Author Topic: After tx (POST) 4wk or 12 wk SVR results (Harvoni only) - CHECK IN HERE PLEASE! (Read 755796 times)

Bree · « **Reply #1000 on:** December 29, 2015, 02:38:47 pm »

I'm so happy for you Debula!!! Hip Hip Hooray!

slats1056 · « **Reply #1001 on:** December 29, 2015, 10:36:00 pm »

BIG OL' TEXAS SALUTE TO GNATTY AND DEBULA ON SVR12. Just getting caught up from X-mas. HAPPY,HAPPY,HAPPY for You guys!

Alexa · « **Reply #1002 on:** January 01, 2016, 12:42:44 pm »

Quote from: Alexa on December 27, 2015, 01:36:16 pm

1. 12 week treatment Harvoni
2. Treatment naive
3. Genotype 1a
4. Fibrosis F0-F1, waiting for insurance (Blue Cross Blue Shield) for almost a year, increased to F1-F2 in nine months.
5. Last pill Dec. 16, 2015
6. Initial viral load 2.4 million Sept. 2014
7. Undetectable at 4, 8 and 12 weeks (under the umbrella of Harvoni)

Sorry. This is not the information requested. Unsure how to delete this post.

Lynn K · « **Reply #1003 on:** January 01, 2016, 09:23:02 pm »

No worries Alexa congrats on finishing treatment!

Just come back later and post your updates if you like

Happy New Year

jiff · « **Reply #1004 on:** January 04, 2016, 12:28:48 am »

Harvoni 12 wk tx
TX NAIEVE
Genotype 1a
fibroscan 1-2(2008)
initial VL 166,000
4 weeks EOT UNDETECTED
12 weeks EOT UNDETECTED
beyond words is all I can really say about my experience/end results from harvoni!!

Bree · « **Reply #1005 on:** January 04, 2016, 12:42:14 am »

Quote from: jiff on January 04, 2016, 12:28:48 am

Harvoni 12 wk tx
TX NAIEVE
Genotype 1a
fibroscan 1-2(2008)
initial VL 166,000
4 weeks EOT UNDETECTED
12 weeks EOT UNDETECTED
beyond words is all I can really say about my experience/end results from harvoni!!

Congrats Jiff! And, I agree with you... beyond words too!

jiff · « **Reply #1006 on:** January 04, 2016, 01:28:01 am »

Awesome Bree!!!! Almost surreal to me even though I got my 12 week EOT results 11/17/2015,feels like a dream come true and my own little slice of heaven!!! Congratulations on your results!!!!!! I'm so struggling with insomnia but I don't think I can attribute it to anything harvoni related.....any word on possible long term effects of harvoni tx?

?

Lynn K · « **Reply #1007 on:** January 06, 2016, 03:34:11 am »

Hard to have much in the way of long term data as no one has taken Harvoni very far in the past.

I assume even the first patients who took Harvoni in clinical trials were only in the last few years The earliest reference I found to ledipasvir and sovaldi in the electron clinical trial was from March 2013.

So as far as long term effects I expect we pioneers will be the first to know if there is anything to worry about.

But for folks like me with cirrhosis I was beginning to be doubtful I would still be alive in 5 years without these new meds so I am not worried about any post treatment effects other than being able to grow old and die from something other than liver disease.

Best to all dragon slayers
Lynn

Camper · « **Reply #1008 on:** January 06, 2016, 08:35:14 pm »

I most likely was infected with Hep C when I was 18 my Doctor told me life expectancy with the virus is 15 years in a undeveloped country and 30 years in a developed country. I am 61 years old now so every year I lived past 48 years old I was thankful. At times I wasn't sure if I would live much longer but the years went by and survived long enough for a cure to be found. My prayers have been answered and long term side effects I don't think about much. Just thankful to be alive and that I feel better than I did.

sickpuppy · « **Reply #1009 on:** January 08, 2016, 08:13:15 am »

I just got the news! I'm SVR12! WOHOOOOO!

slats1056 · « **Reply #1010 on:** January 08, 2016, 10:51:07 am »

Allright, another dragon bites the dust. Great news!

Here is to Your increased good health and a Happy Liver!

Philadelphia · « **Reply #1011 on:** January 08, 2016, 11:15:09 am »

Congratulations!

Else · « **Reply #1012 on:** January 08, 2016, 12:27:20 pm »

Huge congrats to all you SVR12'ers!!!

Lynn K · « **Reply #1013 on:** January 09, 2016, 04:24:14 am »

Another one bites the dust!

Fantastic news congrats!

concerned father · « **Reply #1014 on:** January 10, 2016, 01:46:08 pm »

My daughter is going for her 12 week EOT blood test tomorrow. She was undetected at 4 weeks during treatment and I hope it remains the same. We will know in 10 days, we have our fingers crossed.

Else · « **Reply #1015 on:** January 10, 2016, 01:57:01 pm »

Best to you and your daughter! Keep us posted.

Ruthie · « **Reply #1016 on:** January 11, 2016, 02:20:15 am »

I just wanted to check in and let everyone know that I still have SRV 9 months after EOT!

gnatcatcher · « **Reply #1017 on:** January 11, 2016, 06:29:50 am »

Good to hear -- thanks and congratulations!

beto · « **Reply #1018 on:** January 11, 2016, 09:10:59 am »

Thanks Ruthie,

Such great news...gives us all even more hope. How are you feeling?

Else · « **Reply #1019 on:** January 11, 2016, 09:49:49 am »

Thanks for posting, Ruthie. Extra hope always needed and appreciated!!!

HazelAustralia · « **Reply #1020 on:** January 12, 2016, 05:31:25 am »

Quote from: Cute on December 24, 2015, 03:38:05 am

Honestly, I am so tired. I have been supporting mother in fight with with Hep C more than 8 years. During this period Hep C virus always has won the battle. Harvoni is our hope, otherwise, we have to wait long for a new medicine.

By the way, mother is so depressed. I have never seen such hopeless eyes:(((((
Good luck all of us.

Hi Cute,

I am wondering how you are, it's hard being a carer sometimes,

Hazel

BDK · « **Reply #1021 on:** January 12, 2016, 05:00:55 pm »

Hi all - haven't posted for ages, just checked in and seeing some undetected results - woohoo! (Saw yours Else - haha, way to go!). I was undetected at EOT week 4 and just had my EOT 12 (but it's more like 13 1/2) bloods drawn today. The hep doc said that week 4 is the important one, because 98% of people who are undetected then will remain undetected. He said of 300 patients he's treated with Harvoni, only 1 has relapsed.

He also said that insurance is now covering earlier stages of fibrosis but I don't know how true that is.

Good luck for 2016, everyone!

gnatcatcher · « **Reply #1022 on:** January 12, 2016, 05:08:32 pm »

Hi, BDK -- good to hear from you again. Your numbers are looking mighty fine.

Yes, it's newly true for 2 major insurers -- see this thread:
http://forums.hepmag.com/index.php?topic=3797.0

Gnatty

Else · « **Reply #1023 on:** January 12, 2016, 06:52:25 pm »

Quote from: BDK on January 12, 2016, 05:00:55 pm

Hi all - haven't posted for ages, just checked in and seeing some undetected results - woohoo! (Saw yours Else - haha, way to go!). I was undetected at EOT week 4 and just had my EOT 12 (but it's more like 13 1/2) bloods drawn today. The hep doc said that week 4 is the important one, because 98% of people who are undetected then will remain undetected. He said of 300 patients he's treated with Harvoni, only 1 has relapsed.

He also said that insurance is now covering earlier stages of fibrosis but I don't know how true that is.

Good luck for 2016, everyone!

So great to see your name pop up!!!

It sounds like you've got the 12wk EOT in the bag! Congratulations and, as always, thank you, thank you, thank you. I really had about given up.

So remember, kids - appeal, appeal and appeal again.

concerned father · « **Reply #1024 on:** January 14, 2016, 02:05:02 pm »

GREAT NEWS, my daughter has received a call from her nurse to say that she is SVR 12. She is cured from this virus. She is 21 years old and has all her life in front of her. Miracles do happen. The computer screen is very blurry as I'm crying while writing this. Life is beautiful. Thank you everyone for your support.

gnatcatcher · « **Reply #1025 on:** January 14, 2016, 02:11:01 pm »

What a weight off your shoulders, and what a joy for all of us to read! -hope you'll still visit the forums and encourage other parents of young people in a similar situation.

Else · « **Reply #1026 on:** January 14, 2016, 02:19:41 pm »

Huge congratulations, Father. To both you and your daughter!!!

KimInTheForest · « **Reply #1027 on:** January 14, 2016, 02:25:16 pm »

Quote from: concerned father on January 14, 2016, 02:05:02 pm

GREAT NEWS, my daughter has received a call from her nurse to say that she is SVR 12. She is cured from this virus. She is 21 years old and has all her life in front of her. Miracles do happen. The computer screen is very blurry as I'm crying while writing this. Life is beautiful. Thank you everyone for your support.

Fabulous news, concerned father!! Congrats to your daughter and to you.

kim

concerned father · « **Reply #1028 on:** January 14, 2016, 02:32:49 pm »

Quote from: gnatcatcher on January 14, 2016, 02:11:01 pm

What a weight off your shoulders, and what a joy for all of us to read! -hope you'll still visit the forums and encourage other parents of young people in a similar situation.

I will always visit this site, you guys were great to me during this period.

beto · « **Reply #1029 on:** January 14, 2016, 02:41:30 pm »

Wow...how wonderful. I bet it put a smile on your daughters face. Tell her Beto says congrats!!!

jakas · « **Reply #1030 on:** January 14, 2016, 04:20:05 pm »

Wonderful to see and hear such good news. God bless both of you.

Bree · « **Reply #1031 on:** January 14, 2016, 04:31:02 pm »

I'll chime in too. Congrats to your daughter and to you!!! I can only imagine how as a parent you must feel to know she has a full life ahead of her without this burden. It's so wonderful to see so many getting cured with these new drugs. I'm so happy for all of us. And, I'm feeling better and better every day 15 weeks post treatment.

concerned father · « **Reply #1032 on:** January 14, 2016, 04:39:18 pm »

Quote from: Bree on January 14, 2016, 04:31:02 pm

I'll chime in too. Congrats to your daughter and to you!!! I can only imagine how as a parent you must feel to know she has a full life ahead of her without this burden. It's so wonderful to see so many getting cured with these new drugs. I'm so happy for all of us. And, I'm feeling better and better every day 15 weeks post treatment.

Glad to see that you are doing better everyday. It's a great day

Bree · « **Reply #1033 on:** January 14, 2016, 04:45:25 pm »

Quote from: concerned father on January 14, 2016, 04:39:18 pm

Glad to see that you are doing better everyday. It's a great day

Thanks Concerned Father. The reason I say that is so many struggle right after treatment and I did feel a little better but was wondering if this is as good as it gets and then this week, all of a sudden I felt better than I had in as long as I can remember. We have seen other posts who are further down the road since SVR and many things continue to improve for them and I am experiencing that on an energy level and other things... just this week. Super cool! You are right, this is a great day!

concerned father · « **Reply #1034 on:** January 14, 2016, 04:52:31 pm »

Quote from: Bree on January 14, 2016, 04:45:25 pm

Thanks Concerned Father. The reason I say that is so many struggle right after treatment and I did feel a little better but was wondering if this is as good as it gets and then this week, all of a sudden I felt better than I had in as long as I can remember. We have seen other posts who are further down the road since SVR and many things continue to improve for them and I am experiencing that on an energy level and other things... just this week. Super cool! You are right, this is a great day!

I noticed in the last month or so that she had a lot more energy. I had a good feeling about this.

Scoutdoy · « **Reply #1035 on:** January 14, 2016, 05:14:15 pm »

Ok...I am checking in with my 12 week EOT...undetected...another Harvoni success

Scout

Bree · « **Reply #1036 on:** January 14, 2016, 05:15:36 pm »

Quote from: Scoutdoy on January 14, 2016, 05:14:15 pm

Ok...I am checking in with my 12 week EOT...undetected...another Harvoni success

Scout

This thread is getting better and better all the time!!! Congrats Scout, have fun on your new adventures

Lynn K · « **Reply #1037 on:** January 14, 2016, 06:55:04 pm »

Congrats Concerned Father.

So happy for both of you and so glad your were there to support your daughter!

Some young people are afraid to even get tested worried their parents will find out because they are on their parents insurance.

Awesome news Scout! This is such a great thread.

concerned father · « **Reply #1038 on:** January 14, 2016, 07:34:01 pm »

Scott, you and my daughter are sharing something in common, you got the great news on the same day. Lynn, we adopted our daughter when she was 9 months old knowing full well that she had been infected at birth by her biological mother. The first time we saw her, we both instantly fell in love with her. Hep C was not an issue but always prayed for a cure and our prayers were answered. We are so blessed to have her in our lives.

Philadelphia · « **Reply #1039 on:** January 14, 2016, 09:08:56 pm »

I am so happy for your family concerned father. Congrats!

Mugwump · « **Reply #1040 on:** January 18, 2016, 01:58:41 pm »

Concerned Father: WOOHOO!!! I know that she will start to see life in a different light and my hopes and prayers are with you and your family. What you have done for her is priceless. A chance at life free from this disease is what we all deserve.

Debula AGAIN WOOHOO!!!

concerned father · « **Reply #1041 on:** January 18, 2016, 03:57:09 pm »

Quote from: Mugwump on January 18, 2016, 01:58:41 pm

Concerned Father: WOOHOO!!! I know that she will start to see life in a different light and my hopes and prayers are with you and your family. What you have done for her is priceless. A chance at life free from this disease is what we all deserve.

Debula AGAIN WOOHOO!!!

Thanks Mug, as you can imagine, we are all on cloud 9 here

Katie · « **Reply #1042 on:** January 18, 2016, 04:12:09 pm »

Here's to 2016!!!! Looks like this is the year where so many warriors are cured! I haven't checked in for awhile and love seeing all these wonderful results!

May you all have a happy, healthy life and hold your head up high! The journey has been difficult but we persevered and can now move forward with confidence and compassion for others. May the fight against cancer, MS and all other chronic diseases come to an end as well.

Thank you Michael Sofia for never giving up in spite of others saying it couldn't be done! Without his insight and dedication none of us would have had the Harvoni cure. Thank you sir! You are my hero!

Katie

http://www.newyorker.com/tech/elements/a-better-treatment-for-hepatitis-c

"Sofia realized that any effective hepatitis-C drug not only needed to get into the liver, where the virus was replicating, but stay there, to avoid unintended side effects elsewhere in the body. It is relatively easy to transport a drug to the liver: when you eat or drink something, it is absorbed into the bloodstream by the stomach and intestines, and in turn flows directly to the liver, the body’s metabolic engine. The problem is that, in their active form, nucleoside drugs don’t enter liver cells. Sofia hypothesized that if he could shroud a nucleoside with an “invisibility cloak” to get it into liver cells he could then count on the liver’s enzymes to break down the cloak and activate the drug. Once the cloak has been shed, the nucleoside would be trapped inside, protecting the rest of the body from exposure. “A lot of people were telling me when I had this idea that this is never going to work,” he told me. “People have been trying to do this for a long time, this is a hopeless cause.”

slats1056 · « **Reply #1043 on:** January 18, 2016, 10:30:25 pm »

STOP THE PRESSES!!!NEW LAST ADDITION!!!CHECK OUT MY NEW SIGNATURE PEOPLE!!!

HCV RNA VIRAL LOAD NON DETECTED Log10 <1.2 IU/ml

Got it on paper!

Houston! We have achieved SVR12! Don't even want to see My blood pressure right now!

KimInTheForest · « **Reply #1044 on:** January 18, 2016, 10:32:42 pm »

FANTASTIC TOMMY!!!

I'm grabbing a spot on that conga line.

kim

slats1056 · « **Reply #1045 on:** January 18, 2016, 10:49:20 pm »

Thank You, Thank You Very Much! Sounds like Elvis. Re.: My World Wide HEP C SVR Multi National Conga line. Oh, it is on!!!!! BTW, check out My post on EOT 12 next week!

Bree · « **Reply #1046 on:** January 18, 2016, 10:51:07 pm »

AWESOME SAUCE!!!!!

Lynn K · « **Reply #1047 on:** January 18, 2016, 11:03:19 pm »

"Not detected"

The 2 most beautiful words in the English language if you ask me

Congrats!

slats1056 · « **Reply #1048 on:** January 18, 2016, 11:07:56 pm »

Thanks to all. and I appreciate Your support!

gnatcatcher · « **Reply #1049 on:** January 19, 2016, 06:13:17 am »

Quote from: slats1056 on January 18, 2016, 11:07:56 pm

Thanks to all. and I appreciate Your support!

Hey, Tommy -- you're the Sun we've been orbiting around. Now that you're SVR12, everything makes sense.

Quote from: Lynn K on January 18, 2016, 11:03:19 pm

"Not detected"

The 2 most beautiful words in the English language if you ask me

And to think that in high school they taught us the 2 most beautiful words in the English language were
cellar door
(no kidding!)

concerned father · « **Reply #1050 on:** January 19, 2016, 07:50:38 am »

So nice to see so many success stories, I love it.

Philadelphia · « **Reply #1051 on:** January 19, 2016, 08:12:27 am »

What a delight to log on from cold slightly snowy Toronto and see your news Tommy! After all the support you've given everyone - this is your moment!

Let me express it like any good Australian would: Go you good thing!!

slats1056 · « **Reply #1052 on:** January 19, 2016, 08:35:57 am »

Thanx Gnatty, Concerned , and Philly! You guys are the best

Right now I needed the bright sunshine in My little corner!

Scoutdoy · « **Reply #1053 on:** January 19, 2016, 09:53:54 am »

Welcome to the undetected train Tommy! It's quite the feeling seeing it in your hand isn't it? Congrats!

Scout

drummerman · « **Reply #1054 on:** January 19, 2016, 10:05:38 am »

Quote from: slats1056 on January 18, 2016, 10:30:25 pm

STOP THE PRESSES!!!NEW LAST ADDITION!!!CHECK OUT MY NEW SIGNATURE PEOPLE!!!

HCV RNA VIRAL LOAD NON DETECTED Log10 <1.2 IU/ml

Got it on paper!

Houston! We have achieved SVR12! Don't even want to see My blood pressure right now!

Very cool Tommy! I would insert some smiley faces here, but you used them all!
dm

Very cool Tommy

slats1056 · « **Reply #1055 on:** January 19, 2016, 10:08:07 am »

Yes Maam, I have just about worn out My copy since yesterday afternoon!

beto · « **Reply #1056 on:** January 19, 2016, 10:31:21 am »

Dagburnit Tommy...yea had us all on pins and needles! WoooHooo!

slats1056 · « **Reply #1057 on:** January 19, 2016, 03:18:38 pm »

For some reason I just am destined to have to wait for My Lab results. It seems to happen every other time!

Patience · « **Reply #1058 on:** January 19, 2016, 03:41:36 pm »

Good things come to those who wait, (patiently or otherwise)! Such happy news lately on this topic. Here's to more of the same!

ricpark · « **Reply #1059 on:** January 21, 2016, 04:15:58 pm »

12 wks Harvoni plus riba
tx naive
Genotype 1a
Stage 3
VL 17.5 mill
4 wk 12 wk on treatment and 12 wk and today 24 wk post SVR24 undetected.

Bree · « **Reply #1060 on:** January 21, 2016, 04:28:46 pm »

Quote from: ricpark on January 21, 2016, 04:15:58 pm

12 wks Harvoni plus riba
tx naive
Genotype 1a
Stage 3
VL 17.5 mill
4 wk 12 wk on treatment and 12 wk and today 24 wk post SVR24 undetected.

Yep, all good!!! Congratulations RicPark!!!

slats1056 · « **Reply #1061 on:** January 21, 2016, 04:57:03 pm »

GO RIC, More good news. great to hear another undetected! Savor the victory.

Scoutdoy · « **Reply #1062 on:** January 21, 2016, 05:59:05 pm »

Congrats ricpark...another one for the good guys

Scout

drummerman · « **Reply #1063 on:** January 21, 2016, 07:55:29 pm »

Quote from: ricpark on January 21, 2016, 04:15:58 pm

12 wks Harvoni plus riba
tx naive
Genotype 1a
Stage 3
VL 17.5 mill
4 wk 12 wk on treatment and 12 wk and today 24 wk post SVR24 undetected.

yesh!
dm

beto · « **Reply #1064 on:** January 21, 2016, 08:05:49 pm »

ricpark,

50 years of "C" 12 weeks of cure. Gotta love it. So happy for you.

BDK · « **Reply #1065 on:** January 22, 2016, 01:46:49 am »

Cured! EOT 14 weeks undetected after 12 weeks Harvoni. This is going to need an attitude adjustment. Someone with hep C to just someone! Wow.

Bree · « **Reply #1066 on:** January 22, 2016, 03:55:29 am »

Quote from: BDK on January 22, 2016, 01:46:49 am

Cured! EOT 14 weeks undetected after 12 weeks Harvoni. This is going to need an attitude adjustment. Someone with hep C to just someone! Wow.

I'd say someone awesome!!! Congrats!

gnatcatcher · « **Reply #1067 on:** January 22, 2016, 05:09:40 am »

Quote from: BDK on January 22, 2016, 01:46:49 am

Cured! EOT 14 weeks undetected after 12 weeks Harvoni. This is going to need an attitude adjustment. Someone with hep C to just someone! Wow.

BDK, what a succinct way to say what whole threads on this forum convey -- thank you, and Bravo!

concerned father · « **Reply #1068 on:** January 22, 2016, 07:32:24 am »

Congrats Ric and DBK

drummerman · « **Reply #1069 on:** January 22, 2016, 08:30:31 am »

Quote from: BDK on January 22, 2016, 01:46:49 am

Cured! EOT 14 weeks undetected after 12 weeks Harvoni. This is going to need an attitude adjustment. Someone with hep C to just someone! Wow.

Well thats cool!

dm

slats1056 · « **Reply #1070 on:** January 22, 2016, 08:44:39 am »

To quote Martin Luther King " I AM SOMEBODY" Great news yet again!

BDK · « **Reply #1071 on:** January 22, 2016, 10:48:52 am »

Thank you everyone! And good luck. I'll still be hanging out here to help!

Butterflykisses · « **Reply #1072 on:** January 22, 2016, 12:02:45 pm »

So excited to spread the news, Undetected at 14 weeks Post, YES!

concerned father · « **Reply #1073 on:** January 22, 2016, 12:07:56 pm »

Sounds like a cure to me Congrats.

Butterflykisses · « **Reply #1074 on:** January 22, 2016, 12:22:10 pm »

Thank you, Congrats to your Daughter! It's been a long road for me, looking brighter everyday

concerned father · « **Reply #1075 on:** January 22, 2016, 12:35:18 pm »

But you arrived at destination

slats1056 · « **Reply #1076 on:** January 22, 2016, 02:05:51 pm »

Man , there are a butt load of un-detected/not-detected rolling in. Seems like the ball is rolling exponentially faster and faster. So good to see all of us posting fantastic results here. Just think that a few years ago this would be unbelievable if not impossible! Such a great time we live in what with all of the new technology and medical break throughs that we are experiencing.

CONGRATULATIONS TO EVERYONE!

Scoutdoy · « **Reply #1077 on:** January 22, 2016, 08:06:28 pm »

Tommy, it's wonderful to see how many people are posting undetected results. I think when this thread began that the numbers were looking a little scary,,,but now the good results are far outnumbering the relapses, by staggering numbers. What a wonderful time this is for people who have been suffering from this dreadful disease for so long. I can say that emotionally and physically I am soooo much better, now my aches and pains are pretty normal with people my age. I am totally digging it!

Scout

2Thrive · « **Reply #1078 on:** January 22, 2016, 08:53:56 pm »

Hi...do you have a post for POST 24 weeks of Harvoni? My EOT was 1/13/16 and I am interested in knowing their cure rate. Also interested in knowing if they had post treatment side-effects. I had great patience and grace while on tx but since EOT no patience, no filters on what I say and very very weary. Dumping ammonia the first week and feel like flu symptoms.

Thanks!

HCV since 1984
Genotype 1b
03/2002 to 10/2002 Pegintron/Riboviron - Failed had to stop
07/18/15 VL = 7,100,000
07/18/15 FibroScan F4
07/18/15 Necroinflam.act.grade A3
07/18/15 ALT 196 [ref 6 -29] AST 149 [10-35]
07/31/15 began Harvoni - 24 Week Course of Treatment
08/21/15 VL = 1,520,000 ALT 39 AST 34
After 8 weeks = Undetected & enzymes returning to normal!
09/18/15 VL = Undetected!!! ALT 27 AST 31
12/23/15 VL = Undetected!!! ALT 30 AST 26
01/13/16 EOT

KimInTheForest · « **Reply #1079 on:** January 22, 2016, 11:38:14 pm »

Quote from: 2Thrive on January 22, 2016, 08:53:56 pm

Hi...do you have a post for POST 24 weeks of Harvoni? My EOT was 1/13/16 and I am interested in knowing their cure rate. Also interested in knowing if they had post treatment side-effects. I had great patience and grace while on tx but since EOT no patience, no filters on what I say and very very weary. Dumping ammonia the first week and feel like flu symptoms.

Welcome to the forums, 2Thrive! Here is a link to the discussion thread for reporting SVR24 on Harvoni: http://forums.hepmag.com/index.php?topic=3205.0

A number of us have experienced some sort of post-treatment syndrome/malaise/whatever. Various theories flying around about what is behind that. I believe it is due (at least in my case) to a temporarily over-stimulated immune system. And the the fluish symptoms you describe, are simply an immune system not being ready to turn off or slow down after 45 years of being dialed up high to keep the HCV under control. I think the rapid clearing of virus (never before possible until these new drugs) leaves our bodies needing to make a LOT of adjustments to find the new normal post-cure. Some bodies take longer than other to find that new normal.

best,
kim

Lynn K · « **Reply #1080 on:** January 23, 2016, 02:57:42 am »

Hi 2Thrive and welcome

I am one of the SVR 24 people got my results in October 2015.

I really don't feel different than last year or the year before only side effect I had was anemia from ribavirin that resolved within 10 days after I stopped taking it.

I just feel like someone who is pressing on 58 years old who had hep c for 37 years and cirrhosis for 8 years and could stand to lose 20 lbs or so but mostly I feel fine.

We are generally considered cured at 12 weeks 24 weeks just puts a fork in it I dont think I have seen anyone who made SVR 12 who did not make SVR 24 on the forum.

Cure rates for Harvoni are anywhere from 85% for those with advanced Child "B" or "C" cirrhotics who are on the liver transplant list and are very ill with severe liver disease to 99% for those who are treatment naive with little to no liver damage and low viral load.

What your odds might be depends on your prior treatment history, liver damage, and genotype. Also age, gender, and BMI may also be factors in treatment success.

I had most of the negative treatment factors being a 3 time null responder to interferon based tx, and also relapsing on Sovaldi/Olysio. Also having compensated cirrhosis and being on the high side of overweight with a BMI of about 29.

But even with all that I was cured and likely you will be cured too!

good luck on treatment

gnatcatcher · « **Reply #1081 on:** January 23, 2016, 04:20:01 am »

2Thrive, the fatigue issue was somewhat my experience post-Tx. During Tx, Harvoni gave me extra energy -- I got an amazing amount done during those 12 weeks. But after Tx, I would periodically have three days in a row when I needed an enormous amount of sleep. That phase did pass -- I now regularly have more energy than before Tx, although not as much as the "Harvoni High" gave me during Tx.

I've also had a lot more aches and pains post-Tx than during Tx (but again, not as bad as some prior years). I've also gained weight that is proving incredibly difficult to lose, since the ramped-up appetite I had on Harvoni has continued.

On the other hand, I am sleeping much better than I have in decades. During this past week, there were three days in a row where I slept 8 hours straight without needing to go to the bathroom in the middle of the night. Also I definitely have much less dental plaque, and what I have is much easier to remove (my dentist confirms this).

My hepatologist believes it will take more time to find out which of my other ailments were caused by the HCV rather than being separate diagnoses. He's waiting until 9 months post-EOT to do another FibroScan to find out whether my F4 has gone down. (If my 19.5 kPa goes below 12, I won't have cirrhosis any longer.)

Here's hoping you are almost done with the flu-like phase.

Gnatty

Camper · « **Reply #1082 on:** January 23, 2016, 06:37:53 am »

I just realized when I press into my abdomen with my fingers I am not near as sore and tender as before treatment. I assume my liver is beginning to heal, I am feeling more and more normal. Hurray! a great feeling to be closer to normal.

JoeK9999 · « **Reply #1083 on:** January 24, 2016, 08:36:12 am »

Checking in one year after Harvoni treatment.
My doc insisted on a one year post treatment test.
I'm done with tests and feel better than I have in years. Harvoni is a miracle drug!
01/19/16 - 1 Year post Harvoni VL test - Not Detected - ALT/AST 22/22

concerned father · « **Reply #1084 on:** January 24, 2016, 07:44:51 pm »

Great news Joe

Lynn K · « **Reply #1085 on:** January 24, 2016, 08:16:25 pm »

Awesome Joe living large and hep c free!

Junkyard · « **Reply #1086 on:** January 24, 2016, 10:47:59 pm »

It has been a while since I have posted. Sorry to not have all my stats.
Just got my labs for 24 actually almost 30 weeks. I am undetected. Alt and Ast are 34 and 35. My white blood and platelets are a little low but my doc is not concerned.
I guess this is really the start of the next part of life for me. It has been a long ordeal as we all have.
Good luck to all and I will post one year results when they come.

Mugwump · « **Reply #1087 on:** January 24, 2016, 11:03:30 pm »

Great Stuff!! Junkyard and JoeK999

I am going on 8 months without hcv and today I noticed something important today about my water works which has not been up to snuff for about 15 YEARS. I am 63 and always thought that I just had the male urine curse! You know the BPH dribble, dribbles.

Now 8 months free from hcv hell I can have my morning 2-3 coffee, a bunch of water and can work until noon without having to take a leak every hour or so! When I exercise hard over an hour or so my urine does not quickly turn dark anymore, which I had grown accustomed to! I just attributed darkened urine and having to take a leak all the time to OMS (old man syndrome!)

So it seems that as cirrhosis backs off your renal system should quickly improve as well. I feel GREAT!!! and all these positive results are absolutely wonderful.

annajustanna · « **Reply #1088 on:** January 29, 2016, 01:41:18 am »

:)Feel So Blessed. My wish is that everyone can get treatment that wants it!
12 weeks EOT - undetected
infected since age 15 and finally free at 55 - Thank You to God; to Gilead; to Blue Cross/Blue Shield and to the person who contacted the Board of Nursing. Without that meeting with the board I never would have known of available programs to help offset costs being provided by Gilead. Thank You!!
Also thanks to Lynn for helping me to settle down when I was still detected at around 25 days.
again - SHOUT OUT
12 WEEKS post treatment- UNDETECTED -

Else · « **Reply #1089 on:** January 29, 2016, 01:44:44 am »

Wooo-hooo! Congratulations!!!

And an inspiration for all!

Lynn K · « **Reply #1090 on:** January 29, 2016, 01:51:38 am »

Woo whooo annajustanna and congrats!

Now it is time to adjust those sails and tack into the wind!

concerned father · « **Reply #1091 on:** February 02, 2016, 10:25:44 am »

Another success story WOO HOO.

kate0b1 · « **Reply #1092 on:** February 04, 2016, 09:54:01 am »

hey guys, heads up for everyone. I am one year out from tx this month and asked my family doc for labs to feed my OCD lol Results today

AST 14
ALT 12
HCV not detected

Sorry I have been MIA so long (crazy busy) but i wanted to let people know to never give up fighting and never give up hope.

stay cool everyone

slats1056 · « **Reply #1093 on:** February 04, 2016, 11:15:25 am »

ROLLIN' , ROLLIN',ROLLIN', KEEP THOSE RESULTS A ROLLIN,

Great to hear Kate. Here is hoping all the Viekeirans bounce back as well! It is a long, hard , weary path. But the end results justify the means!
Lots of MIA posters are showing up.

concerned father · « **Reply #1094 on:** February 05, 2016, 11:10:56 am »

Real nice Kate.

northfork · « **Reply #1095 on:** February 06, 2016, 03:28:34 pm »

1. 4wk - 12 wk EOT VL status: 12 week- RELAPSE VL 1.3 million
2. Treatment duration: 24 weeks
3. tx naive or experienced: experienced- Daclatasvir clinical trial- RELAPSE
4. Genotype (1a or 1b):1b
5. F1-F4 fibrosis status (date) F3-4
6. Initial VL (date) APRIL 2015 1.7million
7.ALT 41
8.AST 32

What now? Very depressed.

concerned father · « **Reply #1096 on:** February 06, 2016, 06:15:37 pm »

Do not give up, they are coming up with new medication. Do not give up.

Else · « **Reply #1097 on:** February 06, 2016, 06:31:29 pm »

Quote from: concerned father on February 06, 2016, 06:15:37 pm

Do not give up, they are coming up with new medication. Do not give up.

Quoted for truth.

I'm sorry your still in the battle. That sucks. But it's different than being defeated.

on edit - And welcome to the forum! Hang out. There's good people here.

coastal girl · « **Reply #1098 on:** February 23, 2016, 12:24:20 pm »

Doing a happy dance!!!!!!!
12 week Post TX Harvoni UNDETECTED!!!!!
I burst into tears when I picked up results at the lab. All those weeks of suppressed doubt poured out of me replaced by much JOY!!!!!!

concerned father · « **Reply #1099 on:** February 23, 2016, 12:47:13 pm »

Quote from: coastal girl on February 23, 2016, 12:24:20 pm

Doing a happy dance!!!!!!!
12 week Post TX Harvoni UNDETECTED!!!!!
I burst into tears when I picked up results at the lab. All those weeks of suppressed doubt poured out of me replaced by much JOY!!!!!!

Congrats, I had the same reaction when my daughter was SVR 12.

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