My liver enzymes are not good (mid 50 alt) so either I am free of the virus and have fatty liver problems or the little bastards have come back. My tests at week 4 had my liver enzymes way down in the 20s so I am a little scared that I am in the unlucky category again.

I won't know for sure for a few more weeks as they really skimp on testing here in Canada because there are so few labs. All the HCV testing is still hooked into disease control and only one slow understaffed government lab here in BC is allowed to do all the infectious hcv rna pcr.

All the best to everyone who clears, I suspect that I did not. But I am still very thankful that I had the chance and our extended Blue Cross health insurance did not try to skimp me down to a 12 week treatment the way they do elsewhere. If I do require a 12 week retreat with riba I do not know how they will react though so I will cross that bridge if I come to it.

However things go for me I will keep in touch.

Eric

mario555 · « **Reply #441 on:** July 30, 2015, 03:40:41 pm »

Lynn K. SUPER! SUPER! SUPER NEWS! I am so happy for you! I feel you did deserve this wonderful break. Enjoy your new lease on life!

Katie · « **Reply #442 on:** July 30, 2015, 04:06:18 pm »

YAY LYNN! I'm Putting my best shoes on to do a HAPPY DANCE for YOU!

You are a true inspiration and thanks for all of your information and support! You now can recover and heal and Love your life!

{{{{{BIG HUGS}}}}

Katie

tm · « **Reply #443 on:** July 30, 2015, 08:27:14 pm »

8wks post treatment undetected. 1b f0-f1 2x's prior treatment in 1997 and 2000
12 wks. Infected in the 70's. I consider myself cured, and so does my Dr. I will still do the 12 wk test tho. I have been lurking here for awhile. I am so glad you cleared Lynn congratulations. I am happy for all of us!!!!!! Here's hoping we all get cured.

Lynn K · « **Reply #444 on:** July 30, 2015, 08:54:23 pm »

thanks all and thanks tm and ditto

mario555 · « **Reply #445 on:** July 30, 2015, 09:26:03 pm »

Lynn K. How's your ALT and AST at week 12?

Lynn K · « **Reply #446 on:** July 30, 2015, 09:39:17 pm »

No idea this was all verbal haven't seen the results yet on My Chart

Was told they are in normal range tho

The only out on normal continues to be platelets due to portal hypertension and enlarged spleen but again no numbers

Will let you know when they show up

Good luck to you :-)

Blue · « **Reply #447 on:** July 30, 2015, 09:51:21 pm »

Another for the 12 week post UNDETECTED!

Undetected 12 week post EOT
Tx experienced
1b
F1
Initial VL 4.8

Congrats to Lynn and all. I had no idea how much the brain fog was impacting my life until I eradicated this virus. I feel like I have a new lease on life and it feels pretty good!

Thanks to all who posted. I didn't feel so alone among others who were also living with everything that comes with the HCV.

Really hoping many others have the chance to be free of this.

Blue

Espo2 · « **Reply #448 on:** July 30, 2015, 11:58:54 pm »

8 wks post tx , undetected after 8 wk tx
Genotype 1b
Tx experienced
Initial VL 4.7m
F0
Will also do 12 week check. B/p and anxiety was too much to handle. Doc was unhappy I stopped but, Thank God, undetected 8 wks post treatment.
Was so good to have this site while treating. I too didn't feel so alone. B/ p. is good now, anxiety less, Joint pain much less.

Lynn K · « **Reply #449 on:** August 01, 2015, 12:38:08 am »

Quote from: mario555 on July 30, 2015, 09:26:03 pm

Lynn K. How's your ALT and AST at week 12?

Got the week 12 liver function back

PROTEIN, TOTAL
7.1
Normal 6.0-8.5   g/dL

ALBUMIN, S
4.7
Normal 3.5-5.5   g/dL

BILIRUBIN, TOTAL
0.5
Normal 0.1-1.2   mg/dL

BILIRUBIN, DIRECT
<0.2
Normal 0-0.4   mg/dL

ALT (GPT)
29
Normal <33   U/L

AST(GOT)
27
Normal 0-40   U/L

ALK PTASE
71
Normal 39-117   U/L

mario555 · « **Reply #450 on:** August 01, 2015, 07:17:42 am »

Lynn K. Wow! Your results couldn't be any more "normal" than what they are! You are right in the middle of everything! I am really happy for you and your body should start to slowly heal itself. Now you can hope to get a reduction to F3? You have my very best wishes!

Philadelphia · « **Reply #451 on:** August 01, 2015, 08:42:11 am »

Congratulations Lynne. Wonderful news.

dragonslayer · « **Reply #452 on:** August 01, 2015, 09:24:03 am »

Quote from: Lynn K on August 01, 2015, 12:38:08 am

Got the week 12 liver function back

PROTEIN, TOTAL
7.1
Normal 6.0-8.5   g/dL

ALBUMIN, S
4.7
Normal 3.5-5.5   g/dL

BILIRUBIN, TOTAL
0.5
Normal 0.1-1.2   mg/dL

BILIRUBIN, DIRECT
<0.2
Normal 0-0.4   mg/dL

ALT (GPT)
29
Normal <33   U/L

AST(GOT)
27
Normal 0-40   U/L

ALK PTASE
71
Normal 39-117   U/L

Lynn, great numbers! So, then, is this a 'normal' situation for those with cirrhosis? With numbers like this, other than symptoms which may or may not be present, who'd ever think they had cirrhosis?

Lynn K · « **Reply #453 on:** August 01, 2015, 01:31:00 pm »

Yes I have cirrhosis but live enzymes show injury that is occurring only not the extent of damage that has happened already. For me my liver is no longer under a constant attack but the damage has been done.

I haven't seen my platelet count yet but that does show I still have liver disease as my counts are in to 80 to 90 range so I guess I will be watching that one for improvement if my counts ever increase I guess that would mean my liver is improving.

Good luck all

lolacme · « **Reply #454 on:** August 01, 2015, 04:06:22 pm »

Congrats Lynn thank you for all your support and in out on this forum

Katie · « **Reply #455 on:** August 01, 2015, 06:00:21 pm »

FYI: I contacted Gilead online and reported my after treatment side effects and they called me. We discussed what was going on and then this week my doctor's office called as Gilead contacted them. This is promising to know Gilead is actually following up.

I am still weak, fatigued and not my old self, but day by day a little more energy and improvement is happening so I am very hopeful

Just wanted to pass that on to all of you and encourage you to contact Gilead if you are experiencing negative health issues after treatment, in spite of being cured and having perfect blood work.

Enjoy your weekend!

Katie

Lynn K · « **Reply #456 on:** August 01, 2015, 11:32:01 pm »

Fortunately for me I had no side effects from Harvoni only from Ribavirin induced anemia which resolved quickly after I stopped the meds. Even on interferon and Ribavirin after treatment I am not aware of any sides from all 5 of my treatments.

Glad to hear Gilead is working with you how you are feeling better every day I know not everyone is as fortunate with side effects as I have been

Katie · « **Reply #457 on:** August 02, 2015, 12:01:49 am »

Thanks Lynn and I really find it strange myself as I felt great except for about 10 days on Harvoni and this has been worse than before treatment. I was expecting a thyroid issue or some other health problem beyond the tx but with how everything turned out, it has to be from the treatment. I have received many benefits from the treatment as well. One silly thing is, I have my eyelids back! All the puffiness is gone so I may just have to try makeup again (kidding)! No worries. I just keep marching forward. I felt reporting it was the right thing to do since others seem to be having issues as well and I still feel we are their final test group.

Good hearing from you and another congratulations on your results.

Katie

mario555 · « **Reply #458 on:** August 02, 2015, 08:02:09 am »

I had major side effects during 24 weeks treatment and now that I am 14 weeks post, I still have bouts of dizziness and sometimes I am feeling unwell overall. These sides would not bother me so much if I get cured,, I'll deal with them afterwards.
These sides seem to vary amongst the patients. During my Interferon trials, I had major sides and had to quit after 24 weeks on both trials. Some others like Lynn who just mentioned she had none were able to finish their treatments without being unduly bothered. For me, Harvoni is worth suffering through because of the much lower intensity of sides and much better chances to clear the virus.
Finally, the waiting game is what's killing me! My recovery hinges on my 12th week blood test and I have to wait 3-4 weeks for results. I am stuck wondering if I can get into my next step in life!

Camper · « **Reply #459 on:** August 02, 2015, 04:18:33 pm »

Katie you are not alone I was on harvoni for 21 wks. I was to take it for 24 wks. but doctors ended my treatment because of difficulty with my eyesight becoming very blurry and there was a concern for my safety driving. At 14 wks. I was found to be virus free, on the 18th. of August I am to have a blood test 5 wks. after treatment. Hopeing for the best, but as Katie I to have less energy than I did before treatment with harvoni, my blurry vision has cleared up some but still more blurry than it was before treatment. I do have less abdominal discomfort from what I had before treatment that is a big plus. Now it's just waiting for results when I have blood test on the 18th.

Katie · « **Reply #460 on:** August 02, 2015, 04:27:22 pm »

Camper, please report this to Gilead! The more they hear, the better for everyone. Good luck with your upcoming results and keep us posted.

Katie

lolacme · « **Reply #461 on:** August 02, 2015, 06:41:05 pm »

I feel for all of you post treatment who are not feeling well. It is disappointing to hear to say in the least. I have asked on 3 different forums basically what it's like to be cured and so far I have heard little results. When I do hear it is not positive and gives me little to look forward to. What I had hoped to learn is that people feel good after treatment and they are finally living a life with more energy(to the extent their liver injury will allow), less chronic illness depression and generalized pain not to mention other hep c symptoms. I am pissed in general. So we clear the virus but life is no better? I want more time with my family. I want to be able to go somewhere and not worry I am going to collapse from exhaustion. I wanna feel like I can study or work a full day like anyone else does without this freaking disease. Thank God we can clear the virus now but it sure as heck would be nice to know I was actually going to have some kind of life afterwards.

pmm · « **Reply #462 on:** August 02, 2015, 06:54:12 pm »

I finished my 8 weeks treatment on February 20 (successfully) and I did not feel good at all (high blood pressure, anxiety, etc.-which I never had, and just generally feeling crappy).

BUT beginning around the middle of June I finally started feeling normal and good-I have been going to gym 4x a week since then which I couldn't do from middle of treatment until mid-June. I have my old energy back and I am so grateful.

Just saying this hopefully to show that the crappy part doesn't last forever and hope that everyone's after effects go away sooner rather than later.

Pattie

Katie · « **Reply #463 on:** August 02, 2015, 06:56:34 pm »

Lola...many on this forum are having no issues and feel better than they have in a long time. Some who were feeling crappy after being cleared of the virus are now saying their energy has returned. It is very different for everyone so please don't assume you will not see improvement. I am not depressed by this as I am confident I will wake up one day and go WOW, this is what I've been waiting for. I am basically very healthy in all areas, no cirrhosis either, thyroid perfect all bloodwork good and take no medication so it is just strange that I feel this weakness. Like I said, each day I feel a bit better so please don't give up before you've started! My only health issue not related to treatment is joint issues, and each one of them is from an injury sustained due to the physical work I did 20 years ago. Osteo arthritis has set in but I have dealt with it for a decade so am used to it.

Good luck, be healed and here's to feeling brand new again!

Katie

motor · « **Reply #464 on:** August 02, 2015, 08:02:42 pm »

1. SVR12
2. 8wks
3. tx naive
4. 1a
5. F-2
6. 3.7M

As my doctor waved off the SVR4 test, it has been a long wait to be able to add my positive results to this thread, but count me in.

Katie · « **Reply #465 on:** August 02, 2015, 08:11:56 pm »

A wonderful way to start off this week Motor! Congratulations....You did it! Welcome aboard!

Katie

Mugwump · « **Reply #466 on:** August 03, 2015, 03:21:40 am »

Quote from: mario555 on August 02, 2015, 08:02:09 am

Finally, the waiting game is what's killing me! My recovery hinges on my 12th week blood test and I have to wait 3-4 weeks for results. I am stuck wondering if I can get into my next step in life!

Holy cow Mario is it starting to take a month to get HCV PCR test results back here in Canada. I guess it is time to invade the Cayman Islands take over the banks and get some of the gold and money many people have been squirreling away there since the Cons took the reigns. Maybe that way we can pay for a few more test kits and the people to use them.

I have my 12 week EOT PCR test happening on August ten and if it takes another month to know if I am clear I swear I will go crazy and start writing some satire songs about Canada and the CONS. Youtube does not discriminate, political satire is beneath me but I might get IN THE MOOD

(sorry Benny and the American music publishers but we Canadians might just have to resort to a little PIRACY)

I am back playing and writing song lyric and music libretto for the first time since I was in my teens so believe me I will do it!

Keep your stick on the ice!
Eric

GLCII · « **Reply #467 on:** August 03, 2015, 05:41:32 pm »

Hello Everyone.

I wish I could take credit for this work but the credit goe's to "Bixter" for taking the time to sort through the posts to bring us an updated stats page. Also, Thanks to Charly8 as well, for getting this thread started, where ever he may be.

PAPPY
1. 12 wk post EOT VL status - Detected VL 7.867179 RELAPSE
2. Treatment duration - 8 wks
3. tx naive or experienced - Unknown
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - Unknown
6. Initial VL (date) - Unkown

Lukey
1. 6 wk post EOT VL status - Detected VL of 782,040 RELAPSE
2. Treatment duration - 8 wks
3. tx naive or experienced - Tx naive
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - Unknown
6. Initial VL (date) - 5.7 mil

Juan_81
1. 12 wk post EOT VL status – SVR12
2. Treatment duration - 8 wks
3. tx naive or experienced - Tx naive
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - Unknown
6. Initial VL (date) – 47.000

PaulG
1. 12 wk post EOT VL status - Detected RELAPSE
2. Treatment duration - 8 wks
3. tx naive or experienced - Tx naive
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - Unknown (F3 12 years ago)
6. Initial VL (date) - 2.5 mil

Dragonslayer
1. EOT det 29, 7.5w EOT <12, 11w EOT UND – SVR12, SVR24
2. Treatment duration - 8 wks
3. tx naive or experienced - Tx naive
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - F0-F1 (2013)
6. Initial VL (date) - 2.4 mil

Momof3
1. 4 wk post EOT VL status – SVR4, SVR12
2. Treatment duration - 8 wks
3. tx naive or experienced - Tx naive
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status fibroscan jan -15: F0-F1
6. Initial VL (date) - 689,594

Connie
1. EOT 4w VL status – 6000 VL RELAPSE
2. Treatment duration - 8 wks
3. tx naive or experienced - Tx naive
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis: F2
6. Initial VL (date) – 700,000 (1996)

Valance
1. 12w after EOT: SVR12
2. Treatment duration - 8 wks
3. tx naive or experienced - ?
4. Genotype (1a or 1b) - ?
5. F1-F4 fibrosis: ?
6. Initial VL (date) – ?

DeeDee
1. 12w after EOT: SVR12
2. Treatment duration - 8 wks
3. tx naive or experienced - ?
4. Genotype (1a or 1b) – 1b
5. F1-F4 fibrosis: F0/F1
6. Initial VL (date) – ?

Reek34
1. EOT VL 1.1 mil (but decreasing alt), retest at 4w EOT UND: SVR4
2. Treatment duration - 8 wks
3. tx naive or experienced - naive
4. Genotype (1a or 1b) – 1b
5. F1-F4 fibrosis: ?
6. Initial VL (date) – 500.000

catniss
1. 6w after EOT: SVR6
2. Treatment duration - 8 wks
3. tx naive or experienced - ?
4. Genotype (1a or 1b) – ?
5. F1-F4 fibrosis: ?
6. Initial VL (date) – ?

ppm
1. 12 wk EOT VL status – SVR12
2. Treatment duration - 8 weeks
3. tx naive or experienced - naive
4. Genotype (1a or 1b) - 1b
5. F1-F4 fibrosis status (12/14) - F0
6. Initial VL (12/14) 4,700,000

superfreak
1.12 wk EOT VL status – SVR12
2. Treatment duration - 8 weeks
3. tx naive or experienced - ?
4. Genotype (1a or 1b) - ?
5. F1-F4 fibrosis status (12/14) - ?
6. Initial VL ?

MYCACHE
1. UD 4wk during treatment. 12wk EOT VL 100,000, RELAPSE
2. 8 weeks
3. tx naive
4. Genotype (1a)
5. F1 01/01/2014
6. Initial VL 100,000 12/1/2013

hope4cure
1. 12 w EOT SVR12
2. 8 weeks
3. tx naive
4. Genotype ?
5. F0-F4: ?
6. Initial VL ?

anniemybaby
1. 12 w EOT SVR12
2. 8 weeks
3. tx naive/experienced?
4. Genotype ?
5. F0-F4: ?
6. Initial VL ?

EleanorB
1. 4 w EOT SVR4
2. 8 weeks
3. tx naive/experienced?
4. Genotype ?
5. F0-F4: ?
6. Initial VL 500.000

Karen1124
1. 12 w EOT, 424.000 VL RELAPSE
2. 8 weeks
3. tx naive/experienced?
4. Genotype 1A
5. F0-F4: 2
6. Initial VL 2 mil

Tiger
1. 12 w EOT SVR12
2. 8 weeks
3. tx naive/experienced?
4. Genotype 1b
5. F0-F4: 2
6. Initial VL 500.000

grodeestok
1. 12 weeks eot undetected, SVR12
2. Tx 8 weeks
3. Tx naive
4. Geno 1a
5. F1 Jan 2015
6. 500,000 Jan 2015

Wilson
1. 18 weeks eot undetected, SVR18
2. Tx 8 weeks
3. Tx naive
4. Geno ?
5. F1-F2
6. 2 million

Espo2
8 wks post tx , undetected after 8 wk tx
Genotype 1b
Tx experienced
Initial VL 4.7m
F0

8 weeks treatment: 16/22 SVR = 72,7%

---------------------------------------------------------------------------------------------------------------

Here is the 12 week treatments:

Mm
1. 12 week EOT status – SVR12
2. Treatment duration - 12 weeks Harvoni
3. tx naive or experienced - experienced
4. Genotype (1a or 1b) – 1a
5. F1-F4 fibrosis status (date) – F2/F3
6. Initial VL (date) – 5.9 mil

Nicole_1234
1. 12 wk Post EOT VL status – SVR12, SVR18
2. Treatment duration - 12 wks
3. tx naive or experienced - Tx experienced
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - unknown
6. Initial VL (date) - 0.65 mil

JillLynn
1. 12 wk post EOT VL status – SVR12
2. Treatment duration - 12 wks
3. tx naive or experienced - Tx experienced
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - F2
6. Initial VL (date) - 1.5 mil

Kate0b1
1. 12 wk Post EOT VL status – SVR12
2. Treatment duration - 12 wks
3. tx naive or experienced - tx experienced
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - unknown
6. Initial VL (date) - unknown

Katie
1. EOT det >15, 8 wk Post EOT VL– SVR8, SVR16
2. Treatment duration - 12 wks
3. tx naive or experienced - tx naive
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - no cirrhosis
6. Initial VL (date) - 2.6 mil

Islandgirl
1. 4 wk Post EOT VL status – SVR4
2. Treatment duration - 12 wks
3. tx naive or experienced - tx naive
4. Genotype (1a or 1b) - 1b
5. F1-F4 fibrosis status (date) - unknown
6. Initial VL (date) - unknown

JoeK9999
1. 12 wk Post EOT VL status – SVR12, SVR24
2. Treatment duration - 12 wks
3. tx naive or experienced - tx naive
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - F0-F1 (2012)
6. Initial VL (date) - 3.8 mil

Long_Haul
1. 12 wk Post EOT VL status – SVR12
2. Treatment duration - 12 wks
3. tx naive or experienced - tx experienced
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - F4 (2000)
6. Initial VL (date) - NA

terih
1. 3 wk Post EOT VL status – Det. 414,111 - RELAPSE
2. Treatment duration - 12 wks
3. tx naive or experienced - tx naive
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - F2-F3 (11/2014)
6. Initial VL (date) - 2.56 mil (11/2014)

marv777
1. 12 wk Post EOT VL status – SVR12
2. Treatment duration - 12 wks
3. tx naive or experienced - tx experienced
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - F1
6. Initial VL (date) - 6 mil

Paleface
1. 12 wk post EOT VL status – SVR12
2. Treatment duration - 12 weeks
3. tx naive or experienced - TX experienced
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - F1-F2
6. Initial VL (date) - 5.7 mil

Cally Balmoral
1. 12 wk post EOT VL status – SVR12
2. Treatment duration - 12 weeks
3. tx naive or experienced - TE
4. Genotype (1a or 1b) - Unknown
5. F1-F4 fibrosis status (date) - Unknown
6. Initial VL (date) – Unknown

Jonny_Wayne
1. 12 wk post EOT VL status 1,7 million - RELAPSE
2. Treatment duration - 12 weeks
3. tx naive or experienced - ?
4. Genotype (1a or 1b) – 1a
5. F1-F4 fibrosis status (date) – F4
6. Initial VL (date) – Unknown

DLedin
1. 12 wk post EOT VL status - SVR12
2. Treatment duration - 12 weeks
3. tx naive or experienced - TX naive
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - F1
6. Initial VL (date) – unknown

Dandelion
1. 4 wk post EOT VL status - 510000 RELAPSE
2. Treatment duration - 12 weeks
3. tx naive or experienced - TX naive
4. Genotype (1a or 1b) - 1b
5. F1-F4 fibrosis status (date) - F2-F4 Fibrosure
6. Initial VL (date) - 6.5 mil

Anand
1. 12 wk post EOT VL status – SVR12
2. Treatment duration - 12 weeks
3. tx naive or experienced - TX naive
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - F3
6. Initial VL (date) - 1.18 mil

Mikee
1. 12 wk post EOT VL status – SVR12
2. Treatment duration - 12 weeks
3. tx naive or experienced - TE
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - ?
6. Initial VL (date) – 2.8 mil

Mike Cornwell
1. 4 wk post EOT VL status – SVR4
2. Treatment duration - 12 weeks
3. tx naive or experienced - ?
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - F3
6. Initial VL (date) – 11 mil

007GUY
1. post EOT VL status – SVR4, SVR12
2. Treatment duration - 12 weeks
3. tx naive or experienced - TE
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - ?
6. Initial VL (date) – ? mil

KATE101
1. 6 wk post EOT VL status – SVR6
2. Treatment duration - 12 weeks
3. tx naive or experienced - TE
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) – F2
6. Initial VL (date) – 1,5 mil

MEG
1. post EOT VL status – SVR4, SVR12
2. Treatment duration - 12 weeks
3. tx naive or experienced –
4. Genotype (1a or 1b) - 1a, TT
5. F1-F4 fibrosis status (date) – F0
6. Initial VL (date) – 2 mil

workingonit
1. 12 wk post EOT VL status – SVR12
2. Treatment duration - 12 weeks
3. tx naive or experienced - ?
4. Genotype (1a or 1b) - ?
5. F1-F4 fibrosis status (date) - ?
6. Initial VL (date) – ? mil

HCVDX30
1. 12 wk post EOT VL status – SVR12
2. Treatment duration - 12 weeks
3. tx naive or experienced - naive
4. Genotype (1a or 1b) – 1a
5. biopsy 2013 F4
6. Initial VL (date) – ? mil

Charly8
1. 4 wk post EOT VL status – SVR4
2. Treatment duration - 12 wks
3. tx naive or experienced - Tx Experienced
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status - Fibrosure- F3 (Dec 2014), Fibroscan F0-F1 (Mar 2015)
6. Initial VL (date) - 1.05 Mil (Dec 2014)

Bituman
1. Post tx results: SVR4, SVR12
2. Treatment duration - 12 wks
3. tx naive or experienced - Tx naive
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status - biopsy- F1 (2007)
6. Initial VL (date) – 3.59 Mil (jan 2015)

ROGER
1. 4wk - UND / 12 wk – UND, SVR12
2. Treatment duration - 12 weeks
3. tx naive
4. Genotype 1a
5. F3 fibrosis status - 11/21/2014
6. Initial VL - 313,593 11/21/2014

MARNIE
1. 4wk EOT VL status = SVR4
2. Treatment duration = 12 weeks Harvoni
3. Experienced
4. Genotype 1a
5. F1 fibrosis status (Jan 2015)
6. Initial VL 1.1million Dec 2014

BOB V
1. 12wk EOT VL status = SVR12
2. Treatment duration = 12 weeks Harvoni
3. Experienced
4. Genotype 1a
5. normal liver by ultrasound 2014
6. Initial VL 3,5 million

Perca05
1. 4WK EOT VL: 20 (AST 19 ALT 15), 12 WK (AST 20 ALT 15), SVR12
2. Treatment duration: 12 Weeks
3. tx naive or experienced: Experienced
4. Genotype (1a or 1b): 1a
5. F1-F4 fibrosis status (date): not known
6. Initial VL (date): Starting VL was 4.5 million

TerryLF
1. 2w EOT VL status: 120 = RELAPSE?
2. Treatment duration = 12 weeks Harvoni
3. naive
4. Genotype: ?
5. F4
6. Initial VL: 100.000

Junkyard
1. 4wk EOT VL status = SVR4
2. Treatment duration = 12 weeks Harvoni (plus riba)
3. Experienced
4. Genotype 1a
5. Liver status: ?
6. Initial VL 960.000

CHepCFree
1. 4wk - 12 wk EOT VL status – SVR4?
2. Treatment duration - 12 weeks
3. tx naive or experienced - naive
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - F0-F1
6. Initial VL (date) 7,200,000

Ollie
1. 12 wk EOT VL status – SVR12
2. Treatment duration- 12 weeks
3. tx naive or experienced-naive
4. Genotype (1a or 1b)- 1a
5. F1-F4 fibrosis status (date) F1 -1/08
6. Initial VL (date) 600,000 when starting Harvoni in Dec. 2014

texasone
1. 4 wk and 5 w EOT VL status – RELAPSE
2. Treatment duration- 12 weeks
3. tx naive or experienced-naive: ?
4. Genotype (1a or 1b)- 1a
5. F1-F4 fibrosis status (date) ?
6. Initial VL (date) ?

Tutu
1. 12w EOT– SVR12
2. Treatment duration- 12 weeks
3. tx naive or experienced: naive
4. Genotype 1b
5. F1-F4 fibrosis status: F3
6. Initial VL (date) ?

Grateful 52
1. 4wk EOT VL status SVR4
2. Treatment duration 12 weeks
3. tx naive
4. Genotype (1a)
5. F1-F4 fibrosis status unknown, ultrasound only- showed nothing
6. Initial VL -1 mil in mid 2014, likely infected 1972.

Atomic dog
1. 4wk EOT VL status SVR4
2. Treatment duration 12 weeks
3. tx naive
4. Genotype (1a)
5. F1-F4: F2
6. Initial VL -1,5 million

HHburme
1. 12wk EOT VL status: 3 million RELAPSE
2. Treatment duration 12 weeks
3. tx naive
4. Genotype (1a)
5. F1-F4: F2
6. Initial VL -1,5 million

Barbs
1. 12 week EOT status – SVR12
2. Treatment duration - 12 weeks Harvoni + Ribavirin
3. tx naive or experienced - tx experienced
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) - F2
6. Initial VL (date) - Nov 2014 - 1.8 million

amy1662
1. 12 week EOT status – SVR12
2. Treatment duration - 12 weeks Harvoni
3. tx naive or experienced - tx experienced
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) – F1/F2
6. Initial VL (date) - ?

Coloradogirl
1. 4 week EOT status – SVR4
2. Treatment duration - 12 weeks Harvoni
3. tx naive or experienced - ?
4. Genotype (1a or 1b) - 1a
5. F1-F4 fibrosis status (date) – ?
6. Initial VL (date) – 580.000

Bestmomy
1. 12 week EOT status – SVR12
2. Treatment duration - 12 weeks Harvoni
3. tx naive or experienced - tx experienced
4. Genotype (1a or 1b) – 1b
5. F1-F4 fibrosis status (date) – ?
6. Initial VL (date) – 1,8 mil

Karen3717
1. 4 week EOT status – SVR4
2. Treatment duration - 12 weeks Harvoni
3. tx naive or experienced - tx experienced
4. Genotype (1a or 1b) – 1a
5. F1-F4 fibrosis status (date) – F2
6. Initial VL (date) – 316.000

GLCII
1. 4 week EOT status – SVR4
2. Treatment duration - 12 weeks Harvoni
3. tx naive or experienced - experienced
4. Genotype (1a or 1b) – 1a
5. F1-F4 fibrosis status (date) – F2/F3
6. Initial VL (date) – 12 mil

Pete
1. 4 week EOT status – VL 3361 RELAPSE
2. Treatment duration - 12 weeks Harvoni
3. tx naive or experienced - ?
4. Genotype (1a or 1b) – ?
5. F1-F4 fibrosis status (date) – ?
6. Initial VL (date) – ?

tm
1. 4 week EOT status – SVR4
2. Treatment duration - 12 weeks Harvoni
3. tx naive or experienced - ?
4. Genotype (1a or 1b) – 1b
5. F1-F4 fibrosis status (date) – ?
6. Initial VL (date) – ?

moma
1. 12 week EOT status – SVR12
2. Treatment duration - 12 weeks Harvoni
3. tx naive or experienced - ?
4. Genotype (1a or 1b) – ?
5. F1-F4 fibrosis status (date) – ?
6. Initial VL (date) – ?

Mike2
1. 7 wk EOT VL status Undetected!!! SVR7
2. Treatment duration: 12 weeks
3. tx naive
4. GT ?
5. fibrosis: ?
6. Initial VL:?

gug
1.12 wk EOT VL SVR12
2. Treatment duration: 12 weeks
3. tx naive/experienced:?
4. GT 1A
5. fibrosis: 1-2
6. Initial VL:46 million

belgianista
1.6 wk EOT VL SVR6
2. Treatment duration: 12 weeks
3. tx naive/experienced: TE
4. GT ?
5. fibrosis: Fibrosure F4, Fibroscan F0/F1
6. Initial VL:?

icantwait
1.12 wk EOT VL SVR12
2. Treatment duration: 12 weeks
3. tx naive/experienced: ?
4. GT 1
5. fibrosis: F3
6. Initial VL: 3,5 mill

amy1662
1.12 wk EOT VL SVR12
2. Treatment duration: 12 weeks
3. tx naive/experienced: exp
4. GT 1a
5. fibrosis: F1-F2
6. Initial VL: ?

Bixter
1. 6 w post EOT: SVR6
2. Harvoni 12 weeks
3. Tx experienced
4. 1a
5. F3
6. 1.8 M

mdj
1. 4wk EOT VL: SVR4
2. Treatment duration-12 weeks
3. tx naive
4. Genotype 1a
5. fibrosis status F3/F4
6. Initial VL (2.1million/Oct 2014; retest 700,000/March 2015)

SunisOut
1. 4w EOT und, 8wk EOT VL: 270, RELAPSE?
2. Treatment duration-12 weeks plus riba
3. tx naive
4. Genotype 1a
5. fibrosis status F4, A3
6. Initial VL 5.9 m

apache
1. 4wk EOT VL: SVR4
2. Treatment duration: 12 weeks
3. tx naive
4. Genotype 1a
5. fibrosis status: F0-1
6. Initial VL: 2.94 million

xkilo
1. 12wk EOT VL: SVR12
2. Treatment duration: 12 weeks
3. tx experienced
4. Genotype 1a
5. fibrosis status: F3 (Jan2015)
6. Initial VL: 13 million (Jan 2015)

PatEquack
1. 12 wk post EOT VL status – SVR12
2. Treatment duration - 12 weeks
3. tx naive or experienced - TX experienced
4. Genotype (1a or 1b) - 1a
5. F1-
6. Initial VL (date) - 3 mil

Blue
Undetected 12 week post EOT
Tx experienced
1b
F1
Initial VL 4.8

motor
1. SVR12
2. 8wks
3. tx naive
4. 1a
5. F-2
6. 3.7M

12 weeks treatment: 53/60 = 88,3%

mario555 · « **Reply #468 on:** August 03, 2015, 05:56:34 pm »

GLCII, Bixter, Charly8. Thank you very much for all the thoughts and effort to keep us informed on the group status. It's really appreciated and it helps keep everyone hopes up! Kudos to you!

Katie · « **Reply #469 on:** August 03, 2015, 06:28:39 pm »

Good Job guys! Thank you!
I noticed a couple not listed. Is this because they went the 24 weeks?

Lynn K · « **Reply #470 on:** August 03, 2015, 08:31:43 pm »

Yeah what about the 24 week treaters am I the only one reporting in so far?

But thanks for your efforts GLCII and all who helped compile the list

Has anyone crunched the percentages of this unscientific poll?

Katie · « **Reply #471 on:** August 03, 2015, 08:41:48 pm »

I believe there are a couple more, Lynn. MEL for one. Ma too.

mario555 · « **Reply #472 on:** August 03, 2015, 08:43:20 pm »

I'm a 24 weeks and I did report SVR 4 undetected. I am waiting for my 12 weeks test results soon.

motor · « **Reply #473 on:** August 03, 2015, 09:23:58 pm »

Great job, guys, but I belong in the 8wk treatment group.

Bixter · « **Reply #474 on:** August 04, 2015, 06:19:42 am »

Hi Lynn, Katie and Mario!
Here's what I have about other than 8 and 12 week treatments:

16 weeks:

SAM1224
3.5 wk undetected post treatment - SVR3,5, SVR12
16 weeks Harvoni
tx naive or experienced: naive
Gt 1b
F4 fibrosure 2014
6. Initial VL: 3million 2014

jacattack
SVR4 – 13w eot <15 deteced RELAPSE?
16 weeks Harvoni
tx naive
Gt:?
Fibrosis status: ?
VL: ?

16 weeks treatment: 1/2 = 50%?

20 weeks:

cate
1. 4wk EOT VL status = SVR4
2. Treatment duration = 20 weeks Harvoni
3. naive
4. Genotype 1a
5. early cirrhosis
6. Initial VL 2,5 million

20 weeks treatment: 1/1 = 100%

24 weeks:

ma snart
1. 8wk EOT VL status = SVR8
2. Treatment duration = 24 weeks Harvoni
3. Experienced/naive; ?
4. Genotype 1b
5. Fibrosis status: ?
6. Initial VL 8,5 million

Lynn K
1. post EOT VL status: SVR4, SVR12
2. Treatment duration Harvoni 24 weeks, Ribavirin 15 weeks
3. tx naive or experienced: Experienced (5th treatment)
4. Genotype: 1a
5. F1-F4 fibrosis status: F4 Cirrhosis 01/08 Biopsy
6. Initial VL: ?

mario555
1. 4wk after EOT VL status: SVR4
2. Treatment duration Harvoni 24 weeks,
3. tx naive or experienced: Experienced (3rd treatment)
4. Genotype: 1a
5. F1-F4 fibrosis status: F4
6. Initial VL: 8 mill

mikeyman
1. 12wk after EOT VL status: SVR12
2. Treatment duration Harvoni 24 weeks,
3. tx naive or experienced: Experienced (3rd treatment)
4. Genotype: 1
5. F1-F4 fibrosis status: F4
6. Initial VL: 1,529,773

24 weeks treatment: 4/4 = 100%

Bixter · « **Reply #475 on:** August 04, 2015, 06:27:06 am »

Katie, I did not include Mel because she was first on another treatment and then switched to Harvoni.

Junkyard · « **Reply #476 on:** August 04, 2015, 01:02:10 pm »

Just got my 12 week labs back!! Count another one down. Undetected and no anemia, blood counts are normal, AST is a little high but stable.
Dr. said I will see you in 12 weeks.
Wow, this is overwhelming. I just did not think it would ever happen.

Mugwump · « **Reply #477 on:** August 04, 2015, 01:12:43 pm »

Quote from: Bixter on August 04, 2015, 06:19:42 am

Hi Lynn, Katie and Mario!

24 weeks treatment: 4/4 = 100%

Thanks Bix. I hope to add my name to that list fairly soon as soon as Canada can afford a few more test kits. Either that or mortgage my house and go down to the states for more frequent vl testing. ARRRGGGHHHH!
Eric

Katie · « **Reply #478 on:** August 04, 2015, 02:09:24 pm »

Quote from: Bixter on August 04, 2015, 06:27:06 am

Katie, I did not include Mel because she was first on another treatment and then switched to Harvoni.

Thanks Bixter. I just didn't want anyone left out after everything they went through. This took some time and something I was actually thinking about doing but didn't follow through. You ROCK! Thanks again.

Katie

lolacme · « **Reply #479 on:** August 04, 2015, 02:43:02 pm »

Now please want some describe what it feels like to be hep c freeing listening. I want to know would love to know I can get my life back.. Really depresses on last
Reese weeks of treatment need positives proud of all of you

ma snart · « **Reply #480 on:** August 04, 2015, 05:20:46 pm »

Just got Helen's SVR12 results, NOT DETECTED!!!!
after 25 year or so, failed interferon treatment, viral loads in the millions, f4 cirrhosis, and now CURED,,,,,
Wow
You guys have been a great source of info, will keep you posted as the months progress now.

mario555 · « **Reply #481 on:** August 04, 2015, 08:58:46 pm »

I don't think I have seen anyone reaching SVR4 and then relapsing between week 5 and 12. Am I wrong? If there is no one, does that mean SVR4 would be the end point?
Anyone who knows somebody who got to be UND and then relapsed "after"?

Katie · « **Reply #482 on:** August 04, 2015, 09:35:18 pm »

I think there was someone but would have to do a lot of searching. Give me some time on that. I could be wrong.

Katie · « **Reply #483 on:** August 04, 2015, 10:22:17 pm »

I hadn't seen this post before and I don't like it (however not sure if that is a 24 wk post test or the 12 week post):
As a follow up to a conversation I had with Charly8: My doctor started treating her first batch of 70 patients with Harvoni at the end of 2014, so they are now taking their 24 week labs. All 70 arrived at undetected by week 12, but today she told me only 1 of them has relapsed. So I guess it happens - there are some people with resistance. Luckily, there are new drugs on the way, so even for those, there is still hope.

Lee
+++++++++++++++++++++++++++++++++
I have found a couple who relapsed who were UND during tx or EOT but did not have a 4 or 8 week test but went for 12 wk post and were DETECTED.

Maybe someone else has better information for you.

I believe the 12 week is the one to be concerned with due to the replication time but heck, to have consistent UD test results is a great trend so don't worry too much. Waiting always brings about doubts. It is normal.

Katie

Lynn K · « **Reply #484 on:** August 05, 2015, 02:29:51 am »

lola
To me being hep c free means not having to feel toxic and a danger to others if I get cut at work I work in a machine shop.

Being free means I can expect to likely have a normal life span and die from something other than my advanced liver disease.

Being cured means my liver cirrhosis wont progress and I will likely not need a liver transplant in the future or suffer a slow death from liver disease.

Being free means having my life to live again and not wondering when I will go into liver failure and totally lose any quality of life

Being cured means being free from fear of early death

So was treatment worth it to me? oh yes absolutely without a doubt!

lolacme · « **Reply #485 on:** August 05, 2015, 12:54:08 pm »

Thank you for helping me out things in perspective Lynn k. I honestly think riba rage has taken a toll on me and I have been more negative than I normally would be

Bituman · « **Reply #486 on:** August 05, 2015, 04:31:26 pm »

Quote from: Lynn K on August 05, 2015, 02:29:51 am

lola
To me being hep c free means not having to feel toxic and a danger to others if I get cut at work I work in a machine shop.

Being free means I can expect to likely have a normal life span and die from something other than my advanced liver disease.

Being cured means my liver cirrhosis wont progress and I will likely not need a liver transplant in the future or suffer a slow death from liver disease.

Being free means having my life to live again and not wondering when I will go into liver failure and totally lose any quality of life

Being cured means being free from fear of early death

So was treatment worth it to me? oh yes absolutely without a doubt!

This is one of the most powerful posts on this entire message board.

Bob

Mugwump · « **Reply #487 on:** August 07, 2015, 01:44:26 am »

Well it looks like my liver is in better shape than it has been in a very long time.
I will not know for certain until the last week in August if I am SVR 12 though.
But with this liver panel that only has minor anomalies in bilirubin but the conjugated fine I am not too concerned.

Albumin 45 35-50 g/L

Total Bilirubin A 21 <20 umol/L

Conjugated Bilirubin 6 <8 umol/L

Alkaline Phosphatase 69 48-138 U/L

Gamma GT 35 <59 U/L

ALT 26 <60 U/L

AST 30 <35 U/L

Thyroid Function

TSH A 4.3 0.27-4.2 mU/L

So there is most likely no more damage going on from HCV. But we will see. The tsh being up does not mean squat though because last month it was in the low 3s so that med is not an issue.

I promise something special if I am svr 12

Cheers and tears
Eric

PS
And kudos to you Lynn for describing what it means to be free of the Dragon. For me as well as possibly working productively again, it also means that my dreams of effectively performing the music I love after I retire might come true!

Lynn K · « **Reply #488 on:** August 07, 2015, 02:03:11 am »

Great news Eric looking good!

Awww shucks thanks Bob and Eric

I too have dreams of post retirement career change.

Now I have a possibility to live long enough to try to reach for the sky!

kate0b1 · « **Reply #489 on:** August 09, 2015, 08:36:54 am »

hey guys, I've been mia for a while but this thread makes me so happy, thanks for keeping up with this, its a lot of work (really happy its not me doing it), but its so important for us to know where we all stand and how far we have come. thanks again and congrats to all us

PS anyone heard from mel?

kate

baffled5555 · « **Reply #490 on:** August 09, 2015, 11:32:53 pm »

Hi, just wanted to post my results. I've been watching for awhile. I did 12 wks of Harvoni. 1b, F4. 4wks. post..undetected. Will check in the last wk. of Sept. for post 12 wk. results.

terih · « **Reply #491 on:** August 10, 2015, 11:31:20 am »

Baffled, Congrats on the 4wk. SVR!! That is great news! Hope you are feeling well and life is rocking right along for you! Teri

baffled5555 · « **Reply #492 on:** August 10, 2015, 12:05:05 pm »

Thank you..I'm still afraid of relapsing, but happy for now. I'm so sorry you didn't make it..It's been hard watching people relapse and knowing how they must be feeling. I'm doing better now.I hope you have plenty of time to find a new treatment. Good luck!!!!!

cate · « **Reply #493 on:** August 12, 2015, 08:15:26 pm »

Hello everyone,

I just learned today that I am CURED. I am a little overwhelmed with emotion at the moment, and you guys are the first to know. Thanks to every one of you for sharing your stories and experiences, good and bad. I feel a great deal of compassion for this group even thought I didn't say much along the way.

Love to you!

cate

Katie · « **Reply #494 on:** August 12, 2015, 08:45:30 pm »

Cate! Whoopppeeee! Congratulations and it's time to Celebrate your success! So do something wonderful for yourself. Get a massage or go fishing or buy yourself some flowers; whatever you enjoy!

It is wonderful to see our brothers and sister's starting their new life and important to encourage those who will need to try again. This forum is such an important part of this treatment, so stay in touch!

Katie

Downnout · « **Reply #495 on:** August 13, 2015, 12:26:07 pm »

Quote from: Cally Balmoral on May 20, 2015, 05:39:55 pm

Thanks all for the encouragement. I hope that we all get our lives back. I had a liver transplant 10 years ago and had hoped that was the end of the hepc. But it was back in 6 mos. But with Harvoni its going to be different for all of us I hope. Being positive and sharing with each other, in my mind, is the most important thing for all of us.

Hey Cally, You're the first one I've seen on this site who's had a transplant, like me. Are you taking or did you take ribavirin,also. I've read on Drugs.com that it may have bad side effects when mixed with cyclosporin... My immunosuppressant. Riba has about 5 pages of side effects. I'm in the middle of my 5th week of Solvaldi and riba and my last Btest said <15 and "Not Detected" I called Gilead and they transferred me to a support nurse and she stated she'd never heard of anyone taking the meds post transplant. After we hung up she called me right back and wanted my address and everything...LOL!

Had my transplant in 2011. Best wishes....

slw304 · « **Reply #496 on:** August 13, 2015, 01:31:53 pm »

1. 10 wk EOT VL status - Undetected!
2. 8 wks
3. tx naive
4. Genotype 1a
5. F1 - Biopsy November 2014
6. Initial vl 900,000 - November 2014

Was worried I had possibly relapsed due to continuing discomfort in my right ribs. I took my lab order in to get results early because I was tired of waiting and worrying. I am happy to report these results and will follow up with doc in Sept as told and will ask him then about when I should do a follow up test.

davidsconfused · « **Reply #497 on:** August 13, 2015, 01:58:00 pm »

Another one bites the dust. I got my 12 weeks after treatment results this morning and UND. This was my first test since the EOT test which was UND so I've been sweating for a while waiting for results. Over 40 years of Hep C gone and it looks like I got out without major liver damage.

1. EOT - UND / 12 wk – UND, SVR12
2. Treatment duration - 12 weeks
3. TX Native
4. Genotype 1b

longtrip · « **Reply #498 on:** August 13, 2015, 02:34:14 pm »

No numbers sorry. I'm 4 1/2 months past the end of my 12 week treatment and my status is undetected. I'll post numbers tomorrow.

Katie · « **Reply #499 on:** August 13, 2015, 03:18:43 pm »

I love all of the numbers coming in! Congratulations to all of you!

Katie

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