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Author Topic: one year anniversary  (Read 8806 times)

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Offline sapphire101

  • Member
  • Posts: 238
  • "Stop worrying and start living"
one year anniversary
« on: February 17, 2016, 11:34:32 pm »
It is very hard to believe, but it has been over one year since I took my first pill and started my journey back to health.

A whole year ago and I still remember the overwhelming joy of getting the Rx approved and receiving my first shipment and the anxiety of the unknown as I took those medications. Would it work for me? Would I have side effects? Could I continue to work through out treatment? My mind was going a mile a minute for the entire 12 weeks.

I can assure you all that your support and friendship made all the difference on  my journey and I am eternally grateful for you and for the cure.
The SVR glow has not worn off yet and maybe never will.
This whole experience changed me for the better.
Thank you!
Logged
Sapphire101
Genotype 1a Fibrosis level 1
Viekira Pak with ribavirin 12 weeks
Pre treatment  VL  1.7 million, AST 45 ALT 65
EOT VL not detected, AST 21 ALT 21
12 week SVR not detected,24 week SVR not detected.
Cured! Class of 2015

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: one year anniversary
« Reply #1 on: February 18, 2016, 12:48:32 am »
Your words are so great, Sapphire! For me too everyone's support and friendship here have been so vital for me on this journey. Like many of us, I lived in TOTAL secrecy prior to treatment and throughout treatment and even post-treatment until just 3 weeks ago. But thanks to this awesome community on the forums I was never alone. :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: one year anniversary
« Reply #2 on: February 18, 2016, 11:55:34 am »
Quote from: sapphire101 on February 17, 2016, 11:34:32 pm
The SVR glow has not worn off yet and maybe never will.

It probably never will!  ;D  Happy Birthday, Sapphire!!!
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline AussieRosa

  • Member
  • Posts: 226
Re: one year anniversary
« Reply #3 on: February 18, 2016, 10:28:33 pm »
Happy anniversary, Sapphire! You must feel amazing. I hope that glow never fades.
Rosa
Logged
Gt 1a
contracted 1983
Fibroscan 6.1
Treatment naive
VL 2.97M
ALT 38
AST 47
Started Viekira Pak + Ribavirin Tues 19th Jan 2016
Week 4: VL Undetected!
March 5th Ribavirin dose reduction to 800mg from 1000mg
EOT April 11th 2016. VL Not Detected
12 Weeks post EOT: SVR12. Cured with a capital C!!
6 months post EOT: Undetected :-)

Offline Ledoc01

  • Member
  • Posts: 37
Re: one year anniversary
« Reply #4 on: February 19, 2016, 12:53:16 am »
Congratulations @sapphire101  :)
 I'm right behind ya...it's been 363 days since my 1st "Harvey"
Personally, I still find it kinda surreal. I was bummed when I was still "detected" at 8 weeks; when they called after the 6 month test and said I was UD there was honestly a part of me that was skeptical or half expecting it(DasBug) to do a Lazurus move.
I guess it's real though :-). I recently changed my GI/Hep Doc and he ordered a ton of tests one of which was a VL. I am still UD but it's also interesting to look at my blood work across the board and there are significant improvements.

I too was and am grateful to all of those who have taken the time to post here.This forum kept me going.

GratZ and thanks to all
Logged

Offline HazelAustralia

  • Member
  • Posts: 178
Re: one year anniversary
« Reply #5 on: February 19, 2016, 02:51:29 am »
So encouraging to read your post Sapphire, thanks for posting and congratulations again! You too LeDoc01, what a great community.
Logged
Female age 53
Australia
Contracted in the 1980's
Genotype 1A
VL 314k

Started treatment with Veikira Pak and Ribaviron on Thursday 17th December 2015
NOT DETECTED, End of Treatment, 16th March 2016

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: one year anniversary
« Reply #6 on: February 19, 2016, 03:25:25 am »
Happy anniversary Sapphire and Ledoc. Thanks for being spyboys (and girls) for us. I tarted treatment in March 2015 so it's getting close for me too!

Couldn't have done it with as much grace and sanity if not for the people here.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: one year anniversary
« Reply #7 on: February 19, 2016, 11:27:06 am »
Kudos to the one year club!  Significant improvement across the board?!?!  Yes!!!  Thank you trailblazers!

Grace and sanity, Philly?  I wish I'd thought of that.  I went the "wailing and gnashing of teeth" route.   ;)
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: one year anniversary
« Reply #8 on: February 19, 2016, 04:34:08 pm »
All roads lead to Rome, Else. Just different journeys is all. ;)
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline sapphire101

  • Member
  • Posts: 238
  • "Stop worrying and start living"
Re: one year anniversary
« Reply #9 on: February 24, 2016, 12:53:30 am »
Thanks everyone for all the responses!
You have inspired me to clean up my signature and include "Class of 2015".

Shout out to all the brave clinical trials pioneers who blazed the trail for the rest of us. We would not have had access to these miracle drugs without them.
Logged
Sapphire101
Genotype 1a Fibrosis level 1
Viekira Pak with ribavirin 12 weeks
Pre treatment  VL  1.7 million, AST 45 ALT 65
EOT VL not detected, AST 21 ALT 21
12 week SVR not detected,24 week SVR not detected.
Cured! Class of 2015
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