Welcome, Guest. Please login or register.
November 08, 2024, 05:29:34 pm

Login with username, password and session length


Members
Stats
  • Total Posts: 55133
  • Total Topics: 4851
  • Online Today: 254
  • Online Ever: 3061
  • (September 25, 2024, 11:40:40 pm)
Users Online
Users: 0
Guests: 218
Total: 218

Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Fatty Liver Disease, Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.
  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.
  • Product advertisement (including links); banners; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from the Hep Forum Moderators.
Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Nearing EOT - Finishing Strong and Staying Positive!  (Read 185570 times)

0 Members and 2 Guests are viewing this topic.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #200 on: October 08, 2015, 07:50:51 pm »
Hey Yall... I just got the final approval on my pv solar for my house.  They are flipping the switch today... meaning bye bye local power company (most expensive in the nation, I might add).   This day is going really well....

Still sad about my friend but life is calling them to where their 7 grandkids are.  I understand.  5 x larger house, same price as here.  Price of Paradise.  but it will work out... it's all in divine order somehow. 

Off to appointments with clients.  And, back to my slogan:

Today is a good day for a good day!  8)
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #201 on: October 08, 2015, 08:33:27 pm »
HI Bree,
We got solar last year and it cut our power bills in half. My sister who has no kids, gets a credit from them as their power use is less than the panels make and it goes back into the grid. They got in for a better deal than we did, but it still works out well. Costs a fortune though. Power bills were around $800.00 a quarter now around $400. Happy with that. If you've got the sun then go solar! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #202 on: October 08, 2015, 08:35:01 pm »
Else,
Love the new avatar is that you? Much less scarier than the shark!  :) cal
LOL!!!  No, not me.  Avatar is Eminem (aks Marshall Mathers aka Slim Shady) the rapper.  I'm just having fun with the default avatars. 
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #203 on: October 08, 2015, 08:40:35 pm »
HI Bree,
We got solar last year and it cut our power bills in half. My sister who has no kids, gets a credit from them as their power use is less than the panels make and it goes back into the grid.  If you've got the sun then go solar! Cal :)

I went 10 panels over usage.  I'll get credits back  from local utility. (1/2 the rate) but still.  I should have no power bill and the loan to purchase (with tax incentives etc.) will be less than 5 years and that was the same amount as the power bill each month.  bottom line.  Break even on power bill vs. solar loan for 4 years, then nothing, zero, nada bills!   And, plus they are changing the rules so I got in front of it.  stoked!  8)
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #204 on: October 08, 2015, 09:04:31 pm »
Oh Else,
I was thinking wow Else is very butch! Eminem hey, I wouldn't have recognised him. Love him, he's a real sort. Cal  8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #205 on: October 08, 2015, 09:05:46 pm »
Bree,
Did really well, you can't lose. Electricity costs have gone through the roof here. What's it like there? Cal  :-*
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #206 on: October 08, 2015, 09:11:16 pm »
Hi Cal,yeah I thought that some had joint pain from hepc & harvoni...so I told the nurse that my thumb is not working.just stiff & a pain.I thought of it cause she asked..it was funny her saying discontinue harvoni..she must not have known what it was!!anyway I just tape it up so I don't get that electric shock when it gets twisted.no biggy!enjoy your posts so much.good medicine girl!!!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #207 on: October 08, 2015, 10:42:45 pm »
Hey Yall... I just got the final approval on my pv solar for my house.  They are flipping the switch today... meaning bye bye local power company (most expensive in the nation, I might add).   This day is going really well....

Fantastic, Bree! Something I have always dreamed of doing - going off-grid.

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #208 on: October 08, 2015, 10:57:51 pm »
Hi Rosie,
Yeah, just play it down. That's what I do. I am paranoid about pulled off of tx. I ust don't tell them a lot of stuff. Of course when I ended up in hospital it was a different story. But my specialist came to the hospital and gave my carers a crash course on Viekira and what time I had to take it. He told them what to do and they pretty much did as they were told. I mean this is a drug that isn't passed here. They know nothing about it and it's interactions etc. So he is gung ho. So is my GP if I tell her something, like my ankles are swollen, she'll look at them and say, can you live with that for another 5 weeks? I say of course! It's all about getting through to the end at any cost isn't it? Who said the orals were easy?????? Cal :-X
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #209 on: October 09, 2015, 10:52:11 am »
Bree,,,,,,are you in Australia also?




Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #210 on: October 09, 2015, 11:23:52 am »
Really...lot of Aussies...what the heck?  Cures from down under.  A feisty lot I might add... :D
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #211 on: October 09, 2015, 11:31:47 am »
aussies rock the forum!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #212 on: October 09, 2015, 11:49:37 am »
You hear that Tommy?  Better stand up for Texans.  That's a country you know.  Even if your football team blew it last night.

Any Zonnies out there...(Arizonans?)  We rock too
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #213 on: October 09, 2015, 12:33:46 pm »
My Royals blew it too!!!ugggg


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #214 on: October 09, 2015, 12:57:06 pm »
 Yeah, I think we need a coach that will tell management to go back off in their own jack yard. But, the Astros aren't choking up yet! Beside, the United States of Texas is probably bigger than that little old Island down under!!! LOL. Besides Friday night lights, baseball, and Major League football , baseball,soccer, hockey, etc. etc. keeps us amused when we aren't herding our longhorns or spit shining the old oil wells!!!!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #215 on: October 09, 2015, 01:16:05 pm »
Tommy, I might be visiting the great state of Texas next month for 3 days. Just outside of Houston. I am trying to get out of it though. There really isn't enough Xanax on this planet I can take to chaperone 19 seventeen year old girls for a rugby tournament, but one of the chaperones said she may not be able to go. That much estrogen together on a bus and then at a hotel isn't really my cup of tea, but I may have no choice.  But if I can beat hepatitis I can smack down 17 yr old girls! LOL


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #216 on: October 09, 2015, 01:20:02 pm »
Tommy, um,
Texas = 268,820 mi²
Australia = 2.97 million mi²
Maybe Texas hats have bigger capacities?

Scout, good luck!
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #217 on: October 09, 2015, 01:26:57 pm »
beat me to the punch Gnatty...I have seen maps of Australia over the US and it may be a bit larger...

HaHa- Scout- estrogen mixed with rugby...your plate is full.  All that xanax you may need to be chaperoned.

Tommy- more that a coach- Hoyer did not look bad until that stupid pass.  You can thank Arizona for Jaelen Strong   

HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #218 on: October 09, 2015, 01:28:40 pm »
Oh...oh my god.....my pill just flipped out of my hand and bounced off my stove....did a half gainer...and fell behind the stove...SHIT!



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #219 on: October 09, 2015, 01:59:51 pm »
Thousand bucks says it's time to clean behind the stove!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #220 on: October 09, 2015, 02:09:53 pm »
Lol Rosie,,,,it's not that easy and it's hooked to gas...I may blow up ,,,but somehow I am gonna get that 1200.00 pill



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #221 on: October 09, 2015, 02:14:27 pm »
Lol Rosie,,,,it's not that easy and it's hooked to gas...I may blow up ,,,but somehow I am gonna get that 1200.00 pill



Scout

Yum.  This will be fun.  Hint - A bit of tape on the end of a broom handle and a flashlight.
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #222 on: October 09, 2015, 04:02:05 pm »
or if the broom handle is too cylindrical to fit, a yard-and-a-third-stick, if you have one.
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #223 on: October 09, 2015, 04:19:40 pm »
I just had to modify my profile!!! UNDETECTED!!!!!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #224 on: October 09, 2015, 04:22:03 pm »
Too good for words, Rosie!!!  ;D
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #225 on: October 09, 2015, 04:24:02 pm »
I just had to modify my profile!!! UNDETECTED!!!!!

Way to go, Rosie!  8)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #226 on: October 09, 2015, 04:25:17 pm »
awRIIIIIIIIGHT!
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #227 on: October 09, 2015, 05:01:37 pm »
 HOW MUCH PER ACRE??? I'll get a few of the boys together and we'll buy the place. Looks like a good place to raise Longhorns!!!!LMFAO!!!!!

 Scout , GOOD LORD GIRL!!! Talk about punishment!!! Make even the worst side seem like a walk in the park! Easy on the Xanax!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline byebyeC

  • Member
  • Posts: 286
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #228 on: October 09, 2015, 06:06:28 pm »
Tommy! Call OUT! Alaska's 663,268 square miles and the largest US state! Umm that was Perci that said that though, lol :D

Scout, here's to you getting out of THAT! That's too much estrogen for me!!!

Rosie and Gnatty, you two are way too funny!  ;D ;D ;D ;D ;D
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #229 on: October 09, 2015, 06:45:12 pm »
Hey Yall!!! Can I get a "NOT DETECTED"???
Yep, EOT results just came back. 
"Not Detected"  I'm so happy.  I felt like I knew it all along... but when I was so sick with a bug right at the end of treatment and afterward, it was concerning.

I texted a friend and she texted back:  "duh".  My friends held the space and belief for me even when I got fearful at times during treatment.  Then she made me breakfast and we walked 3 miles (I was sore from 4 miles yesterday) but she made me do it anyway.

Keep the belief that you will be cured, stay in that, live in that!!!
Hard to put my gratitude into words.  Bree

   
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline byebyeC

  • Member
  • Posts: 286
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #230 on: October 09, 2015, 07:00:05 pm »
Bree!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I wish I was tech savvy enough to create some hula girls doing the happy dance for you!!!

This'll have to do! SO SO SO BLOOMING' HAPPY FOR YA GIRL!!!

Roses, gardenias, lilies  and fake champagne all around!

Cheers to you hula newBreeonthebeach!

<3 Marianne
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #231 on: October 09, 2015, 07:04:12 pm »
Rosie n Bree

Wooooohooooo!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #232 on: October 09, 2015, 07:13:36 pm »
Bree,,,,,,are you in Australia also?




Scout

Nope, Hawaii!
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #233 on: October 09, 2015, 07:18:26 pm »
I just had to modify my profile!!! UNDETECTED!!!!!

WAY TO GO Rosie!!!  I just saw this.  Seeing that "Not Detected" for the first time is so sweet!  And, it's still sweet EOT! 

Changed my profile too! 
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #234 on: October 09, 2015, 07:20:15 pm »
Rose and Bree,,,,, that's just fantastic



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #235 on: October 09, 2015, 07:20:49 pm »
Oh...oh my god.....my pill just flipped out of my hand and bounced off my stove....did a half gainer...and fell behind the stove...SHIT!



Scout

Did you get it?  I can just see the the fire trucks and the gas company coming to retrieve your pill for you... They would be thinking "What's the big deal about a pill?"  Little do they know.... ha.
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #236 on: October 09, 2015, 07:21:09 pm »
WAY TO GO Rosie!!!  I just saw this.  Seeing that "Not Detected" for the first time is so sweet!  And, it's still sweet EOT! 

Changed my profile too!

Nice!!
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #237 on: October 09, 2015, 07:23:15 pm »
another awRIIIIIIIIGHT! coming right up. Way to be, Rosie and Bree!

Tommy, what's the VL status of that gator you'll be serving? -just wanna know if I should put in for the vegetarian option.
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #238 on: October 09, 2015, 07:30:40 pm »
Bree, your right on the fire trucks. I can't get the damm stove out without disconnecting the gas line...eeegadds I am about as mechanical as a rock too....I guess I will have to put aside my bitchiness and ask my soon to be ex husband to come help me. He will, but will be gloating the whole time that I really do need him...LOL


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #239 on: October 09, 2015, 07:33:12 pm »
Bree, your right on the fire trucks. I can't get the damm stove out without disconnecting the gas line...eeegadds I am about as mechanical as a rock too....I guess I will have to put aside my bitchiness and ask my soon to be ex husband to come help me. He will, but will be gloating the whole time that I really do need him...LOL


Scout

To heck with it, just ask him and get the pill!  Then thank him for it, gloating or not... First things first!   
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #240 on: October 09, 2015, 07:35:20 pm »
another awRIIIIIIIIGHT! coming right up. Way to be, Rosie and Bree!

Tommy, what's the VL status of that gator you'll be serving? -just wanna know if I should put in for the vegetarian option.

We need a cheer for the party:  U-N-D  / U-N-D  Tommy you are good at this kind of thing... make up a cheer for all of us!
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #241 on: October 09, 2015, 09:51:08 pm »
 OKAY, OKAY,OKAY!!!!! Let's see here_____Wait for it!!! The brain cells that are left are clicking********Here goes,

ROSIE IS RED , BREE IS A LITTLE BLUE, BUT UNDETECTED IS REALLY SWEET, AND SVR IS TOO!!!!!!

 Gnatty, My herpetologist said Gator boy is undetected!!! Can't seem to find him though!!! I think that bear done ate him!!! HEE HEE HEE! BTW, Hat size is only exceed by EGO down here! LOL
 Scout , I guess 911 would be out of the question?????? Maybe one of the big strong boys from the local constabulary could give You a hand!
  ARE YOU GUYS INSINUATING THAT I AM GEOGRAPHICALLY CHALLENGED!!!! I AM SHOCKED I MUST SAY!  Man I need to use spell check more often.
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #242 on: October 09, 2015, 09:53:26 pm »
Hey Yall!!! Can I get a "NOT DETECTED"???
Yep, EOT results just came back. 
"Not Detected"  I'm so happy.  I felt like I knew it all along... but when I was so sick with a bug right at the end of treatment and afterward, it was concerning.

EXCELLENT NEWS BREE !!!
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #243 on: October 09, 2015, 10:31:28 pm »
Hi Bree and Rosie,

Bree: Duh!!!! You crazy hula chick.

Rosie,

Good work, "you're on your from misery to happiness today. ahaa ahaa ahha"

https://www.youtube.com/watch?v=VEzLTSF6XaU
 :) :)
Cal


HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #244 on: October 09, 2015, 10:35:54 pm »
Oh Scout,
That's what we call a major bummer! Ooopsy. Cal  ::)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #245 on: October 09, 2015, 10:46:33 pm »
 I DON'T KNOW BUT I'VE BEEN TOLD , UNDETECTED IS A MIGHTY FINE GOAL.

 UDETECTED , SVR , THAT'S OUR PLAN!! IF ONE OF US MAKES IT ALL OF US CAN!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #246 on: October 09, 2015, 11:03:04 pm »
EXCELLENT NEWS BREE !!!

Thanks Kim!!!  I wanted to respond to that solar thing too.  I'm not completely off grid, as backup batteries are not quite there yet... but night time usage will be fed back to me as I will have a credit stored up from the day (they only pay back half of what they make off of your solar, can you say corporate giants).  So I should have zero utility bill and perhaps get money back from utilities.  We have highest rate in the nation and the most sun, wind and water power generating capabilities.  Go figure.  And, I got it for 1/3 of the costs due to tax incentives and a special grant program.  Lucky me all the way around.  I ended up with quite an education when I got into this.  A great distraction from the health thing and a great end result.  PV Solar and UND!

Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #247 on: October 09, 2015, 11:04:48 pm »
I DON'T KNOW BUT I'VE BEEN TOLD , UNDETECTED IS A MIGHTY FINE GOAL.

 UDETECTED , SVR , THAT'S OUR PLAN!! IF ONE OF US MAKES IT ALL OF US CAN!

Now you are cooking with gas!!!  sssh.  Don't tell Scout you are cooking with gas!
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #248 on: October 09, 2015, 11:07:19 pm »
  PSSSSST, ANYBODY GOT A MATCH?????
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #249 on: October 09, 2015, 11:09:19 pm »
Hi Bree and Rosie,

Bree: Duh!!!! You crazy hula chick.

Rosie,

Good work, "you're on your from misery to happiness today. ahaa ahaa ahha"

https://www.youtube.com/watch?v=VEzLTSF6XaU
 :) :)
Cal

I danced to the song you posted!
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #250 on: October 10, 2015, 12:03:36 am »
Aha aha ahahah
Now you are cooking with gas!!!  sssh.  Don't tell Scout you are cooking with gas!
[/quote
Good one Cal ....aha aha ahahahah & who knew Tommy was good a cheerleading stuff!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #251 on: October 10, 2015, 12:31:43 am »
Good one Bree. You guys make this board entertaining. I think we are all finishing up. Who is left to finish? Me, then Cal then Rosie


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #252 on: October 10, 2015, 12:57:31 am »
Tommy the Royals came back at the end....this town really needs them to go the distance. It was so fun last year when they went to the World Series, and the Chiefs....well, they are getting a little extra practice with the high school team down the street right now,,,,maybe the practice will help them win at least one more game this season! Oh, they are horrible



Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #253 on: October 10, 2015, 01:11:45 am »
Oh scout,
I'm not on the countdown yet. I'm 4 weeks to go this Thursday. Don't forget Marianne she's about 2-3 weeks behind me. 2/3 of the wY? Not bad? Getting there. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #254 on: October 10, 2015, 01:13:57 am »
Bree,
Love that song. Love the proclaimers. When I was in Scotland, we saw their house. Big deal I know, but it was then in the 80's. I always dance to them too. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #255 on: October 10, 2015, 01:20:45 am »
Bree,
Love that song. Love the proclaimers. When I was in Scotland, we saw their house. Big deal I know, but it was then in the 80's. I always dance to them too. Cal :)

Don't know that group.  But I like their music!
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #256 on: October 10, 2015, 09:57:44 am »
Cal, yes, I was just flipping through partinats on this particular thread and almoast everyone is finished except 4. Marianne, Cal, Rosie and myself.  Considering how long you have had hep,,,,4 weeks is your countdown...lol


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #257 on: October 10, 2015, 12:38:03 pm »
Hi all, my hepc dr. sent the appeal for 12 wk tx instead of the 8 they approved yesterday. I have 20 more pills before it is settled I guess. I am not stressed at all because it's out of my hands & I think it will all work out .Today is a beautiful day in florida...the heat has let up just a little. Have a good one everybody!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #258 on: October 10, 2015, 12:59:44 pm »
Rosie, don't stress about it, I have found that once the word approval is printed, the pharmacy company moves fast. You could even call them, and they will fed x the refill. You will probably have the refill in your hands Monday or Tuesday. Glad that got worked out for you


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #259 on: October 10, 2015, 01:24:51 pm »
Hi scoutdoy, Patient Advocate Network & Mayo Clinic on my side so it will get done I think. Dr. said because of my fibroscan she wants 12wk tx ...viral load goes up & down & should not be a criteria for the duration of treatment..I like her alot!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #260 on: October 10, 2015, 01:49:51 pm »
Sounds like you're in good hands, Rosie.  And big smile again on your undetected status!  It really does sound like the 12wk approval is in the bag, if I read your post correctly.
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #261 on: October 10, 2015, 01:53:31 pm »
I just had to modify my profile!!! UNDETECTED!!!!!

Congrats Rosie!

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #262 on: October 10, 2015, 02:06:38 pm »
Thanks Drummerman, I have been feeling bad for you in the insomnia dept. I can only take a day of that or I am horrible to be around. I do know that camomile tea works for me & there is kava tea too but I don't do right now that because it affects the liver..sounds like the Dr. has armed you with the big guns so glad you slept well . It's just amazing to be getting cured ...it still feels unreal !
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #263 on: October 10, 2015, 02:19:07 pm »
I think I am getting over it.  Slept all night last night.  Have only taken Ambien twice and it was a half pill both times.  Woke up after about 3 hours of sleep both times.

Anyway, I think the insomnia is letting up!

dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #264 on: October 10, 2015, 02:34:38 pm »
Good to hear that!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #265 on: October 10, 2015, 04:26:50 pm »
Bree, your right on the fire trucks. I can't get the damm stove out without disconnecting the gas line...eeegadds I am about as mechanical as a rock too....I guess I will have to put aside my bitchiness and ask my soon to be ex husband to come help me. He will, but will be gloating the whole time that I really do need him...LOL

Scout, how did that all work out?
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #266 on: October 10, 2015, 04:35:19 pm »
Hey gnatcatcher...it worked out good... Had a nice breakfast...got my pill....cleaned under the stove for awhile and took a nap!! All good...lol


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #267 on: October 10, 2015, 04:59:40 pm »
That's a relief! Glad you can use your oven without subjecting that expensive gem to a temperature >= 86 degrees.
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #268 on: October 10, 2015, 05:13:55 pm »
I didn't use the oven just to be on the safe side until I got it...I don't think one pill really would have made a big difference..but just for the sheer cost of it we got it, and I found out that I really need to move the stove out and clean under it more often. It was pretty gross. Lol


Scout
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #269 on: October 10, 2015, 05:46:18 pm »
Hi Bree, great bands of the 80s. Love em.


Biggest hit.


https://www.google.com.au/#q=the+proclaimers+500+miles.     Cal  :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #270 on: October 10, 2015, 05:52:02 pm »
Hi scout,
Yes there's only a few if us? I wonder where all the Viekarians are?

Glad you got your diamond back! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #271 on: October 10, 2015, 05:53:54 pm »
I only got 3 hours sleep last night. I feel buzzy. Yuk day ahead! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #272 on: October 11, 2015, 12:36:02 pm »
I'm sorry Cali girl :(

No sleep on VK + Ribas just blows.

Bless you with a great nights or days rest today!

<3 Marianne
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #273 on: October 11, 2015, 12:58:40 pm »
Sleepless in Florida too.coffee is king.
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #274 on: October 11, 2015, 08:00:36 pm »
Hi Marianne and Rosie,
I slept really well last night, it seems that way if you blow off sleep one night I catch up the next. Sweet sleep , how beautiful thou art! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #275 on: October 11, 2015, 08:12:35 pm »
true that.
dm
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #276 on: October 11, 2015, 08:59:12 pm »
Well that would be sweet to want to lay down & just doze off!all day tired ..night fall wide awake...at least I have the forum buddies!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #277 on: October 11, 2015, 11:24:35 pm »
Rosie,
Yes and here we are!Cal :-[
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #278 on: October 12, 2015, 02:45:32 pm »
Sorry no sleepy's girls!!! That's the worst!


BIG GIANT ALASKAN SIZED (((HUG)))
<3 Marianne
« Last Edit: October 12, 2015, 02:52:01 pm by byebyeC »
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #279 on: October 12, 2015, 07:00:27 pm »
Thanks Marianne,
The not sleeping didn't hit till week 7 for me. I thought I'd escaped it. No I hasn't.....Cal yawn  :'(
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #280 on: October 12, 2015, 09:16:09 pm »
Yay Cali girl!

Another thing to look forward too :D Lol :D

I hope you get a good nights nod tonight!

<3 Marianne
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #281 on: October 12, 2015, 10:21:14 pm »
Glad to see the forum carried on without me!  :)  I noticed this thread split into 3 pages!!!  Pretty cool... people want to finish strong and stay positive, plus we are quite the communicators!

Busy weekend for me... all good.  Two events, one at a private waterfall, the other at a beach.  Dogs to the doggie park...walked a few miles here and there.

Today, walked with friend, chiropractor, farmer's market (fresh salad, yum).

Went to library, copied down notes from an awesome book.  This is my kind of life.

Oh yea, I have to remember to get some work in there too! 

I'm not peak every moment, but never mind.... I just want to say... I think this post thing is going to work out quite nicely!!!  Hang in there everybody and plan for the best!  That's what I'm doing!

Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #282 on: October 12, 2015, 10:24:52 pm »
You have a dream life, Bree!
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #283 on: October 12, 2015, 10:29:57 pm »
yep, I dreamed it!  (I'm just telling you the good parts)... seems to be all I want to focus on at the moment!
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline byebyeC

  • Member
  • Posts: 286
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #284 on: October 12, 2015, 10:47:42 pm »
You've just shared the secret to a happy life Bree my dear! :D <3 <3 <3 Mairanne
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #285 on: October 12, 2015, 11:00:31 pm »
You've just shared the secret to a happy life Bree my dear! :D <3 <3 <3 Mairanne

Yea, it's a delicate balance between "keeping it real" and still focusing on the good stuff.... or maybe that is what's real. hmmmm
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #286 on: October 13, 2015, 12:00:02 am »
I think that Life is good, maybe we've forgot that. Or were just to unwell (and didn't know it) to feel it. But the second chancers have a lot to look forward too. Thanks Bree gorgeous girl. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #287 on: October 13, 2015, 12:51:57 am »
I think that Life is good, maybe we've forgot that. Or were just to unwell (and didn't know it) to feel it. But the second chancers have a lot to look forward too. Thanks Bree gorgeous girl. Cal :)

Thank you Cal... it's challenging to "unhook" from what has become so familiar to us, and it's also worth it to create a new way of looking at the world.  (easy for me to say, I'm not on riba). ha
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #288 on: October 13, 2015, 06:34:01 pm »
Hi Bree,
Yes ribas certainly taint the process. I like your phrase "challenging to unhook from what  become so familiar to us " it explains getting stuck and not moving forward. It's not that easy to do when you've only known illness for so long. I think anyone who thinks it's going to be hearts and flowers post tx is delusional, it will take some work from the person. This may mean some professional help, or just deciding to change and leave the old ways behind. Easy for some not for others. Cal  :-\
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #289 on: October 13, 2015, 08:35:49 pm »
Hi Bree,
Yes ribas certainly taint the process. I like your phrase "challenging to unhook from what  become so familiar to us " it explains getting stuck and not moving forward. It's not that easy to do when you've only known illness for so long. I think anyone who thinks it's going to be hearts and flowers post tx is delusional, it will take some work from the person. This may mean some professional help, or just deciding to change and leave the old ways behind. Easy for some not for others. Cal  :-\

You bring up a good observation.  I too, was one, who relapsed.  Causes one to be cautious about too much optimism.  This time, I have to believe and have every reason to believe ... last time, I was not in a good place... this time, I'm ready and in a different place.  Plus we have treatments that actually work!  For sure, it's an adjustment, it may not be hearts and flowers, but we can start on creating new patterns of wellness and lifestyle.

I keep feeling like I need to stop and rest.  (old pattern).  Maybe I do need to rest, but hopefully I can start to listen to my body differently and what it's really telling me not because of the habit I had created out of necessity to pace myself so much.  It's like I had chronic fatigue for 20+ years.  I don't know... I'm finding my way here... I think there are new opportunities for life that I had previously boxed myself in out of necessity (real or imagined.)  Interesting exploration though... might be interesting to work through with a therapist.
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #290 on: October 14, 2015, 12:20:35 am »
Bree, I get therapy every time you post!  I have been thinking about what things I will do to challenge myself when this is over.A trainer to get me back in fighting shape !!!!

Maybe some more volunteering & gardening.Whatever we do we will be better having gone through this darkness.I really thought I was toast 5 years ago.Skies the limit!!!!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #291 on: October 14, 2015, 02:21:34 am »
Bree, I get therapy every time you post!  I have been thinking about what things I will do to challenge myself when this is over.A trainer to get me back in fighting shape !!!!

Maybe some more volunteering & gardening.Whatever we do we will be better having gone through this darkness.I really thought I was toast 5 years ago.Skies the limit!!!!

Thanks Rosie! I really feel like a huge weight has been lifted off my shoulders.  A new sense of freedom.  I'm taking it one step at a time.  It's almost like overwhelm.  We've all been through so much.  It's interesting to not have to be so laser focused of getting and taking treatment.  Like there's so much more to life.   We're lucky to live in this day and age and what a gift we have been given!  (I know it doesn't feel like it every minute but deep down, I know it.) 8)
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #292 on: October 14, 2015, 05:28:12 am »
You bring up a good observation.  I too, was one, who relapsed.  Causes one to be cautious about too much optimism.  This time, I have to believe and have every reason to believe ... last time, I was not in a good place... this time, I'm ready and in a different place.  Plus we have treatments that actually work!  For sure, it's an adjustment, it may not be hearts and flowers, but we can start on creating new patterns of wellness and lifestyle.

I keep feeling like I need to stop and rest.  (old pattern).  Maybe I do need to rest, but hopefully I can start to listen to my body differently and what it's really telling me not because of the habit I had created out of necessity to pace myself so much.  It's like I had chronic fatigue for 20+ years.  I don't know... I'm finding my way here... I think there are new opportunities for life that I had previously boxed myself in out of necessity (real or imagined.)  Interesting exploration though... might be interesting to work through with a therapist.

Hi Bree,
Funny you should say that you were in a bad place last tx, because I was in a great place and gob smacked when I relapsed. This time around, well you've exposed me, I am not as trusting in the process. I argue with myself all the time. My Doctor has told me to let it go and I am trying. However, I do think the drugs are great, it's proven, I am following the guidelines pedantically. and keep glimpsing a life without HCV. I am trying I promise! But what I was actually trying to say was that you are unhooking from the past and that is not an easy thing to do. We've all live with this for so long. The examples you give are perfect, pacing yourself. Am I tired yet? I should be? It's all new ground. Luckily you have a mentally healthy attitude to it all Bree and I shall learn a lot from you. Which is why I think your post tx thread is a great idea. I find your posts exhilarating and want to be a person who is open to new patterns of wellness and lifestyle.
I am normally an optimistic person, have been all my life, I want to be reintroduced to her again. I know she's there, my son said last week "It's good to have you back mum" and a girlfriend who I had lunch with said she could see the old Cal coming through heaps in our laughing and enjoying each others company. I know I will get there again. But I need to do some more hard work (rats). Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Rosie13

  • Member
  • Posts: 297
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #293 on: October 14, 2015, 11:20:47 am »
Cal, yours sons insightful comments speak the world of you both! He knows you are so not letting this get to you for long. I just totally understand this caught in between the "real world" we are experiencing. We think we are getting cured but don't want to be too extatic " just in case". I have people asking me all the time  "How are you?" The truth is I don't know!!! I feel good till I don't ...why do I have to lay down one day & the next day I am superwoman? It sucks to be in between but that is where we are & it will have to do for now. You guys are just the best & don't forget for all the bad stuff we are right behind you & need to hear it! You have pearls of wisdom coming out all the time. God bless Cal's son!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #294 on: October 14, 2015, 06:56:12 pm »
Hi Rosie,
Yes my sons comments were certainly holding up a mirror to me and it excited me to think I could be me again. But then doubt breaks in like a thief and tells me don't get too carried away yet? I wonder sometimes if ill believe the 12 week EOT Tests if I SVR!  Negativity is, like Bree astutely recognised, a hook, that I get caught on.
Rosie being caught in between describes it so well.

When it gets down to it, I have to trust in the process and get off the organ recital, because it doesn't get me to where I want to be, the old Cal. But thanks for acknowledging how damn tough this tx is in the body and the brain! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #295 on: October 19, 2015, 05:58:31 pm »
 UNDETECTED , UNDETECTED, SVR!!!  WHO IS KICKING HCV'S ASS???? WE ALL ARE!!!!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #296 on: October 19, 2015, 06:02:06 pm »
Tommy,
Did you get your results? Congratulations pal! Excellent work, as always. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #297 on: October 19, 2015, 06:16:00 pm »
 Cal, Yes indeedy My Dear!!!! Check out the last couple of lines of that awesome signature profile I just updated!!! Good thing I can't post to all forums at once or I would have it plastered everywhere on this Wonderful Web Site!!!!!!
 
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #298 on: October 19, 2015, 06:26:30 pm »
Tommy,
Freakin awesome! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Nearing EOT - Finishing Strong and Staying Positive!
« Reply #299 on: October 19, 2015, 06:31:06 pm »
Cal, YEEESSSSS, You are correct!!!
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

 


© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.